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Liver pictures 8 years 1 month ago #13608
I went for a scan today; last one 6 months ago was not good and luckily a few days later I saw a Greg Jefferys story, found my way here and now have about a month to go of 24 weeks. It was great to go see my specialist of 20 years, virus undetected, I've lost 20 kg, blood tests great etc. He was happy, having not been a believer at first, and has this excellent new machine. You can really see inside, The kidneys are almost like photos, it could check portal veins etc really clearly (all good) easily measure spleen (reduced). And it produced quite a detailed visual report with hot to cold zones red- orange- yellow- blue mapping the fibrosis areas. Mine is unevenly scarred, so I have quite a big section of blue area which is working well, and a red crusty part. It has me thinking, if any rogue resistant virus is still hiding, it will be in them thar hills. I had thought I heard last time the fibro score was 13, pretty high. Today he was congratulating me on nearly halving it- down to 22- it was 40 last time! Glad I didn't know, but no wonder I feel better. Even if it turns out there is more treatment to go, (genotype 3 F4 etc is pretty stubborn) it was very satisfying to see pictures of how far back from the brink my liver has come in 6 months. Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716 | |
Liver pictures 8 years 1 month ago #13613
Good news on all your results especially the fibro reduction. Was that with one of the new MRI scanners? G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND | |
Liver pictures 8 years 1 month ago #13614
I will have to ask them to email me its name and stats. I gathered it was an ultra ultrasound. He spoke of algorithms and waves and lost me. I understood the pictures better. Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716 | |
Liver pictures 8 years 1 month ago #13616
That's great news Hazel how incredible is the body at restoring after the virus goes away? We just don't know the full benefits even yet it's such early days and look how promising this is Fantastic Splashes from Ariel Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 The following user(s) said Thank You: Hazel | |
Liver pictures 8 years 1 month ago #13618
So happy for you Hazel, heres to SVR 24. Em Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016. The following user(s) said Thank You: Hazel | |
Liver pictures 8 years 4 weeks ago #13638
Yours was a great read Hazel Very encouraging for us all 'Excellent new machine' sounds wonderful Great liver recovery news X gt 1a VL 6m F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015 sof/dac 10 December for 12 weeks pre tx alt 85 ast 51 4 wk alt 34 ast 31 UND <35 8 wk alt 29 ast 32 UND <15 12wk alt 25 ast 25 EOT 3.3.16 SVR24 UND KPa5.3 F0 in normal range I am well .forever grateful to fixhepc The following user(s) said Thank You: Hazel | |
Liver pictures 8 years 4 weeks ago #13642
| Hi Hazel, It sounds like the new LiverMultiScan ? I was lucky to have this recently as part of a trial. I know what you mean re seeing where the fibrosis is, mine is all in the center around the heart connections in the center and to the left. Same thoughts as you, I also reckon that's where the virus hides in me. It makes sense to me after some thought. It also says to me that the traditional fibroscan could have varyable results because it seems to only detect fibrosis at one area of the liver, at the point of the probe ? My first fibro (2014) was taken near the center and was 8.7 , my more recent two to the right side (6.2 and 5.6) .Someone told me once that fibroscans paint quite an accurate picture as 'fibrosis is quite evenly spread' ... Hmmm Really mine isn't for sure! Which could explain my varying diagnostic results. I will get around to posting my colour snap of my insides at some point Good to hear you've had an improvement, my very best wishes to you for the perfect end result . GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC The following user(s) said Thank You: Hazel |
Liver pictures 8 years 2 weeks ago #14189
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716 | |
Liver pictures 8 years 2 weeks ago #14200
| Such a beautiful and thoughtful gift from your daughter Hazel, you must be so proud of her SVR 24 |
Liver pictures 8 years 2 weeks ago #14204
That's a gorgeous take on livers Must have taken ages to make too and it's beautiful Love indeed Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 | |
Liver pictures 8 years 2 weeks ago #14242
Hazel Hand worked threads picture recovery and care a precious gift made with love gt 1a VL 6m F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015 sof/dac 10 December for 12 weeks pre tx alt 85 ast 51 4 wk alt 34 ast 31 UND <35 8 wk alt 29 ast 32 UND <15 12wk alt 25 ast 25 EOT 3.3.16 SVR24 UND KPa5.3 F0 in normal range I am well .forever grateful to fixhepc | |
Liver pictures 7 years 6 months ago #21999
Hi all, I've been quiet lately, trying to concentrate on exams coming up. Checking in to share my encouraging news for those who are F4- cirrhosis is reversible! Had a scan yesterday, has gone from 40kp pre treatment, was 22 at end of tx, and now, coming up SVR 24, has dropped to 9.2kp. So - I had hep C 30 plus years- don't now. I had cirrhosis, 18 plus years- don't now. Takes some getting used to. I realised that my specialist, same guy, has given me 2 biopsies, about 20 or more scans, 2 rounds of interferon/rib- this was the biggest, fastest drop he has seen. He must have seen so many recover on interferon- yet the liver doesn't seem to recover like it has on DAA's. They must set off regeneration somehow, not just kill virus. Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716 | |
Liver pictures 7 years 6 months ago #22001
I'd be more inclined to suspect that the old treatment interfered with the body's ability to regenerate. I also wonder whether the body might respond to the rapid virocide by pumping out various hormones .... specifically, I'm wondering if the big energy bump at 2-6 weeks (and the early waking, weird dreams, etc.) might be from something like a big boost in HGH. Is that even possible? The following user(s) said Thank You: fitz | |
Liver pictures 7 years 6 months ago #22002
Extremely happy for you. Glad you shared that with everybody. That gives hope to many who feel doomed by just the word cirrhosis. Genotype 1A ALT 473 AST 226 Virus Load 3,119,030 Results as of May-2016 5 week viral load/undetected as of 12/02/2016 Liver Biopsy Results from Feb 2013 Portal/Periportal chronic inflammation and mild interface hepatitis (Grade 2) Focal Lobular chronic inflammation (Grade 1) Portal/Periportal fibrosis (stage 1-2 trichrome and reticulin stains utilized) Negative Iron stains. The following user(s) said Thank You: LondonGirl, fitz | |
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