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Improvements during and after HCV treatment 8 years 4 months ago #6840

The major issue that treatment resolved for me was emotional. Knowing I was sick and getting sicker. Knowing there was an effective, relatively side-free tx (I was diagnosed 2 years ago), but I would have to refinance our home, on the verge of retirement, to afford it. It would have been different, for me, if there was no decent treatment choices or if the medicine was $2000 a pill-that would have been simply impossible to pay. So, the anxiety was added to the other mental and physical symptoms. I knew I could buy my health, but have to work until I was nearly 80 to do so. It drove me crazy. I finally opted for Lexapro at my PCP's urging. It was hell for a month, but then things got a lot better. After SVR 12, I will try to quit taking it, but for now I am still riding the "I don't give a shit" bus.
Mike
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G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The following user(s) said Thank You: Vororo, Chejai, Gaj, zhuk

Improvements during and after HCV treatment 8 years 4 months ago #6844

2 years and 3 days off the bungers here and don't regret kicking them, the money saved has paid for 2 overseas holidays so far. :woohoo:
Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV
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Improvements during and after HCV treatment 8 years 4 months ago #6846

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Makes a difference, doesn't it Paul!

I probably wouldn't have given up myself but for a case f flu so bad it was almost pleurisy... Couldn't smoke after that even when I tried. Then a couple of years later I took up my passion which is sports shooting - and I'd rather spend $ on ammo than smokes any day :lol:
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26

Improvements during and after HCV treatment 8 years 4 months ago #6852

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Since starting treatment some of the improvements I've noticed are less fatigue/tiredness, a great reduction in joint/muscle aches and pains, improved appetite and digestion and some improvement in balance and coordination. Many of these things have been issues for me for 10-15 years and I had mostly put down to aging though with recognition lately that the hep was making them worse. I now know many were mostly the hep though as someone approaching 60 in a few months I have no expectations of winning an ironman event. I do find the fog is lifting and my cognitive skills and concentration are far better than they were. Still forget stuff from moment to moment but I now realise that much of my declining ability to recall stuff and learn new information and skills during the last 10 years wasn't due to the long, slow journey into early dementia that I feared so much.

However, it is on an emotional level that the really big changes have occurred. Normally I was very much a glass half full person and I have tried to stay positive since being diagnosed but while I saw glimmers of light at the end of the tunnel I had mostly given up trying to reach them. I now realise that I was depressed and had isolated myself from many of my friends and loved ones. I only ever told a couple of people of my illness and swore them to secrecy so when the others saw me struggling and tried to help I couldn't tell them what the problem was.....and I was always so fatigued both physically and emotionally that it was easier to find excuses not to be social. But since starting treatment and experiencing the physical and mental improvements that the medications have brought about, I am once again feeling positive and hopeful for the future. I am also socialising again and telling more people of my situation with most being very supportive and caring (only one has shown any ambivalence). And then of course there are all the wonderful people here who are so, so supportive and share their own experiences so we know we are not alone in what we have been going through.

And those moments of clarity and colour, or as Mike put it so well, that "blue sky feeling". I had one of those the other day while sitting down by the creek, everything just felt so real and it was great to be alive! Reminded me of when I was a child and the world was new. :)

So above are some of the improvements and of course I'm only at wk 7 of 24. The downsides have been a few minor sides such as early liver twinges and a thick head occasionally and of course the bloody Riba which makes it difficult to sleep, often weary and very emotional at times. Right! Off to buy a new box of tissues now. :lol:
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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Improvements during and after HCV treatment 8 years 4 months ago #6854

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Thanks Enkel for starting this thread, good idea to have it all in one place.

It's day 83 of 84 sof/dac. Finish meds TOMORROW. YAY! :woohoo:
HIghs: more ENERGY, better quality sleep and less of it needed, better digestion, no more dry-eye drops needed, less (or no) peeing during night, less anxiety and depression, less muscle & joint pain, more brain clarity (lumosity scores as proof!), skin is less dry, whites of eyes less yellow, eyesight seems better (reaching for specs less), night blindness when driving less hazardous, libido reignited.

Lows: a bloated stomach that is uncomfortable when sitting. Occasional grabbing feeling in liver. Gained 2kg - and now need to lose 7! Pain in calves (maybe cos I've been off magnesium during Tx).

I agree with GAJ and others about the immeasurable emotional benefits. Becoming Hep C free is giving me not only the energy to socialise, but the confidence. I am more honest as the stigma and shame ebb away, and that makes for a more authentic me. There are definitely more 'blue sky feelings', more JOY. And sometimes a little deep breathing about this new concept of future.

Sincere thanks to all you wonderful fellow travellers-on-this-path for your humour, courage, sharing and support. And of course Dr James and Greg for making it all possible. And that unsung journalist, Michael Atkin, who put together the ABC 7:30 Report that led so many of us here.
May we all continue to SVR24 and never look back. And may the world become Hep C free, 'no man, woman or child left behind'.
NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24. :-)
A thousand thankyous to Dr James and the amazing FixHepC team.
The following user(s) said Thank You: LondonGirl, coral, Vororo, mgalbrai, Debs, Chejai, Gaj, Lynne-Francis-facebook, zhuk, IRMA88

Improvements during and after HCV treatment 8 years 4 months ago #6858

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I have 4 weeks of treatment! :cheer:
I always felt good at physical level. Diagnosed accidentally in 2015 with mild elevated ALT/AST. After 40s, I had basic blood tests every year and all was in normal range till December 2010. I couldn't believe what is happening to me. And yes GAJ, as you, I didn't tell almost anybody my problem. Antisocial behavior, fear of misunderstanding. Don't know from where I got hep C. Maybe cesarean in 1989. That's the way my daughter came to us. Maybe from the dentist.

I know that I had hep C for at least 26 years. Even with good basic blood tests. I know that my emotional problems were Hep C related. I am blessed with a wonderful family and especialy with a patient and loving husband. After I was diagnosed, the only good news was that my beloved family is hep C free. And it is till now!

I refused IFN in 2012. Because I had hope for new options to come in the near future. And I was right. The generics are here and are affordable for many many people, even if their rulers decided that they are too healthy to be treated.

It is amazing how I get used with this burden of hep C!
Only after 3 days on tx I felt a relief in the liver. After 7 days on tx I felt myself more light, as I put down a backpack with at least 5 kg in it! I felt the relief only when the burden was gone! At the emotional level the improvements are more amazing. I am calm and confident. I feel as I am back in time, feeling more alive as in childhood! Yes again, as you are feeling GAJ.
Don't miss to mention that my mind is much more clear! I am back to easy memorising! The last years I thought it was aging the cause of losing easy memorising and sometimes needing some seconds to remember words. :silly: :lol:

I didn't have side effects. Maybe because I want it, the miracle treatment, so much!
I feel the world much more brighter now! Like I opened a closed window.

Sorry for this long essay! I felt that maybe, other people will be helped reading this. As I definitely was by yours!
Happy that I found this supporting community!
:cheer:
Good luck and be all of you healthy again! :)
HCV since I don't know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
started 12 wks Twinvir on 06.12.2015. Feeling great and grateful :)
virus not detected 06.02.2016 & SVR24
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The following user(s) said Thank You: Joy, LondonGirl, mgalbrai, Debs, Chejai, Gaj, Jaz

Improvements during and after HCV treatment 8 years 4 months ago #6890

The count down has started:I took #10 this morning.
Tomorrow: #9
I keep looking at the lab sheet that says "Negative"
Hard to believe......
M
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24

Improvements during and after HCV treatment 8 years 4 months ago #6892

  • Enkel
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Ah my count down is 60

Why not invented a one month treatment.
Male, Fibro F1. Geno 1b. ALT 67 before treatment Viral load 5 million. My huge viral load replicates in my nervous system as I suffer anxiety.
Started Twinvir 12/12/15.
Two weeks
ALT 17 at 2 weeks
Viral Load UND at 2 weeks
ALT 13.5 at 7 weeks EOT
ALT 10.5 at 15 weeks EOT
ALT 13 at 27 weeks EOT, VL UND, Cured

Improvements during and after HCV treatment 8 years 4 months ago #6893

It's coming Enk.

Let's just hope it doesn't come from Gilead. They will want $3000.00 a pill...
Below is my response to someone I helped who told me she feels GREAT after 4 days of treatment. She asked if that was normal....

Its obviously normal for you! Different strokes, different folks.
I am Type A-all the way. If something's broken, its going to get fixed or replaced-from cars to knees, simple as that. I knew I was sick and getting sicker. I knew there was a "real" cure with few, if any sides. And knew I would have work until 80 to afford it. If it had cost $200,000, it would have been out of the question. So, I was frustrated and worried in addition to all the regular hcv crap. I got to the point it was hard to eat without violent reflux. I was also mad as hell. Mad at the government, insurance, Gilead...just not in a good place. I got depressed and I am a total optimist.
Whew!!!!!!

Now, to answer your question: all that crap was suddenly GONE!!!
BOOM!!!!
I felt a hell of a lot better as soon as the reality set in that I was finally getting better instead of worse. That took a couple days. Then, the physical benefits began to show.
I imagine the medicine eradicates the majority if the virus in people like us i a very few days-especially in the liver. So, no longer fighting off a vast army if alien invaders takes lots of work. Now that energy is available for other things, like having a life with a mind and body capable of enjoying it!
Hell, I don't even hate Gilead anymore. I just hate their board. I may have to arrange a hostile takeover....
Off to school!!!!
Happy for you!
Excuse the typos, I'm still asleep.

Mike
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G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The following user(s) said Thank You: Paul-Jarman-facebook, Chejai, zhuk, isaing4, Tommy

Improvements during and after HCV treatment 8 years 4 months ago #6897

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Enkel wrote: Ah my count down is 60

Why not invented a one month treatment.


As I understand, your 2 weeks viral load is 60. Yay! :)
Well done!
My genotype 1b and Twinvir colleague in hep C! :lol:

I am waiting my 4 weeks viral load!
:silly: :woohoo:
HCV since I don't know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
started 12 wks Twinvir on 06.12.2015. Feeling great and grateful :)
virus not detected 06.02.2016 & SVR24
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Improvements during and after HCV treatment 8 years 4 months ago #6899

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Count down of pills :)
Male, Fibro F1. Geno 1b. ALT 67 before treatment Viral load 5 million. My huge viral load replicates in my nervous system as I suffer anxiety.
Started Twinvir 12/12/15.
Two weeks
ALT 17 at 2 weeks
Viral Load UND at 2 weeks
ALT 13.5 at 7 weeks EOT
ALT 10.5 at 15 weeks EOT
ALT 13 at 27 weeks EOT, VL UND, Cured

Improvements during and after HCV treatment 8 years 4 months ago #6900

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Excuse me !:ohmy:
Anyway I wish you a very low viral load !
:lol:
HCV since I don't know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
started 12 wks Twinvir on 06.12.2015. Feeling great and grateful :)
virus not detected 06.02.2016 & SVR24
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