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10 Oct 2015 00:42 | |
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Hi Dr F and tweak max, Do you feel the Sofo/Led may be a little more gentle for most? I'm also GT1a and trying to decide. Does the How do DAC and LED differ ? Thanks Category: Patient Stories |
10 Oct 2015 00:07 | |
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The doc is right. You can use twinvir. It is for type 1. I am type 1a and I am going to use that Category: Patient Stories |
09 Oct 2015 23:38 | |
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Thank you Dr Freeman for the advice. Dr Freeman, do you happen in contact with any Chinese doctor in Beijing are familiar with those new treatments and willing to write prescription for generic and follow up monitoring? Apprantly, same as many other places, we have not found any doctor is willing to do so. One of the doctor she was seeing suggested Sof/Riba combination for 12 weeks which is not recommended to my understanding. I was think about API when I learned it here and Greg's blog, however, we could not find anyone in Beijing willing to compound. DIY is not possible considering their age and conditions, we are living in Canada and could not help much with that. For the moment, I am trying to source twinvir, if not successful, then we will fail back to APIs. Thanks again! Category: Patient Stories |
09 Oct 2015 21:56 | |
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24 weeks of Sof/Dac or Sof/Led would help. No Riba. My impression is that Sof/Led might have a slight side effect edge so may be more gentle. Both are gentle treatments. The typical treatment experience is feeling better than for years within a week of starting. It is hard to say how many years of life it might add, but those years may well be better. It would certainly be worth giving 12 weeks to start and then next 12 if that goes well. If you need help with sourcing Buyers Club can help and price is less for delivery in China because that is source country. You could probably have delivered on Monday. Category: Patient Stories |
09 Oct 2015 21:47 | |
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Hi Vicki, The big NO NO with Dac is Grapefruit juice which inhibits the enzyme CYP3A4 which breaks down the Dac. As a result of this inhibition the Dac levels build up, as do the sides. You may find this page helpful www.ganfyd.org/index.php?title=Inhibitors_of_CYP3A4 Here's Wikipedia's overview of it en.wikipedia.org/wiki/CYP3A4 Category: Q & A |
09 Oct 2015 19:14 | |
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Hello Vicky, this is Life!!! So you take both at the same time in the morning, is that correct? Thanks for replying!!! Ohw, I see that you asked the same question...i'm also looking for the foodlist, I'm starting on monday!! Thanks Category: Q & A |
09 Oct 2015 18:42 | |
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09 Oct 2015 18:14 | |
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Hi all, I'm 2 1/2 weeks into Sof/Dac 12week treatment. So far so good. I'm wondering about times to take the Sof/Dac? Right now I'm taking both the Sof and Dac together in the morning with a light healthy breakfast. I saw mention that Dr. Freeman had published a page on this site about foods to avoid when you take your cure. I can't seem to find it I have thoroughly read the "Consumer Medication" directions and they don't mention diet. Category: Q & A |
09 Oct 2015 14:53 | |
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My mother in law is living in Beijing China, 78 years old. She was infected with HCV genotype 1b from blood transfusion due to a surgery at hospital in early 80s. Her situation is pretty bad right now, decompensated cirrhosis, CTP-C, also has oesophageal varices which causing internal bleeding in Feb 2015. Is it safe for her to take new DAAs to treat Hcv at this stage? Any successful cases like her? Which combo - SOF/DAC or SOF/LED is best in her situation? Thanks Category: Patient Stories |
09 Oct 2015 11:08 | |
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Jolie, as London Girl wrote, most people on the forum are going through the Buyers Club but some of us do not live in Aus or a country that is open to import of these medicines by people for personal use and/or do not have a prescription so we have gotten our meds from other sources (generally Mesochem in the past but it seems other countries are also possibilities now), and are just accessing the forum to gather information so we can treat ourselves, with or without professional support. Also, in the beginning of this I don't think there was a Buyers Club so everyone was ordering the meds themselves as powder. However, the Aus government and the supplier seem to have gotten somewhat stricter about encapsulating/selling to individuals so the Buyers Club was formed as a way to facilitate treatment. Don't quote me on that but I think that is what has happened. As for myself, I live in Tokyo and it is basically impossible to get a prescription from anyone here to source the meds by oneself so I dealt directly with the Chinese company. In that situation, the Buyers Club/Dr Freeman cannot assist with the testing/encapsulating as there must be a prescription connected with the meds. I am not sure about all of the details regarding who can or can't import to which country so you would need to ask someone else if you are interested. Regards, Gary Category: Compounding |
09 Oct 2015 10:16 | |
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Hi folks, I bought 12 weeks supply of Sofisbuvir + Ledipasvir from Mesochem about 6 weeks ago. Since I need 24 weeks of treatment, I have to buy a further 12 weeks. When I saw in Greg's blog that Mesochem are no longer selling to individuals, I wrote to them and asked for a price for the next 12 week supply. This is the reply I got: On 30/09/15 16:46, rachel wrote: > Dear xxxx, > > The price is the same as before. > > But can you let me know are you buying it eat directly, in that case we don't sell it. > > As usually we only sell our product for lab quality research use, if patient buy it, at least he should have a chemist or doctor who make capusle for him. > > Best wishes! > rachel That sounds to me like Mesochem's problem is they are worried that people will encapsulate it themselves, get the quantities wrong, then blame Mesochem when it doesn't work. I find this reassuring. I don't have a lot of money, and I can't afford to get the product tested, but this indicates that Mesochem are actually selling the right stuff, and are still selling it. Category: Patient Stories |
09 Oct 2015 07:50 | |
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Hi Gary Yeah, the forum sort of took of so fast that I'm sure the IT's didn't have time to categorise things. Having been in and about many other forums I recognised this early in the piece and set up my own place to talk about my own tx experience 'emilio's place' I notice others are doing this as well. We probably need to arrange things into: introductions, treatment, research, new supplies etc. Some of the really good info is way back in the postings, like the tool I forwarded you. Em Category: Compounding |
08 Oct 2015 21:48 | |
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It's one of the first questions they always ask. I always tell them it's probably from sharing a toothbrush/razor with my brother, who's been registered as a heroin addict since he was 21, and who had a hepC-related liver transplant last year. Their attitude always noticably improves. But my interactions with the NHS on this have still been mostly sh1t, my GP practice notwithstanding. Category: DAA Side Effects |
08 Oct 2015 21:30 | |
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I think I've posted this capsule chart before, but it's worth putting it up again: capsuleusa.com/chart And, because our medicine is 'immediate release', don't get the enteric coated (delayed release) ones. Category: Compounding |
08 Oct 2015 20:13 | |
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Clarification now antiquated is positive people meaning old world charm, I love Hobart, the history is so well preserved and the people are amazing. Em Category: Patient Stories |