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SVR24 7 years 2 months ago #23634
| Well guys, just got my latest blood results back and am extremely happy to report that I am now a member of the SVR24 Club Apart from being eternally grateful, I am also proud to have been part of such an amazing period of time that offers something truly good in a pretty ****ed up world, you know? When I think back to only just over a year ago and how ill and scared I was, so many of us were and how new these new medicines were and how hard it was (and still is in some places) to access them and if you could, how hard it was to get true, good advise and support/monitoring. Really, MonkMed and Dr Freeman / FixHepC have moved mountains for us and made our hope reality. I mean, what greater gift could there be than hope, friendship and support followed by improved health. The kindness and care I have encountered through all of the above, Dr Debasis at MonkMed, those special NHS few who went against the grade to help me out with monitoring and all you lovely lot on this forum is humbling and that is a kindness I will never forget. I would also like to say hi to Chester, a patient on here right at the start, whose amazing offer of kindness will never be forgotten. So, sorry, bit of a speech GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC |
SVR24 7 years 2 months ago #23635
G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND The following user(s) said Thank You: LondonGirl | |
SVR24 7 years 2 months ago #23637
| Yay - Thanks Gaj GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC The following user(s) said Thank You: Greedfighter |
SVR24 7 years 2 months ago #23641
Hey LG that is fantastic news Big hugs Nadia xxx Diagnosed Hep C genotype 1b early 1990's. Treated 1998 peg Interferon/Riba non responder Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring May 2015 ALT 59 AST 56 21/7/2016 ALT 36 AST 44 BIL14 VL 939000 thanks FixhepC +Monkmed started Sof/Led 16/8/2016. OCT 3 AST33 VL UND OCT 11 ALT 29 AST 36 VL UND NOV 10 ALT 27 AST 37 VL UND JAN 30 2017 ALT 23 AST 29 VL UND SVR12 ALT 23 AST 27 VL UND!! SVR 24 UND!!!TY EVERYONE! The following user(s) said Thank You: LondonGirl | |
SVR24 7 years 2 months ago #23644
| Thanks Nadia Trying to work out how you're doing from your profile, great to see you're UND Are you coming up to your 12 week post tx tests? Thinking of you and sending LG GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC |
SVR24 7 years 2 months ago #23649
LG not quite there yet as I took another 8 weeks so am about half way to having my 12weeks EOT blood tests. I do feel positive as even with all this other shit I have been going through there is a part of me that is feeling good yeah!!! As Dr James said in another post we are many of us at an age where other health problems can kick in which is such a bummer but just got to keep fighting and trying †o look after our health. Stress is I feel a major reason why my other health problems have happened. The past few years of caring for my disabled son have been horrendous due to all the changes the government have bought in. I have had to fill in so many massive forms on his behalf and had to write about all the negative aspects of his diisability in order to get him his disability benefits. You wait in fear for the results knowing that many lies are told by the very people doing what is called face 2 face interviews. The government and media have spent the last few years demonizing disabled and sick people its all become really nasty. I try not to let it affect me but its hard LG and breaks my heart at how fast we are peddling backwards in so many ways!!!! Having said all that this is why this place and the people are so special to me so much love and support. Thank you Dr James, Monkmed and everyone involved at FixHepC. As soon as I have results of SVR 12 I will be sharing it of course!!!!! For now it seems a way away and SVR24 even further. much love to all Nadia Diagnosed Hep C genotype 1b early 1990's. Treated 1998 peg Interferon/Riba non responder Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring May 2015 ALT 59 AST 56 21/7/2016 ALT 36 AST 44 BIL14 VL 939000 thanks FixhepC +Monkmed started Sof/Led 16/8/2016. OCT 3 AST33 VL UND OCT 11 ALT 29 AST 36 VL UND NOV 10 ALT 27 AST 37 VL UND JAN 30 2017 ALT 23 AST 29 VL UND SVR12 ALT 23 AST 27 VL UND!! SVR 24 UND!!!TY EVERYONE! | |
SVR24 7 years 2 months ago #23657
| Glad to see alot of good news here - nice one LG Just got my 6 month post treatment bloods back SVR hep c undetecable alts etc all lower end of normal ranges--- spleen still enlarged, varices much the same as 1 year ago - platelets 47,000 WBC still very low nothing has got worse thank the Gods !! fibroscan results below -- nice improvement ! best to one and all from Bob (rob in ireland ) |
SVR24 7 years 2 months ago #23659
LG - I'm so incredibly happy about your SVR24. I know it was a long and anxious road with a lot of additional pressures but you made it. Your support for everyone on this site has been exceptional and some of that karma has come right back at you. Love and best wishes to one fabulous woman. xx G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!) Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 The following user(s) said Thank You: LondonGirl | |
SVR24 7 years 2 months ago #23662
| Gt 1a, F0, VL 6.5 million, AST 59, ALT 62 Started Twinvir 1/15/16 6 wk. labs VL UND, AST 27, ALT 20 EOT labs VL UND, AST 23, ALT 19 SVR 16, VL UND, AST 28, ALT 17 SVR 24 , VL UND, 10/8/16 SVR 125, VL UND, 9/22/18 SVR 230, VL UND, 10/3/20 The following user(s) said Thank You: LondonGirl |
SVR24 7 years 2 months ago #23665
Brilliant news ! GT3a diagnosed Sept 15 believe contacted 25+ yrs ago VL 1.6mil ALT. 41 Started Sof/Dac Redemption Trial 7/10/16g Wk 4. Undetectable. ALT. 14 Wk 8 Undetectable Wk 12. Undetectable End of treatment. SVR 12. Undetectable The following user(s) said Thank You: LondonGirl | |
SVR24 7 years 2 months ago #23666
I am so happy for you LG! GT2b diagnosed 10/2015 since: unknown 11/20/15 VL= 214,070 12/4/15 ALT=18 AST= 24 1/16/16 started sof/dac 2/13/16 @4wks VL=UND ALT=13 AST=22 3/12/16 @8wks VL=UND ALT=10 AST=18 4/9/16 EOT VL=UND ALT=11 AST=19 9/23/16 SVR24 ALT=11 AST=22 The following user(s) said Thank You: LondonGirl | |
SVR24 7 years 2 months ago #23670
| I am just as delighted as everyone else about LG's fantastic news. Well done girl! You had a bumpy ride compared with some of us. There's a bit more good news here folks: I've joined the SVR 24 club too. Sweet relief. If it hadn't been for you, LG, it may have been quite some time before I stumbled across the good people at Fixhepc. I may therefore have got really ill, which thankfully never happened. Thank you so much. I absolutely mean it when I say that was a kindness I shall never forget, ever. RSF G3a. Probably infected 40 years ago. Diagnosed July 2015 7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa. Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16 VL UND @ 4 wks, 12 wks EOT 6/7/16 SVR 12 SVR 24 PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc The following user(s) said Thank You: LondonGirl, Gaj |
SVR24 7 years 2 months ago #23671
Congratulations LG on your SVR 24; I am so pleased to hear you are doing well. Best wishes for the future Also congratulations to Bob of Ireland with SVR 24!.... amazing results with your fibroscan! And congratulations RSF with SVR 24....great news! HCV since 35-40yrs., GT 1a , Dx 2004; VL 4-5 mil, F2-3 Tx sof/led started 3/4/16 4wks VL <15 9 weeks VL UND, ; Alt-15,Ast-13 16 weeks VL UND Alt-20, Ast-22; EOT 24 wks UND SVR 4 UND SVR 12 UND, Alt.15, Ast. 17 SVR 24 UND The following user(s) said Thank You: LondonGirl | |
SVR24 7 years 2 months ago #23687
| Nadia :
Ah, that should do the trick Only those here in the UK can know what a nightmare these forms are, one wrong tick in the box and along come severe delays, so stressful. You have my empathy on this. It just isn't what's needed when you are battling something yourself. Fingers crossed that all goes smoothly. Sorry to read you've had all this other stuff to deal with, here's to an easier 2017 GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC |
SVR24 7 years 2 months ago #23688
| Congratulations Bob in Ireland ! - That's wonderful news, so pleased to read Here's to your improved health my friend.. Dear Coral, Thank-you so much for your lovely message Greedfighter - Another one to celebrate Thank-you too to CC2B - Yay I joined you in the 24 club RSF : Sweet relief indeed my friend Right back atya ! GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC The following user(s) said Thank You: coral |
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