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SVR24 7 years 8 months ago #21023
Waiting is so stressful in my head I think that I know that I am ok anxiety kicks in though and I acknowledge that my treatment has gone to plan and I am very thankful for that. What is it that throws me these negative and repetitive concerns through out my waiting, waiting moments? so to a different clinic last week I visited a gastroenterology clinic in the city recommended to me by a forum friend. I was given a comprehensive path request for a whole range of tests. I was booked in for a fibroscan and ultra sound. I asked my new doctor if I really did need to test for SVR24 and he tilted his head and looking at me said ‘ah no, not really’ and then said ‘ but I haven’t walked in your shoes’ so kind he told me that 450 scripts had been issued via PBS from this Melbourne hospital so far and I thought to myself that wasn’t really many at all someone close to me suggested that I might be suffering a kind of trauma of ‘aloneness’ signifying that since diagnosis I had carried this knowledge with me and told no one so true I’ve been thinking about this a lot because I was isolated in clinics and by doctors and felt so traumatised that I couldn’t start my own blog on fixhepc because I was terrified so many supportive friends here though, thank you SVR24 means 99.9% cure and and so the doc phoned today and said 'I checked 3 times' I held my breath he said ‘can you live with out it?’ you are undetected certainly you are ok however believe it when I say that I will test every year I recognize that waiting is a known given for all those of us with HCV and also for those as yet untreated and those retreating. I acknowledge the horrendous interferon experience that people have suffered through previous treatments I think about the unavailability of these drugs across the world and the consequences I wish everyone wellbeing and health Thank you James and Greg and Fixhepc team also GP2U so then I went for a walk and gt 1a VL 6m F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015 sof/dac 10 December for 12 weeks pre tx alt 85 ast 51 4 wk alt 34 ast 31 UND <35 8 wk alt 29 ast 32 UND <15 12wk alt 25 ast 25 EOT 3.3.16 SVR24 UND KPa5.3 F0 in normal range I am well .forever grateful to fixhepc The following user(s) said Thank You: DrJames, Joy, LondonGirl, coral, Vororo, mgalbrai, Ariel, Gaj, Lynne-Francis-facebook, Tina-Hill-facebook, beaches, isaing4, Hieupham, sonix, splitdog, re_roll, Tommy, MtGoat, Fara, Matt-Kenney-google and 3 other people also said thanks. | |
SVR24 7 years 8 months ago #21024
Such a beautiful post Pat1, you have such empathy for all and you have been such an inspiration to many. I am so stoked for you. Thank you for helping me through a bump in tx, thank you for your caring manner on this forum, always interested in patient stories and real issues we face. I am so happy for you, Pat1. Thank you for talking about the reality of HCV and the issues worldwide, we are the lucky ones aren't we......and I am still a few weeks away from my SVR24 but know that we are so lucky here, I agree with everything you say. You made it through this major milestone girl, that is brilliant, and I agree about testing yearly,, I will be after all the shizzle we have been through why not be nice to ourselves by being vigilant, yes yes! HepC Freeeeeeeeeeeeeee Love and giant bubbly splashes from Ariel Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 | |
SVR24 7 years 8 months ago #21034
| Ariel, you have nothing to worry about! If you are SVR 12, that is at least a 99% chance of cure With low fibrosis score and low VL to begin with, I bet you are cured. You have great ALT/AST scores I was 6.5 million VL prior to treatment, but I feel so good I will be shocked if I relapse. At this point it comes down to how you feel, I bet you will be SVR 24 for sure. Gt 1a, F0, VL 6.5 million, AST 59, ALT 62 Started Twinvir 1/15/16 6 wk. labs VL UND, AST 27, ALT 20 EOT labs VL UND, AST 23, ALT 19 SVR 16, VL UND, AST 28, ALT 17 SVR 24 , VL UND, 10/8/16 SVR 125, VL UND, 9/22/18 SVR 230, VL UND, 10/3/20 The following user(s) said Thank You: fitz |
SVR24 7 years 8 months ago #21038
What a wonderful post from the heart Pat1. I am so very happy for you and what a good doctor to say "I checked 3 times". It showed that he really did understand the importance of these results to you. Your next task is to really take it in and enjoy the freedom. Many of us have carried the secret and the virus for so long that I think sometimes that needs to be a conscious thing. On a personal note thanks so much for your well timed PM. It meant a lot. Enjoy the day Pat1. G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!) Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 | |
SVR24 7 years 8 months ago #21042
G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND | |
SVR24 7 years 8 months ago #21043
Wow, great news Pat! Awesome post. Cheers 3a for 35 years Dx 1996, tx naive, ALT 46 AST 38 VL 140K Started Sof/Dac 1/23/16 Kingswood generics AUS 2/19/16 4wk lab HCV Undetected ALT 14 AST 19 EOT 6/1/2016 TX was 18 wks (w/some 1/2 doses & 1 skip dose after 11 wks while waiting for +6 wks to arrive) SVR4 6/30/16 SVR12 SVR24 Redeemed | |
SVR24 7 years 8 months ago #21046
I will say this, you're an inspiration to all of us and the news is incredible. The job Dr Freeman and the entire staff has done is miraculous. Again a big congratulations, woohoo!!!!!!!!! In good health my friend. Contracted HCV 1980's Geno Type 1a F3 ( doc says once treated I'll be F2 maybe F1) Meds shipped 6/17/2016 arrived early 7/2016 Viral count - 3,471,080 4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected) 8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected) 11 week PCR RNA Qualitative bloods: September 26th 2016 - Undetected December 19th 2016: Cured! Viral count: zero!!! 2018 viral count: still zero! Cured! | |
SVR24 7 years 8 months ago #21055
Thanks Sven with 4 weeks path UND I look forward to reading your SVR24 mate gt 1a VL 6m F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015 sof/dac 10 December for 12 weeks pre tx alt 85 ast 51 4 wk alt 34 ast 31 UND <35 8 wk alt 29 ast 32 UND <15 12wk alt 25 ast 25 EOT 3.3.16 SVR24 UND KPa5.3 F0 in normal range I am well .forever grateful to fixhepc | |
SVR24 7 years 8 months ago #21056
Well said Pat1 Genotype 1a Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby | |
SVR24 7 years 8 months ago #21057
| Hi Pat, I am delighted to hear your news, and it's heartwarming to hear about the very kind doctor you saw. RSF G3a. Probably infected 40 years ago. Diagnosed July 2015 7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa. Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16 VL UND @ 4 wks, 12 wks EOT 6/7/16 SVR 12 SVR 24 PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc |
SVR24 7 years 8 months ago #21058
Hi Pat1 that is one beautiful post thank you. I am just over 1 week into treatment and feeling somewhat shattered today so reading your SVR news is super emotional and has given me such a lift. It is certainly one huge rollercoaster we are all on not quite knowing where we are heading but hoping its the same end stop The loneliness you mention in your post is so the reason we all need one another on here. I have come onto the website each day when I get a moment to read a little of everyones posts past and present, as it is quite a bit to take in! There are so many great stories, questions?????? ideas much love and hugs Nadia xxx Diagnosed Hep C genotype 1b early 1990's. Treated 1998 peg Interferon/Riba non responder Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring May 2015 ALT 59 AST 56 21/7/2016 ALT 36 AST 44 BIL14 VL 939000 thanks FixhepC +Monkmed started Sof/Led 16/8/2016. OCT 3 AST33 VL UND OCT 11 ALT 29 AST 36 VL UND NOV 10 ALT 27 AST 37 VL UND JAN 30 2017 ALT 23 AST 29 VL UND SVR12 ALT 23 AST 27 VL UND!! SVR 24 UND!!!TY EVERYONE! The following user(s) said Thank You: LondonGirl, coral, pat1, Ariel, Lynne-Francis-facebook, beaches | |
SVR24 7 years 8 months ago #21059
That doctor sounds like a wonderful, compassionate human being. We all need to practice compassion. And yes, 450 scripts, that sounds like a drop in the bucket doesn't it? Genotype 1a Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby | |
SVR24 7 years 8 months ago #21061
Well. Again congratulations Pat1 which is all I said initially. I'm really not accepting the turning back of my post to you...back onto random stuff about me and the mention of R word and so on which I never spoke of. I'm talking about you Pat1 not me, and for information to GF the hospitals here make one year appointments for us. It's just routine. Some people have had a rough time and some still are and no thanks for triggering a vile past experience by ranting at me about R which I had never mentioned on another lovely ladies post. If that was meant to be something helpful it did the opposite A Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 | |
SVR24 7 years 8 months ago #21062
| Hi Pat, I missed your SVR 24! So sorry, that is such great news! You're cured Gt 1a, F0, VL 6.5 million, AST 59, ALT 62 Started Twinvir 1/15/16 6 wk. labs VL UND, AST 27, ALT 20 EOT labs VL UND, AST 23, ALT 19 SVR 16, VL UND, AST 28, ALT 17 SVR 24 , VL UND, 10/8/16 SVR 125, VL UND, 9/22/18 SVR 230, VL UND, 10/3/20 |
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