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5 Months Post Harvoni Horrible Rash 8 years 5 months ago #11400
Hi, Prior to Harvoni was Treatment Naive. Fibrosis 1-2 SVR 12 I am new here, I took Harvoni over the summer, had some cardiac issues, extremely high bp ended up having to wear a heart monitor, just had to add more high blood pressure meds (had high bp prior to Harvoni) I survived that, had a short amount of time that i lost some hair, and then toward the end of tx I was very fatigued. I stopped Harvoni in Sept and the joint pains that started mid tx have finally started to subside. The fatigue is subsiding, however I have developed a horrible itchy rash all over my body. Tried some topical steroid cremes but, didnt work. I tried epsom salt baths, and recently started acupuncture, my acupuncture says its my Liver detoxing. Today, it was so bad I went to the ER and they gave me Atarax and Steroid pills (i dont want to take them). I am wondering, has anyone else here had any type of rash post Harvoni? With the Hep C I did get a similar but, very minimal rash that always responded to Clobetasol. Not this time. One thought, the Hep C is gone, however I do not feel any different aside from mostly all of the Liver Pains stopped. Any input would be greatly appreciated !! | |
5 Months Post Harvoni Horrible Rash 8 years 5 months ago #11404
Hi, I am happy you are cured!! But, you are well ahead of most, if not all, of us here. I was one of the earlier ones to treat, and I finished in mid January. How is your skin in general? Sensitive? Dry? I had some eczema issues during tx, but have had that before. It's mild and clears quickly with treatment. I'm no doctor, but I can't see how the Harvoni could be causing your rash. There are a lot of people on HepMag forums that finished well before you. You could probably get some good advice and insight there. Again, congratulations! Mike This email address is being protected from spambots. You need JavaScript enabled to view it. forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 | |
5 Months Post Harvoni Horrible Rash 8 years 5 months ago #11406
| Hair loss in men is usually related to hair loss in general if your Grandfather on your Mums side had hair loss the chances are you'll also follow suit if your hair loss follows a pattern then its nothing to do with the treatment. In terms of rash's, I've heard of some people having reactions while on treatment, I'm of the opinion its possible its again not do to with the medication or you liver-skin conditions can flare up for any number of reasons. Sob/Dac from Oct 29 2015 Geno 1b Fiberscan 9.9 Pre treatment Fiberscan 7.4 week 10 VL 1.3 million pre treatment Week 2.5 VL 96 Week 5.5 VL 17 Week 10 VL UD SVR 3 UD SVR 16 UD Cured: All liver functions in normal ranges. |
5 Months Post Harvoni Horrible Rash 8 years 5 months ago #11422
| yeh i got (am still getting) funny little pimples that really hurt and heal very slow, plus a pimply eczema thing down the middle of face, but they sound mild comp to yours and are manageable with eczema cream. I was also very achey on meds. I was on Sub' and Dac' which I finished mid Desember 15 Also after interferon a decade ago I got skin probs that never went away either. Diagnosed in the early 90's, geno 3, had Interferon 2006, currently on Sofosbuvir & Daclatasvir NO VIRUS @ 4 WEEKS of Sofosbuvir & C Daclatasvir Still free - SVR4 and at 8 weeks too Still free at 7 months, CURED!! |
5 Months Post Harvoni Horrible Rash 8 years 5 months ago #11464
There are many many many causes of rash. One that does have an association with HCV is cryoglobulinaemia emedicine.medscape.com/article/329255-overview The rash can look like lots of things but here are lots of examples... www.google.com.au/search?q=cryoglobuline...source=lnms&tbm=isch There will be a cause, we should find it, and if possible fix it. Steroids for rashes can be like killing a spider with a shotgun - it may well work but it's not the best tool for the job and there will be collateral damage. YMMV | |
5 Months Post Harvoni Horrible Rash 8 years 5 months ago #11469
| Hi Friend www.pingminghealth.com/article/281/mung-...-and-detox-the-body/ someone recommended that i try making soups /stews with them -- so i tried ! i found them both good fro riba itch and rash whilst on a prevoius combo trearment this was my own experince- they alleviated the itchiness and minimised some of the symptoms a bag of aduki beans and mung beans cost less than a dollar from any good health store chines supermarket The following user(s) said Thank You: WishIWasAWombat, Annasnow |
5 Months Post Harvoni Horrible Rash 8 years 5 months ago #11470
Genotype 1A ALT 473 AST 226 Virus Load 3,119,030 Results as of May-2016 5 week viral load/undetected as of 12/02/2016 Liver Biopsy Results from Feb 2013 Portal/Periportal chronic inflammation and mild interface hepatitis (Grade 2) Focal Lobular chronic inflammation (Grade 1) Portal/Periportal fibrosis (stage 1-2 trichrome and reticulin stains utilized) Negative Iron stains. | |
5 Months Post Harvoni Horrible Rash 8 years 5 months ago #11471
| Off Topic. Bob, I read your initial post in introductions whats your fiber scan score you mentioned you're a F0-F1 is that the case or did you make a mistake. I'm curious how a F0 would get in the treatment pool in Ireland I was F3 and refused was advised you have to be F4 Min score of 12. Sob/Dac from Oct 29 2015 Geno 1b Fiberscan 9.9 Pre treatment Fiberscan 7.4 week 10 VL 1.3 million pre treatment Week 2.5 VL 96 Week 5.5 VL 17 Week 10 VL UD SVR 3 UD SVR 16 UD Cured: All liver functions in normal ranges. |
5 Months Post Harvoni Horrible Rash 8 years 5 months ago #11473
| hi Sir, I am going to the hospital tomorrow - I will check up on the fibroscan results as far as i remember (yr ago!) it was what i mentioned -Their reason for treating was based on several issues varices-swollen spleen - longterm elevated lfts- I will get this clarified when I am face to face with my consultant tomorrow also am not trying to promote any one or anything here contrary to what others might be thinking... what i share was freely given from my own experience something that helped me Rob |
5 Months Post Harvoni Horrible Rash 8 years 5 months ago #11497
| I had bad skin rashes when I did the 2 rounds of interferon I went and saw a skin specialist and was given creams that didn't work then I did a bit of googling and found vinegar in baths helped clear it up ,I still have a couple of small spots that wont go away but I'm hoping they will after treatment Paul g3 since 96 4 week bloods <15 Undetected at 12 weeks The following user(s) said Thank You: WishIWasAWombat, Gaj |
5 Months Post Harvoni Horrible Rash 8 years 5 months ago #11525
| Hi Another Can't imagine 2 lots of interferon, (I did one 6 month tx) I really wish you the best with this new stuff. Diagnosed in the early 90's, geno 3, had Interferon 2006, currently on Sofosbuvir & Daclatasvir NO VIRUS @ 4 WEEKS of Sofosbuvir & C Daclatasvir Still free - SVR4 and at 8 weeks too Still free at 7 months, CURED!! The following user(s) said Thank You: Another Attempt |
5 Months Post Harvoni Horrible Rash 8 years 5 months ago #11526
| Will drop back to soap and water until i get it sorted, thank you. Diagnosed in the early 90's, geno 3, had Interferon 2006, currently on Sofosbuvir & Daclatasvir NO VIRUS @ 4 WEEKS of Sofosbuvir & C Daclatasvir Still free - SVR4 and at 8 weeks too Still free at 7 months, CURED!! |
5 Months Post Harvoni Horrible Rash 8 years 5 months ago #11529
That's interesting. I'm most itchy just after a shower and realising that even the mildest soaps and cleansers tend to be alkaline I try to limit their use which does help but hygiene must prevail of course. I will experiment with a diluted vinegar wash down after using the soap and see if that helps. G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND The following user(s) said Thank You: Annasnow | |
5 Months Post Harvoni Horrible Rash 8 years 5 months ago #11545
| hiya hope your day is good my friend R |
5 Months Post Harvoni Horrible Rash 8 years 5 months ago #11546
| All the very best Paul -Good luck ! |
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