Hi Tricia thanks so much for your campaign re WHO and yes a number of meetings are scheduled May is an important date to have a letter in but that agenda I suspect is set so I have planned other ideas too, world Blood Day and World Hep Day are coming up.
I am addressing my personal
letter to the Regional Director his name is:
Dr Shin Young-soo
Under Communicable diseases as James pointed out elsewhere there is zika, ebola etc
no HepC mentioned in the urgent list
However there is this:
www.who.int/mediacentre/factsheets/fs164/en/
WHO runs World Hepatitis Day as most here would know but just a reminder
So we have the forthcoming meeting but let's also lobby for July 28
I am very concerned this illness certainly affected my life and my children compromised greatly to help.
My letters are modelled on a case study format; l write my story and then a fiscal story based on Australia's population and now it's time to make larger projections, and that's what I am currently working on. I discussed this with one of my medical team a fortnight ago. She agrees WHO. All my lobbying has included my own details as a case study but this approach will be different as the world as a whole is not middle class Australia.
My pitch will be not as personal going in therefore.
I note all my replies to date have numbers meaning they are kept on file. I lobbied hard re DAAs here U can see the number on the letter I have included a fragment of. I cannot share entire letters for people to use if they thought them worthy of using because of my case study approach it tells too much personal info for a forum. I'm sure that someone can put together a general letter but I like this personal work I do if that makes sense after all I lost five important years others lost more many die.
I'm reading a lot here and a few links you probably have these too everyone but if interested and wanting to talk to people about hepC these may help.
I won't also post my story in the press last Dec here for privacy reasons. But I did it before the roll out and I guess a lot of people did who like me want to lobby privately so we aren't posting our links here.
There's a bit of govt response to my nagging if you have a close look you will read them turning me back toward Gilead and supplying me with the phone number for same. This particular letter is from Minister Leys assistant. It's proof of reply and that everything is kept, however if anyone thinks they don't read lobbying they do even if it's replied to poorly.
Ariel
Well I didn't mention some other people I have written to. Q and A who I have nagged so much do other Australians think its a good forum you simply log in and fill out a question its all there online.
I write to charity groups too.
Well this is now a matter for the WHO re access for all. Figures wobble around between 130mil and 180 mil diagnosed I read in various articles.
www.wpro.who.int/regional_director/regio...00_complete.pdf?ua=1