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TOPIC: Just wanted to say hi to all of you who have inspired me!!!

Just wanted to say hi to all of you who have inspired me!!! 5 years 3 months ago #20531

  • nads
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Hi Coral,
thanks what a great message. You made me laugh re retaining sense of humor. Sure didn't have one whilst on that stuff I was like a wild cat with a sore everything!!!!!!! haha!!! You know the one?

I am still in a bit of a trance since receiving those boxes yesterday. Makes me think again what a mad fucked up place we all live in!!!! I just hope others follow this path rather than wait till they get any worse.

Hope life is being kind to you. Thanks again for your warm words of encouragement. #love
Diagnosed Hep C genotype 1b early 1990's. Treated 1998 peg Interferon/Riba non responder :-(( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016. :-))
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!
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Just wanted to say hi to all of you who have inspired me!!! 5 years 3 months ago #20750

  • Greedfighter
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Hi nads, really glad to hear you received treatment. Dr. Freeman has given us all the reins to be in charge of our lives. Ride the bull to the cure!
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20
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Just wanted to say hi to all of you who have inspired me!!! 5 years 3 months ago #20765

  • Matt-Kenney-google
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Greetings and welcome nads. What a heart rending story you have to tell. Isn't it wonderful to have so many shoulders to cry on here :lol: and no one "bitches or moans" here ;) :dry: :lol:
I'm truly looking forward to seeing more of you here. Best to you and yours,

Matt
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
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Just wanted to say hi to all of you who have inspired me!!! 5 years 3 months ago #20768

Welcome Nads.

All the very best going forward with your treatment. You will find the support and most importantly humor on this Forum will see you through your treatment with confidence and ongoing support. :) I look forward to hearing your SVR's down the track.

Best wishes #flower
Lives in Bendigo, Victoria
No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal
Insomnia the only side effect
Undetected at 4 weeks
SVR4 - undetected - all bloods good and GP very happy
SVR12 bloods to be done at end of April 2016
SVR12 - undetected!!!
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Just wanted to say hi to all of you who have inspired me!!! 5 years 3 months ago #20769

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H everyone. Thank you Greedfighter, Matt Kenny, and Lynn Francis for your recent kind words of encouragement you certainly are a wonderful lot of people on here :kiss:

Well took first one of those orange tablets yesterday. Spent the day wondering if I was getting any unusual sensations yet. :unsure: ........don't think so .......told myself don't be so ridiculous its only the first one come on!!!!! Decided not to think about it anymore what will be will be right and deal with it along the way! Knowing you are all here is special and comforting. Trying to keep a balance and not get too obsessive over it all. It is very exciting just the prospect of kicking that monsters butt right out! So looking forward to feeling 20 again!!!!!! :lol:

My son J shouting to be rolled over in his bed better go help him before he wakes up too much ;) Value a few hours of peace in the morning before everything kicks off for the day and I take pill no 2!! Promise I won't be counting each one of them off haha! Hope you all have a great day or sleep depending where you are in this oh so strange world of ours.
love to you all #love
Diagnosed Hep C genotype 1b early 1990's. Treated 1998 peg Interferon/Riba non responder :-(( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016. :-))
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!
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Just wanted to say hi to all of you who have inspired me!!! 5 years 3 months ago #20770

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Wonderful to know you started tx. You will definately notice a difference when those little orange pills start kicking monster butts :P I thought I must be imagining it but it just kept on getting better ... :+1: kiss j for us :) #flower

Matt
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
Last Edit: 5 years 3 months ago by Matt-Kenney-google.
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Just wanted to say hi to all of you who have inspired me!!! 5 years 3 months ago #20778

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Matt so thrilled to have started! :) You still sound like you are buzzing! What a difference one person can make along with a few others. It is wonderful and brings a smile to my face. i will indeed try to deliver the kiss but you know what some young guys can be like 'stay away from me, no kisses from mum anymore only girls if you please' and who can blame him right? :P :lol: :lol:

I am probably asking something which has possibly been asked before a hundred times and answered too but just wondering how you put your details re results and treatment etc at the bottom of posts. I just know I found them really fascinating particularly how different everyone is. Just thought it would be good if I could get my own up to join the rest.
much love and affection. Keep well everyone
Nadia #duck :+1: #love xxxx
Diagnosed Hep C genotype 1b early 1990's. Treated 1998 peg Interferon/Riba non responder :-(( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016. :-))
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!
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Just wanted to say hi to all of you who have inspired me!!! 5 years 3 months ago #20779

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Hey nads ... just click on your profile name (in your case "nads") it'll take you to your profile and in the upper right corner you should see an "edit" button click it and scroll down on your profile till you see "signature" there's where you'll enter your info, stats etc.
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
Last Edit: 5 years 3 months ago by Matt-Kenney-google.
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Just wanted to say hi to all of you who have inspired me!!! 5 years 3 months ago #20781

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Thanks Matt, :+1:
will sort it out soon as we have eaten. :)
:kiss: Nads
Diagnosed Hep C genotype 1b early 1990's. Treated 1998 peg Interferon/Riba non responder :-(( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016. :-))
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!
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Just wanted to say hi to all of you who have inspired me!!! 5 years 3 months ago #20783

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Yes please eat :lol:
Hey I really like the graphic you've chosen with your moniker!! :+1: :+1:
MK
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
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Just wanted to say hi to all of you who have inspired me!!! 5 years 3 months ago #20802

  • LondonGirl
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Good news Nads, will be in touch later x
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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Just wanted to say hi to all of you who have inspired me!!! 5 years 2 months ago #21769

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Feel it has been so very long since I first came to say hi to everyone and to check out how you all are, but you are all certainly not forgotten!!!!! :kiss:

Looking after my son is such a full on preoccupation its a full time job plus overtime!. Since this government in the UK changed all the help that was available to disabled and sick people it has been an endless job of form filling (if you can call them forms more like a bloody book!) and all negativity which makes it hard when trying to have a positive outlook on life regardless what it throws at you!! :oops: Do you remember me going on when I first wrote here about moaning and whinging!!!!! Yep !!!

Finally got a minute to write here to all you wonderful people and let you know how things are progressing on generics!

Since starting treatment not feeling too bad and I guess the above keeps my mind off any sx, although falling asleep over dinner is kinda harder to explain away to others at the dinner table. Feeling exhausted can be frustrating and really sometimes all i want to do is sit on my butt doing sweet FA so do have to push myself to get out for some fresh air ;) Atrial fibrillation makes the whole thing harder as just walking to the top of the road leaves me feeling totally out of breath ....some days being worse than others. So.... not always sure if it is the AF or the meds making me feel so tired both I suspect. Really its been pretty good on the whole and pleasantly surprised after the horrendous sx of interferon and riba all those years past.

Getting results has been a bit of a circus! The base results prior to starting were done perfectly was really impressed and foolishly thought it was going to be an easy ride hahahahaha!!! My GP has been amazing but hepC is not something she is super knowledgeable about. She is learning fast tho!!! So my 4 week tests came back ALT had come down no sign of AST which my GP suggested was the lab deciding that as ALT was good there was no need for AST. Was given a form for another blood test just for AST.

Phlebotomists are really good at the surgery but always end up with bruising as I am taking Warfarin for the AF! What does it mind a bit of colour on what is always very pale skin! Always wished us humans had skin with the vivid colours of some other creatures out there on the planet perhaps a beautiful turqoise turning to an irridecent green....... I dream and digress!!!!!!!! :oops: AST results came in and were down so all good there. Finally received results through email from GP for VL 'not quantifiable' was the result which was not something I had seen before but GP seemed to think that was great so ok I am assuming now that means UND? When at the surgery to have the ALT blood test redone I asked for a print off of VL and was really bemused by what was actually written. It actually read
'positive-Below the limit of Quantification'
There was also a laboratory comment stating
'please note that this sample was diluted due to the small available volume. This may compromise the accuracy of the test'

I had to read it all a few times couldn't make out what it meant but was sure it was not UND!!! So back to surgery for another form to have a further blood test and hopefully get a proper VL result! Whew not quite the 4 weeks results all neatly together but hey as long as I get them and can see things heading the right way I am happy :)

Starting week 7 today will be heading back to phlebotomist in a week for more blood giving hahahaha! Maybe move in there with them!!!!!!
Did speak with the wonderful Dr Debasis who reassured me all seemed to be going well but you know what its like right you always want that confirmation on paper! ;)

Got to go sort out wages for the PA who is working with my son today, she is off on holiday for a week!

Well I hope I haven't bored the ass off everyone, cannot believe I have written so much here don't seem to have said too much tho!. Spend a lot of time reading others posts but never seem to have enough time to comment or send my love to you all.
So here it is now by the ladelful #love #love #love #love #love #love #love #love :cheer: :cheer: :cheer:
N XXXXXXXXXX
Diagnosed Hep C genotype 1b early 1990's. Treated 1998 peg Interferon/Riba non responder :-(( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016. :-))
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!
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Just wanted to say hi to all of you who have inspired me!!! 5 years 2 months ago #21793

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Hey Nads, Just a quickie. I had low platelets prior to tx and at local GP surgery had some terrible bruising, one went from wrist to above elbow, was painful enough to cause problems in working and left a large, hard lump that lasted 3 months, that vein still cannot be used 9 months later.

A friend told me of an IV unit for 'tricky customers' at my local hospital. Not the phlebotomy dept. but a dept. with super-good nurses. You need to make an appointment to see. They can even use scanners to guide them to a suitable vein, but that wasn't necessary for me, I asked my GP to refer me there and he did, they get me in seconds, no bruising and not even a mark since - Amazing ! The previous bruising was becoming stressful. Maybe you could ask your GP to refer you to your IV unit, it helped me alot, they are experts and so very nice with it. The brilliant nurse there told me 'there is no need to bruise if someone does it correctly, or at worst a tiny bruise'. They have helped me so much.

LG xx

ps Previously I used to always request a butterfly needle too & IV unit always have one ready for me when I come in.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
Last Edit: 5 years 2 months ago by LondonGirl.
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Just wanted to say hi to all of you who have inspired me!!! 5 years 2 months ago #21794

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Hi LG,
been a while hope you are feeling good and enjoying life after EOT! You so need that after some of the traumas you went through on tx. Your bruising and lumps sound horrendous much worse than I am experiencing. I have been rubbing arnica cream onto the bruise and it works brilliantly. Seems to draw out the bruise and makes it go much quicker than just leaving it. Thank you for that great bit of info I will certainly ask my GP once she is back from her hols sounds like a brilliant place! You are always so caring and helpful to others its a real privilige to meet such a fantastic group of people. The one advantage to having hep C! ( there had to be a positive in it somewhere haha!!!) Will let you know how it goes LG. You take good care of yourself.
#loads and loads of love Nads
Diagnosed Hep C genotype 1b early 1990's. Treated 1998 peg Interferon/Riba non responder :-(( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016. :-))
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!
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Just wanted to say hi to all of you who have inspired me!!! 5 years 2 months ago #21858

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Hi Nads,

Great to read your update. Things are definately moving in the right direction. You have a lot on your plate so I'm pleased to see that this virus is something you're going to be able to cross off the list. Love your positive attitude #flower #flower
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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