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How manny GT3's on this forum are cured? 7 years 11 months ago #20343
Hi there, just wandering (while waiting for my results 10 weeks after EOT and being "a bit" anxious of course)...how manny of you on the forum with GT3, being treated with Sof/Dac for 12 weeks are really cured? Because as I see it it's hardly 80, 90% as we hoped for at the begining of treatment? GEN3 for 20+ years November 2015: Bilirubin 6, AST 0,88, ALT 1,74, gamaGT 0,17, HCV RNA 43800 (previous 478000) Fibroscan form 4,3 do 6,9 (measuring twice a year) Started Sof/Dac on 23.2.2016 Week 4: S-Bilirubin: 12, S-Bilirubin dir: 4, AST: 0,30, ALT: 0,36, Gama GT: 0,17, Fibroscan: 4,4, still HCV RNA positive (no VL measured) Week 8: S-Bilirubin: 8, S-Bilirubin dir: 3, AST: 0,39, ALT: 0,39, GamaGT: 0,14, UND 16.5. EOT, everything like it's supposed to be 6 month after EOT still UND | |
How manny GT3's on this forum are cured? 7 years 11 months ago #20344
Me! and the two people I know here who have not cleared happen to be 1a. I have another friend who is G3 who has treated 4 times before but is now clear. None of those people are forum people. The stats are what they should be, about one in 10 won't, that is quite a few in large groups. The odds are very good, really disappointing for those who don't but there new options all the time. Lots of us have had a treatment journey, had to try again. This forum reports all the news, not just the good news- it is the reality. Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716 The following user(s) said Thank You: LondonGirl, mgalbrai, Ariel, Gaj, Lynne-Francis-facebook, Hope, Hieupham, Fara, Meg, fitz | |
How manny GT3's on this forum are cured? 7 years 11 months ago #20350
Hi Hope. I know why you are anxious at the moment but the odds really are in your favour. G3 is a bit harder to clear but as Hazel said there is a decent percentage of people that do and they do not necessarily report on this forum. I am a 1a that recently relapsed but I know that I have options for retreatment and will beat it in the end. I know when I post about this it can cause a bit of anxiety so I try to minimise it but I agree with Hazel that it all needs to be reported. Hang in there Hope. Wishing you all the best for your next results. G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!) Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 The following user(s) said Thank You: LondonGirl, mgalbrai, Ariel, Gaj, Lynne-Francis-facebook, Hazel, Fara, Meg, fitz | |
How manny GT3's on this forum are cured? 7 years 11 months ago #20357
I was also 1.9 million before starting treatment (type 1a) Your ALT still look better than mine last time (mine was 230) Hope you restart treatment again and SVR too! | |
How manny GT3's on this forum are cured? 7 years 11 months ago #20364
Hope, I have/had GT3 and did Sof/Dac 12 weeks, had blood tests last week and am SVR 24. Best of luck!! | |
How manny GT3's on this forum are cured? 7 years 11 months ago #20368
G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND | |
How manny GT3's on this forum are cured? 7 years 11 months ago #20371
Coral you are so kind your empathy shines through even in with your own personal issues at present, this is so kind of you I totally agree that writing up relapse is not pleasant, but you have my support for one. Unfortunately some people do and have relapse/d and I am glad to see the topic for all genotypes because it's one of the things that I am still working on fortnightly with my psych and I relapsed a few years ago but it was the old tx and an unpleasant ending, still, all relapsers need support more than anyone I think. It took me a month for it to even sink in thinking back, and then I turned into a lobbying machine once I discovered that I had been treated with "old meds" as in the old stuff when they knew that the new stuff was around. The way I see it is we are a whole person not just a physical body. In my case I got lucky this time and have held up so far to SVR18 but I still have to heal my ptsd to move forward fully. And in my case, the ptsd was from the old tx. My heart is with all who relapse I'm so relieved that there are better options and I would love information on the best practice lobbying in Oz re the new drugs Pipeline because it was a marathon lobbying for Sofosbuvir wasn't it fellow political naggers! Three years is too long so I hope that the newer meds are through PBAC to PBS faster than that. It still astounds me the way FIXHC is pretty much the only honest real sane non greed driven place for the hepC patient globally For this we all give thanks All relapsers I am so hopeful for you and we know that we are in good hands here at FHC LOVE Ariel Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 | |
How manny GT3's on this forum are cured? 7 years 11 months ago #20372
Thanks Gaj. Sorry to see that you relapsed but am sure that you will eventually succeed what with all the options available. Good luck with everything! | |
How manny GT3's on this forum are cured? 7 years 11 months ago #20373
Congratulations Gary! That's such good news and it's always good to be reminded by real people, in addition to the statistics, that the successes far outweigh the relapses. G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!) Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 | |
How manny GT3's on this forum are cured? 7 years 11 months ago #20377
Tug This email address is being protected from spambots. You need JavaScript enabled to view it. forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 | |
How manny GT3's on this forum are cured? 7 years 11 months ago #20408
Gary congrats to you on SVR24 too Awesome for you wishing you a great future no hepc so good to read. Happies from Ariel Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 The following user(s) said Thank You: fitz | |
How manny GT3's on this forum are cured? 7 years 11 months ago #20458
Hi Ariel. Thanks for your kind words a couple of days ago. Despite my huge disappointment (understatement!) in not reaching SVR this time I'm really happy to rejoice with you and others that do. Largely because I know just how much it means to everyone (and I did have a taste of it) but it also reinforces my belief that I'll get there in the end. Coral G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!) Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 | |
How manny GT3's on this forum are cured? 7 years 11 months ago #20461
You WILL get there! m This email address is being protected from spambots. You need JavaScript enabled to view it. forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 | |
How manny GT3's on this forum are cured? 7 years 7 months ago #22810
| Hi folks I haven't been on here for a while been doing a lot of changing to my life ,I finished treatment on the 21st of Sept had my bloods done a month later and James called me to give me the results and after 8 months of treatment he told me it was undetected at the 4 week mark post treatment But it's not over yet I have to have more bloods done at the 12 week mark and James tells me it's around a 25 to 1 shot so here's hoping I backed a winner for this third attempt at getting rid of this thing that has plagued my mind and body all these years. If I relapse I'll have another crack at getting rid of it once and for all but really hoping this is it this time for 3rd time lucky. I still have a bit of discomfort from time t time and not sure if that means it's fighting back or weather it just the liver getting over the meds ? Anyway good luck to all that are going through treatment atm AA g3 since 96 4 week bloods <15 Undetected at 12 weeks The following user(s) said Thank You: DrJames, LondonGirl, mgalbrai, Gaj, Hieupham, MtGoat, Fara, jorge soler, fitz |