TOPIC:

Hi there, just wandering (while waiting for my results 10 weeks after EOT and being "a bit" anxious of course)...how manny of you on the forum with GT3, being treated with Sof/Dac for 12 weeks are really cured? Because as I see it it's hardly 80, 90% as we hoped for at the begining of treatment?

Me! and the two people I know here who have not cleared happen to be 1a. I have another friend who is G3 who has treated 4 times before but is now clear. None of those people are forum people. The stats are what they should be, about one in 10 won't, that is quite a few in large groups. The odds are very good, really disappointing for those who don't but there new options all the time. Lots of us have had a treatment journey, had to try again. This forum reports all the news, not just the good news- it is the reality.

Hi Hope. I know why you are anxious at the moment but the odds really are in your favour. G3 is a bit harder to clear but as Hazel said there is a decent percentage of people that do and they do not necessarily report on this forum.

I am a 1a that recently relapsed but I know that I have options for retreatment and will beat it in the end. I know when I post about this it can cause a bit of anxiety so I try to minimise it but I agree with Hazel that it all needs to be reported.

Hang in there Hope. Wishing you all the best for your next results.

coral wrote: Hi Hope. I know why you are anxious at the moment but the odds really are in your favour. G3 is a bit harder to clear but as Hazel said there is a decent percentage of people that do and they do not necessarily report on this forum.

I am a 1a that recently relapsed but I know that I have options for retreatment and will beat it in the end. I know when I post about this it can cause a bit of anxiety so I try to minimise it but I agree with Hazel that it all needs to be reported.

Hang in there Hope. Wishing you all the best for your next results.

I was also 1.9 million before starting treatment (type 1a)

Your ALT still look better than mine last time (mine was 230)

Hope you restart treatment again and SVR too!

Hope, I have/had GT3 and did Sof/Dac 12 weeks, had blood tests last week and am SVR 24. Best of luck!!

gary wrote: ...... had blood tests last week and am SVR 24.....

Congratulations Gary, that is a magic number.

coral wrote: Hi Hope. I know why you are anxious at the moment but the odds really are in your favour. G3 is a bit harder to clear but as Hazel said there is a decent percentage of people that do and they do not necessarily report on this forum.

I am a 1a that recently relapsed but I know that I have options for retreatment and will beat it in the end. I know when I post about this it can cause a bit of anxiety so I try to minimise it but I agree with Hazel that it all needs to be reported.

Hang in there Hope. Wishing you all the best for your next results.

Coral you are so kind your empathy shines through even in with your own personal issues at present, this is so kind of you I totally agree that writing up relapse is not pleasant, but you have my support for one. Unfortunately some people do and have relapse/d and I am glad to see the topic for all genotypes because it's one of the things that I am still working on fortnightly with my psych and I relapsed a few years ago but it was the old tx and an unpleasant ending, still, all relapsers need support more than anyone I think. It took me a month for it to even sink in thinking back, and then I turned into a lobbying machine once I discovered that I had been treated with "old meds" as in the old stuff when they knew that the new stuff was around.
The way I see it is we are a whole person not just a physical body. In my case I got lucky this time and have held up so far to SVR18 but I still have to heal my ptsd to move forward fully. And in my case, the ptsd was from the old tx.
My heart is with all who relapse
I'm so relieved that there are better options and I would love information on the best practice lobbying in Oz re the new drugs Pipeline because it was a marathon lobbying for Sofosbuvir wasn't it fellow political naggers! Three years is too long so I hope that the newer meds are through PBAC to PBS faster than that.
It still astounds me the way FIXHC is pretty much the only honest real sane non greed driven place for the hepC patient globally
For this we all give thanks
All relapsers I am so hopeful for you and we know that we are in good hands here at FHC
LOVE
Ariel

Thanks Gaj. Sorry to see that you relapsed but am sure that you will eventually succeed what with all the options available. Good luck with everything!

Congratulations Gary! That's such good news and it's always good to be reminded by real people, in addition to the statistics, that the successes far outweigh the relapses.

Tug

Gary congrats to you on SVR24 too
Awesome for you
wishing you a great future no hepc so good to read.
Happies from Ariel

Thanks Ariel. Congratulations on your cure, as well. It is fantastic to see so many people reporting SVR 12 & 24. Enjoy life HepC free!!

Hi Ariel. Thanks for your kind words a couple of days ago.
Despite my huge disappointment (understatement!) in not reaching SVR this time I'm really happy to rejoice with you and others that do.
Largely because I know just how much it means to everyone (and I did have a taste of it) but it also reinforces my belief that I'll get there in the end. Coral

You WILL get there!
m

Hi folks I haven't been on here for a while been doing a lot of changing to my life ,I finished treatment on the 21st of Sept had my bloods done a month later and James called me to give me the results and after 8 months of treatment he told me it was undetected at the 4 week mark post treatment ,I couldn't show the elation I felt as I had a good mate standing near by that knows nothing about this problem I've lived with for 20 odd years.
But it's not over yet I have to have more bloods done at the 12 week mark and James tells me it's around a 25 to 1 shot so here's hoping I backed a winner for this third attempt at getting rid of this thing that has plagued my mind and body all these years.
If I relapse I'll have another crack at getting rid of it once and for all but really hoping this is it this time for 3rd time lucky.
I still have a bit of discomfort from time t time and not sure if that means it's fighting back or weather it just the liver getting over the meds ?

Anyway good luck to all that are going through treatment atm

AA