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TOPIC: Otago Daily times New Zealand

Otago Daily times New Zealand 5 years 10 months ago #7591

  • Joy
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Yes even better - bypass Greediad altogether!
NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24. :-)
A thousand thankyous to Dr James and the amazing FixHepC team.
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Otago Daily times New Zealand 5 years 10 months ago #7593

That's what we are hoping for Joy.

Come on Pharmac and rid New Zealand of Hepatitis C, there are better options out there instead of being bullied by Gilead into their inhumane pricing.
SVR 24
Last Edit: 5 years 10 months ago by Tina-Hill-facebook.
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Otago Daily times New Zealand 5 years 10 months ago #7613

  • Chapel
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Geat letter Hazel, what is the URL for the Hep Foundation i/v with Tina?
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!
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Otago Daily times New Zealand 5 years 10 months ago #7616

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still in the works, watch this space. she nailed it.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
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Otago Daily times New Zealand 5 years 10 months ago #7851

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Why is this thread allowed to stay open????,,,,,,,

I reported this story weeks ago and a moderator closed the thread subject to further information..
fixhepc.com/forum/patient-stories/390-ha...d.html?start=12#4169

None of you here deserve any information or any help at all........Lots more info available but I won't be sharing any of it with any of you....
Last Edit: 5 years 10 months ago by Paul-Jarman-facebook. Reason: Abuse will not be tolerated Mate
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Otago Daily times New Zealand 5 years 10 months ago #7853

This is a new thread Devil

In relation to your comment about your particular thread you were and still ARE unable to support your claims - hence Alsdad locked your thread until such time you could substantiate your claim.

To abuse another member here on this forum by calling them a low life maggot leads me to believe you are a troll and should be banned.
SVR 24
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Otago Daily times New Zealand 5 years 10 months ago #7854

  • Chapel
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Yes, Tina, a ban would suit this poster. Abusing a moderator should not be tolerated.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!
Last Edit: 5 years 10 months ago by Chapel. Reason: added info
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Otago Daily times New Zealand 5 years 10 months ago #7855

Indeed Chapel.

"Low life maggot" is reserved for Gilead not a moderator.
SVR 24
Last Edit: 5 years 10 months ago by Tina-Hill-facebook. Reason: to add more in
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Otago Daily times New Zealand 5 years 10 months ago #7856

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Tina-Hill-facebook wrote:
This is a new thread Devil

In relation to your comment about your particular thread you were and still ARE unable to support your claims - hence Alsdad locked your thread until such time you could substantiate your claim.

To abuse another member here on this forum by calling them a low life maggot leads me to believe you are a troll and should be banned.

A decent person would have done as I suggested which was to email or ring NZ health and confirm......

A low life maggot of course didn't wan't to know the truth so he/she called me a liar and closed the thread....

A decent person would have merged the 2 threads into 1 giving credit to the person who first reported this huge development that would help so many people....

But of course this forum is not about helping people.....It's about a select few stroking their ego....

Feel free to ban me...))
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Otago Daily times New Zealand 5 years 10 months ago #7858

Have you read Hazels story? its about her accessing GENERIC medication from Fix Hep C and NOTHING to do with your whimsical fantasy based on what you had heard about Harvoni being made available via the MoH in Feb

If you care to scroll up you will see Zhuk had made contact with Pharmac and got a response which has been posted.

I had a look on the MoH website to which there was nothing

oh and as for the Hepatitis Foundation.....I had an interview with them on Monday and there was no mention of it either, nor on their facebook page to a post put there about your claim - who I suspect was from you...crickets churping Devil?.....

How dare you accuse Hazel of taking your glory... tell me Devil what is your glory?

Enough said.
SVR 24
Last Edit: 5 years 10 months ago by Tina-Hill-facebook. Reason: to add more in
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Otago Daily times New Zealand 5 years 10 months ago #7861

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Tina-Hill-facebook wrote:
Have you read Hazels story? its about her accessing GENERIC medication from Fix Hep C and NOTHING to do with your whimsical fantasy based on what you had heard about Harvoni being made available via the MoH in Feb

If you care to scroll up you will see Zhuk had made contact with Pharmac and got a response which has been posted.

I had a look on the MoH website to which there was nothing

oh and as for the Hepatitis Foundation.....I had an interview with them on Monday and there was no mention of it either, nor on their facebook page to a post put there about your claim - who I suspect was from you...crickets churping Devil?.....

How dare you accuse Hazel of taking your glory... tell me Devil what is your glory?

Enough said.

So when I provide information provided by my Doctor it's "whimsical fantasy"??.......
When it's info provided by an ego stroker it's believed and accepted??....

Thanks for explaining the double standards by which this forum operates....
Last Edit: 5 years 10 months ago by Devil.
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Otago Daily times New Zealand 5 years 10 months ago #7862

Provide it then
Provide the proof that the New Zealand Government is going to make branded Harvoni available to all New Zealanders.....

and to the point you have not provided any information other than the website for the MoH.
SVR 24
Last Edit: 5 years 10 months ago by Tina-Hill-facebook.
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Otago Daily times New Zealand 5 years 10 months ago #7863

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Devil,

When there was a suggestion put on the forum - by you - that Harvoni would become available in NZ from Feb at the cost of "about $125 per week"

One of our members - zhuk - wrote to the NZ Ministry of Health, who int turn directed the query onto PHARMAC.

Below is a copy of PHARMACs response. Please read it, because it definitely does not say subsidised Harvoni will be available for "about $125 per week" as you have suggested. If your doctor told you this he appears to be wrong.

On a separate note we encourage open discourse, and referenced sources on this forum.

We do not tolerate offensive rants. This is your one and only warning about this. If any further unpleasant commentary is directed at any of our members your account will be closed. An apology would be good.

Here is the PHARMAC response about this question (the most relevant part is in bold):
Dear XXXX

Thank you for your email about funding for ledipasvir with sofosbuvir (Harvoni).

PHARMAC received a funding application for ledipasvir with sofosbuvir (Harvoni) in February 2015. The first step in assessing the funding of a new medicine is for the application to be reviewed by the Pharmacology and Therapeutics Advisory Committee (PTAC), our clinical advisory committee. PTAC also has multiple Subcommittees, including one that provides specialist advice on Anti-Infective treatments. These committees provide us with expert, objective advice on medicine funding opportunities.

Harvoni was discussed by PTAC at their meeting in May. The minutes from this meeting can be found here: www.pharmac.health.nz/assets/ptac-minutes-2015-05.pdf

It is important to note that PTAC does not make funding decisions. PTAC provides clinical advice to PHARMAC. Additionally, a positive recommendation from PTAC and/or its Subcommittee does not guarantee the medicine will be funded. It is just the first step in the process. PHARMAC must then assess a number of other factors. This will include economic and commercial considerations as well as the clinical advice we received from PTAC and the Subcommittee. Further details on the process that PHARMAC uses to make funding decisions can be found on our website here: www.pharmac.health.nz/assets/factsheet-0...unding-decisions.pdf.

You can follow the progress of this funding application using our online Application Tracker:

www.pharmac.govt.nz/patients/ApplicationTracker?ProposalId=1344

www.pharmac.govt.nz/patients/ApplicationTracker?ProposalId=1340

You will see on the Application Tracker, that these funding applications have been ‘ranked’. This means they have been ranked against all other funding applications currently under consideration. We regularly reassess the relative ranking of medicine funding applications which means the ranking can change over time.

Unfortunately, we are unable to provide a definitive timeframe for if or when a funding decision will be made for these medicines. This is because there are a number of factors that can affect the relative ranking and funding timeframe for a medicine. These include the success of commercial negotiations with the supplier (including changes in price of the medication), new clinical data and/or the other funding applications being considered at the same time. Further information on how PHARMAC works can be found on our website here: www.pharmac.health.nz/about/your-guide-to-pharmac/

We are unable to advise how much Harvoni would cost to purchase privately as it may vary between pharmacies. We recommend comparing prices between several pharmacies if possible.

I hope this information is helpful. Please feel free to contact us again if you have any further questions.

Kind regards

Lauren Grierson

PHARMAC
YMMV
Last Edit: 5 years 10 months ago by DrJames.
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Otago Daily times New Zealand 5 years 10 months ago #7865

Thank you James x
SVR 24
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Otago Daily times New Zealand 5 years 10 months ago #7940

  • Vororo
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Here is section 3.16 from the minutes of the PTAC meeting in May (www.pharmac.health.nz/assets/ptac-minutes-2015-05.pdf):

3.16

The Committee noted that the supplier’s submission proposed funding for all chronic hepatitis C patients in New Zealand. Members considered that the pricing proposed in the application would have a very significant fiscal impact and that the supplier had made no attempt to address this fiscal risk.


In other words, back in 2015, Gilead proposed to treat everyone in NZ, but their quote was for an arm and a leg. After the Australian deal, maybe they will drop their price in 2016, but you can be sure they wont be doing anyone any favours...
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable).
Week12 (EOT): AST 30, ALT 26, VL UND
Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND
Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND
Ever grateful to Dr James.

Relapsed somewhere after all that... Bummer!

Jan 2018: VL 63 000 (still GT3).
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