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Hello everyone I have taken my first dose of my medicine last night......long way to go but hoping my four week tests will come back undetected

I hope so too Lynne, and it's highly likely. Now is the time to be a patient patient.

Hi Lynne,

I started mine 2 nights ago so it looks like we'll be travelling this road together. We'll aim for some collective patience!

Coral

All the very best with it Lynne, and coral The road starts here and I wish you both a smooth one.


Hope to be following you all in a few weeks, with a bit of luck...I know that feeling of impatience heh.

Hello Lynn and Coral,
wishing good luck on the path to health..what an amazing thing you are doing!! Wishing you a smooth journey.

i couldn't believe how backward thinking Geelong hospital have been. I have always found there clinic odd. Asking questions was apparently and unusual thing for patients to do there. It always seemed justified to travel to Melbourne. i'm glad you have managed to teach them a thing or two and hopefully people will have an easier time now because of you. I do know a lot of people who do the drive to Melbourne hospitals because of there attitude.

Glad you persevered and got your treatment and monitoring.

Yes Nonna. Their attitude towards clients is condescending and authoritien. Geelong is Victorias biggest regional City, only an hour from Melbourne. It makes you wonder. The clinic nurse is really good though.
I hope I have made it easier. The registrar still treated me with disdain. She was very non chalaunt about my results when they showed no virus detected warning me that they still diddnt really know the long term side effects of the DAA's.
What a party pooper!!
I'm into week 9 with only three more to go. I'm virus free and am feeling better than I have for ages.
All the very best Nonna

Hi Vicky Nonna unbelievable story about Geelong hospital. they were trying to justify their unkind attitude by scary talk of long term effects of generics. Where was their heartfelt concern about the use of poisonous interferon used in the past 3 decades. Many people have been damaged by this drug and it failed more often then not. They tried to push it onto every poor desperate person looking for hope. The hospitals couldnt care less about the effects and patients were left to suffer alone ofter without out patient care. Suddenly they are concerned about the effect of these drugs which actually cure. Also I would be pointing out to these health care professionals the long term side effects of having hep c. Whats wrong with these people dont they realise people have been putting up with this suffering for years and we all die eventually, we are just trying to have some quality time before we go. Have mercy .

Well said Poodle. I have recently had a 'consultation' in a London hospital with a consultant whose manner towards me left me left me feeling upset. It is not acceptable. The 'Blythe' tone as DT described it is totally unecpessary and can leave patients distressed even leading to depression. There is nothing positive whatsoever in this attitude from those are supposed to be helping.

I had the same experience with a specialist. here in Bendigo. I paid to see him privately so he could arrange the Fibro Scan etc. which came back F0 thank goodness. My viral load is 3.3m. Before I even sat down he said "I won't be able to treat you but can answer any questions you have"! I always thought that is what specialists were meant to do, look after their patients. Needless to say I will not be seeing him again. I have a supportive GP. I received a letter form the Bendigo Base Hospital telling me it could be up to 18 months before I get an appt. at the clinic. Then I found FixhepC. And I agree that the sickest will get the trial drugs here (and I have no problem with that whatsoever) and those of us that are in a relatively less afflicted position at the moment will have to just wait and see.........just taken my fifth dose tonight and apart from insomnia and a bit of constipation (too much information) I feel good!!

Oh YES Poodle EXACTLY what I thought.
How dare that party pooper say that about the generics, when they never even admitted that the old drugs had after affects.
I know the ifn + Ribas did terrible things to me.
I found out last year after having a brain MRI scan, that my bad fuzzy memory is probably because they could see evidence of 6 small strokes I've had, & these were probably from the Ifn, after all I had to endure that poison 4 times. Without any specialist saying, "oh wait, by the way we aren't sure if they have any long term affects"
And then our specialist had the nerve to try to push those dreadful old drugs on my son!!

How dare they NOW be concerned that they aren't sure what the generics do. I'm sure they are MUCH kinder on our bodies compared to that other stuff. The side affects of the Ifn was horrifying.
These generics are gentle, Ifn isn't & neither is the virus.
x

My Liver Nurse is a really lovely person I notified her I had accessed the generics she was so happy for me and wanted to monitor my progress at the clinic. Still have text message on phone, she was going to talk to Doctor since then nothing it has gone quiet obviously pressure has been applied.
Went to local Liver Clinic was told that they are that busy best to be monitored by Doctor who wrote script that's fine .

ps. My Liver Nurse did suggest I add Riba to the mix.

Good morning everyone Does anyone have any hints as to what is okay to take for headaches while taking the medication. I have had a horrid headache since Wednesday and just can't shake it. Other than that I am dealing okay with the insomnia (which I still have) and energy through the day not too bad at all Hope you are all travelling well.

Lynne

Hi Lynne,

I was told Paracetamol is ok, I gave my son 2 panadol yesterday.
Hope you feel better soon.
x

Hello everyone!
I'm just starting my journey towards the cure, though I've been wrestling with this disease for twenty years. I'm trying to choose a Liver Clinic in Brisbane to be referred to and I'm wondering if anyone had any experiences to share...warnings or recommendations?
I am lucky I have a very supportive GP but I need a specialist to help determine what combination I should go for. (Plus the Fibroscan of course). I'd like to avoid any unpleasant experiences such as described here.
How awful to be fighting on every front as we have all been for so long.
Love to you all
Sarah