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Day 1... here we go 7 years 10 months ago #22965
I am happy with SVR12 bit will get my LFs checked annually. Probably suffering from too-good-to-be-true syndrome.   Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby |
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Day 1... here we go 7 years 9 months ago #23173
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Greetings friends. What a long wait it has been to get my 4 week bloods back. Can confirm I am now UND!!!
 Thank you to everyone who has shown their support so far - it has meant a lot, and to Dr Freeman for providing access to this fantastic trial.Just 19 more weeks to go until EOT!! Is the consensus still to do 24 weeks if relapsed after 48 weeks of peg interferon/Ribavirin? When I initially spoke to Dr Devsam, he mentioned that it might be possible to only do 12 weeks if I was UND after 4. I've got the pills though, so for the sake of an extra 3 months I might as well take them? Thoughts? Genotype 1B
SVR 24 (10/17/17): VL UND / ALT 25 / AST 17 SVR 12 (7/25/17): VL UND / ALT 21 / AST 14 SVR 4 (5/31/17): VL UND / ALT 21 / AST 19 EOT (5/1/17): VL UND / ALT 32 / AST 22 T+19w (3/27/17): VL UND / ALT 23 / AST 20 T+4w (12/12/16): VL UND / ALT 31 / AST 24 T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28 Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016. |
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Day 1... here we go 7 years 9 months ago #23174
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Congratulations on your first UND! Well done
Please add details about your fibrosis level. It is an important piece of info for making a decision about the lenght of your treatment. G1a 2004.
Peg/riba 2006, SVR 24. Control PCR in 2010 - around 4.000 IU/ml. Confirmed genotype 1a. Fibroscan F0-F1 (2011). PCR between 10 - 250 IU/ml (July 2016) Ledifos (SOF/LED) September 2016 ALT/AST 20/21 08th October - 4 weeks ALT24 AST18 05th November - 8 weeks ALT17 AST16 29th November - EOT  AST 20 ALT 4122 February 2017 - SVR 12! ALT 14, AST 14 |
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Day 1... here we go 7 years 9 months ago #23179
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Hi Edge,
Congratulations on being undetected at 4 weeks. That must give you a feeling of confidence.I ran your information through the SVR calculator fixhepc.com/getting-treated/svr-calculator.html and it does recommend 24 weeks and suggests a 99% probability of SVR for 24 weeks against 94% for 12 weeks. BUT I'm not a doctor and I also don't know what other factors you may have discussed with Dr Devsam. I think if I was in your situation I would finish the full course to give myself the very best chance unless I experienced strong side effects in which case I would discuss the options further with the doctor. Hah! Hieu beat me to it, think I need another cup of coffee this morning.  G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND |
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Day 1... here we go 7 years 9 months ago #23190
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Hi Edge,
Great to see the big UND at 4 weeks. Others have provided good advice about the calculator and the need to discuss treatment lengths with your doctor. My personal view is that if you have the pills and are managing any side effects I would finish the course.  G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 |
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Day 1... here we go 7 years 9 months ago #23199
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Great news, Edge! Congrats on your UND. result! Good things are surely in store for you
Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32 4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35 6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15 8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND 12 Week Results 31 August, 2016 LFTs Normal, VL = UND EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4" SVR12, 21 Nov 2016. CURED!!! |
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Day 1... here we go 7 years 9 months ago #23293
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Hi all, I have not written a post before but have found reading everyone else's experiences so helpful. I live in NZ and am Hep C gen 3, which recently discovered I had managed to get over 30 years ago. For a long time I have not felt well so was actually kind of relieved to discover the cause of all my health problems (itchy skin, tiredness etc). I did not hesitate to contact Dr Freeman after I researched my options. The doctors I have dealt with here in NZ were very supportive. My specialist from Auckland said they would take it if they had hep c - can't get better recommendation than that!
Anyway, am now nearly 2 months into Sofosbuvir and Daclatasvir combination and am feeling fantastic.  Will admit though had a couple of crap weeks to start with and did sleep a few days away but now have energy levels that I had forgotten existed haha. First bloods have just come back but haven't talk to doctor yet to get full picture - from what I can see looks heaps better. I feel very blessed that this cure has become available just when I was diagnosed because past treatments do not sound that great! All the best to everyone on this journey |
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