emo Fear of being healthy again

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6 years 3 months ago #14818

Hi Serb,

I think I understand, as I also found that having hep c encouraged
me to live a healthy lifestyle.

But I've found, since getting hep free, I can still do this.

Try helping others with the virus, or even just those in need, this helps you to remember to look after yourself as well.

I used to party quite a lot before I knew I had the virus, drinking quite a bit, not really looking after myself, but when I was told I had the virus, my lifestyle changed dramatically, almost as if the hep did me good :blink:
Because I was suddenly living very healthy. No drinking, good food, lots of exercise.

But you can still do this when free of the dragon, and getting involved in helping others to live a more healthy lifestyle and to get cured, would help you look after yourself as well.

Just saying, well it works for me anyway.
I also enjoy it. ;)

Love Cindi x


J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
The following user(s) said Thank You: Ariel, Gaj, EC2

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6 years 3 months ago #14820

Hi CJ and Serb,

I have attached an article I found while browsing. Not of any great note but it does highlight risks of HCC following SVR (a current interest if mine).

Basically it retells the risks associated with booze; so what, we all knew this and I hope most of us got on the wagon. And now for me there will be no celebratory drinks following any SVR!

Got me thinking though about my younger days and what having a grog or two, or ten, meant. Basically even with a moderate few: no uni work that day and depending on the scale from two to ten, probably no uni work the day after as well!

So along came HCV and trying to keep on the wagon. Achieved more than I would have education and work wise thanks to that.

I suppose in a perverse way Hep C gave me that, but you can understand at the same time I won't be offering the bastard my thanks.

File Attachment:

File Name: ijms-16-19698-v2.pdf
File Size:391 KB




Yours

Jeff

Attachments:

GT3a 1990 Failed Inter 1998, comb in 2000. HCC 2012
Started 24/52 Sof/Dac 27th October 2015.
1. Bloods 2 October 2015: AST - 165 (20-40), ALT - 265 (5-40), GGT 189 (5-50)
2, Bloods 20 November 2015: ALT etc normal; VL 19
3. Bloods 8 January 2016: AST - 40, ALT - 59, GGT 48 VL RNA UND
4. EOT 12 April 2016 - blood tests: all is well, CT scan: okay
5. AFP 11 June 2016: 4 ref< 11
6. VL July 2016: DET
7. Oct16 start treat - June17 UND
8. Jun 18, lfts okay, platelets a bit low.
The following user(s) said Thank You: CJ, Ariel, Gaj, EC2

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6 years 3 months ago #14837

That's very interesting!
It sure makes you think twice about drinking alcohol doesn't it!

Also it says that tobacco smoking contains more than 100 potential carcinogenics that may affect liver..yuck :ohmy:

I used to do both but gave up about 20 years ago, thank goodness, & don't think I'd start again. I think anyone reading that article may think to do the same!!

It seems to be proven that alcohol intake is associated with HCC development in patients who SVR, so probably we should all try to not drink, or only a tiny bit?

I think it's just common sense that after having such a toxic virus in our bodies for so long, living a healthy lifestyle is the best thing to do.

You can still have fun without alcohol. :)

Something positive though I saw there in that article was that people with cirrhotic livers, post tx, 60% had cirrhosis regression, so how goods that, a great incentive to live the healthy life :cheer:

xo


J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
Last Edit: 6 years 3 months ago by CJ.
The following user(s) said Thank You: sabrecat, Ariel, Gaj

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6 years 3 months ago #14857

Interesting read pretty scary
Mostly about interferon SVR
Hate that stuff interferon
Wonder if theres any real research about the cell changes that peginf causes. Mine sure changed.
No HCC but plenty of other serious stuff.
Don't look back look forward is the mantra I guess.
Good luck with the tx Serb, I wished you previously too.
Ariel
PS hit the road jack was that the quote you referred to about me I wrote it up for you?? See the thread I replied
Ariel


Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: EC2

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6 years 3 months ago #14860

Hi CJ,

thank you for your reply, thinking on how to support others is a very good tip. Especially about letting them know that there exist affordable treatment with the generics from India. I think it will require a certain "diplomacy" when discussing with people about this, as many people have biases about India. I experienced this already when I informed people around me that I was going to get generics from India ("you're crazy", "it's dangerous", "not safe", "waste of money", etc). sometimes I was really exhausted not because of the HCV, rather of too many fears to handle and which were not mine, rather of others, healthy people.
I believe so far a challenge was to find a cure, the next challenge is to demonstrate people that it works. EASL congress and fixhepc are very good sources of information in this regards.
Cheers,
Serb

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