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the patient poodle 8 years 4 months ago #5862
Hi mike I really enjoy your posts by the way! What is your fibrosis reading and are you doing 24 weeks ? Thanks Jil Geno1a 35years fibrosis 2 or 3 different results from different hospitals ?? 24weeks mesochem sof/led as unsure of fibrosis status. currently UND. No bad side effects Have svr12 ... waiting for svr 24 I now have SVR 36 weeks. The following user(s) said Thank You: mgalbrai | |
the patient poodle 8 years 4 months ago #5863
Thanks! Biopsy:F-1 Fibrosure: F-1/2 I qualified for 8 weeks, but am taking 12. Mike This email address is being protected from spambots. You need JavaScript enabled to view it. forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 The following user(s) said Thank You: poodle | |
the patient poodle 8 years 4 months ago #5867
Yes we are peas in a pod. Good luck to you. My gut feeling is that I have not progressed to F4 in the last 12 months. Would have to be unlucky. Still even the F4s have a 85 % chance of clearing it with only the 12 weeks. Jill Geno1a 35years fibrosis 2 or 3 different results from different hospitals ?? 24weeks mesochem sof/led as unsure of fibrosis status. currently UND. No bad side effects Have svr12 ... waiting for svr 24 I now have SVR 36 weeks. The following user(s) said Thank You: mgalbrai | |
the patient poodle 8 years 4 months ago #5874
Hi Jill, You ask hard questions. I think if your current LFTs, etc. are good, you feel well and are looking after yourself then that sort of progression in that time frame would be unlikely, or as you say, unlucky. Mine did jump up but with very noticeable test and general health effects plus I was already deemed high risk. G G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND The following user(s) said Thank You: poodle | |
the patient poodle 8 years 4 months ago #5876
Yes G thats the story, wish I had that updated fibroscan all the same. Do you know if its possible to order an extra 4 weeks. Might be hedging my bets , with a top up just in case. J Geno1a 35years fibrosis 2 or 3 different results from different hospitals ?? 24weeks mesochem sof/led as unsure of fibrosis status. currently UND. No bad side effects Have svr12 ... waiting for svr 24 I now have SVR 36 weeks. | |
the patient poodle 8 years 4 months ago #5885
Hi Jill, I'm not sure as I needed 24 so two times 12. I'm sure something could be worked out as there will be others who were in similar situations. Hopefully someone can post what they did so others can find out? G G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND The following user(s) said Thank You: poodle | |
the patient poodle 8 years 4 months ago #6071
Hi just to update my treatment news. Because of my fibroscan being 12 months ago Ive decided to increase my treatment from 12 weeks to 24. Reason being is that I cant be completely sure of my fibrosis status. My feeling is that I would be unlikely to have reached F4. But that is only a feeling and not science. I would be so regretful if I got to the end of 12 wks and relapsed because I had underestimated my condition. Not exactly to plan, as I went into treatment as soon as the club started and I assumed a 12 month old fibroscan would be ok. Ive learnt alot on the forum here , which is why Iam changing my game plan. So for the record I will be 12 weeks on sof/led from Mesochem followed by 12 weeks of Twinvir. Hoping my second lot of 12 weeks will reach me soon enough to tag team with the last dose from mesochem. I have 23 day left to make it happen. Jill Geno1a 35years fibrosis 2 or 3 different results from different hospitals ?? 24weeks mesochem sof/led as unsure of fibrosis status. currently UND. No bad side effects Have svr12 ... waiting for svr 24 I now have SVR 36 weeks. The following user(s) said Thank You: LondonGirl | |
the patient poodle 8 years 4 months ago #6072
What was your last fibroscan? Male, Fibro F1. Geno 1b. ALT 67 before treatment Viral load 5 million. My huge viral load replicates in my nervous system as I suffer anxiety. Started Twinvir 12/12/15. Two weeks ALT 17 at 2 weeks Viral Load UND at 2 weeks ALT 13.5 at 7 weeks EOT ALT 10.5 at 15 weeks EOT ALT 13 at 27 weeks EOT, VL UND, Cured The following user(s) said Thank You: poodle | |
the patient poodle 8 years 4 months ago #6074
12 months ago it was 2 but 5 years ago 3 from different hospitals . So if it was infact 3. 5 years ago... not so good. Thanks Jill Geno1a 35years fibrosis 2 or 3 different results from different hospitals ?? 24weeks mesochem sof/led as unsure of fibrosis status. currently UND. No bad side effects Have svr12 ... waiting for svr 24 I now have SVR 36 weeks. | |
the patient poodle 8 years 1 month ago #12373
Hi everyone ive been off the forum for a while but have been reading posts from time to time. As ive mentioned i have gone for extended treatment of 24 weeks. I have 35 days to go. Mostly sleep is the only side effect in that it has been hard to get to sleep. However I would like some advice please. My last 3 bowel movements have been jet black.....I have not eaten anything which would effect the colour. I drink a truck load of coffee, but that is normal for me, so in theory would not change the colour. At the momeny Iam feeling very uneasy. Is this medication related ? Could it be liver related. Any thoughts would be appreciated. Jill Geno1a 35years fibrosis 2 or 3 different results from different hospitals ?? 24weeks mesochem sof/led as unsure of fibrosis status. currently UND. No bad side effects Have svr12 ... waiting for svr 24 I now have SVR 36 weeks. | |
the patient poodle 8 years 1 month ago #12382
Hi Jill, You should get this checked out immediately. If you have - black, very stinky poo that is like liquid tar this is from bleeding high up in your gut - either from an ulcer or varices. This needs to be looked at urgently. Blood from low down is still red, but from higher up gets partly digested and goes black. If on the other hand you started taking iron tablets this will also make your poo black (but not stinky). YMMV The following user(s) said Thank You: poodle | |
the patient poodle 8 years 1 month ago #12383
| Can black poos also be due to too much iron? Hey Poodle, wishing you all the best that everything goes well x GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC The following user(s) said Thank You: poodle |
the patient poodle 8 years 1 month ago #12392
Thankyou James for the phone call. Amazing service we have here at our finger tips. Thanks also LG As I discussed with Dr. James I remembered Ive been taking aspro clear for headaches all week. So conclusion is this is causing aproblems. Will let you know how it pans out. Apart for this new development Ive been pretty good. Xxx Geno1a 35years fibrosis 2 or 3 different results from different hospitals ?? 24weeks mesochem sof/led as unsure of fibrosis status. currently UND. No bad side effects Have svr12 ... waiting for svr 24 I now have SVR 36 weeks. The following user(s) said Thank You: LondonGirl, Gaj | |
the patient poodle 8 years 1 month ago #12602
Hi just reporting back on the little internal bleeding problem. The problem has been resolved as the damage done was from taking aspro clear. Looks like iam sensitive to this. Not related to taking sof/led or liver bleed... carry on everyone business as usual. 4 weeks to go to complete my 6 month journey. Best wishes jill Geno1a 35years fibrosis 2 or 3 different results from different hospitals ?? 24weeks mesochem sof/led as unsure of fibrosis status. currently UND. No bad side effects Have svr12 ... waiting for svr 24 I now have SVR 36 weeks. | |
the patient poodle 8 years 1 month ago #12603
Nice to know that was it. Happy for you! m This email address is being protected from spambots. You need JavaScript enabled to view it. forums.delphiforums.com/generichcvtx G 1a F-1 Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil 11/17/15 4 wk lab ALT 17 AST 16 <15 11/18/15 Started Harvoni 12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND 1/14/16 Fin. Tx 7/07/16 UND SVR 24 The following user(s) said Thank You: poodle | |
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