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TOPIC: Anticipation and Thanks

Anticipation and Thanks 3 years 10 months ago #6528

  • Rowan
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Thanks LG!

I had RBV as the primary suspect and agree with what you say. I will try fatty stuff with RBV... Yoghurt helped this morning. The other drugs are just marvellous 21st century stuff. if anyone is in trepidation of them because of my post... don't be. The worst side effect I have is insomnia and a little THC (cannabis) works wonders.

Cheers, Rowan
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Anticipation and Thanks 3 years 10 months ago #6529

  • Rowan
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Dr J-F

Many thanks indeed! Unfortunately I was borderline cirrhotic with a Fibroscan of 12 (Up from 6 in 12 months!). so I "had" to have it. Amazing how much we have learned in such a short time!

I have days of few side-effects and the clarity or "fog-lifting" as some have described it teases me so. I have glimpses of what it will be like post treatment and I know I will feel 20 something again!

Thanks for all that you do ...


regards
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Anticipation and Thanks 3 years 9 months ago #10417

  • Rowan
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Well it's time for another update.

First blood results had a small viral load under 30 copies down from 1,900.000! ALTs and ASTs still under 300. I had another a fortnight ago and VL is undetectable (yay!) ALTs and ASTs in the mid 200s which my Dr says is no issue as they are finding that in some they will go down when treatment finishes.

Coincident with these rather pleasing numbers is that my anaemic feeling (only a feeling not anaemia) is most likely caused by the RBV has abated and I am gaining a small amount of muscle form and subcutaneous fat. 2 weeks to go to completion and the side effects are passing.

These are wonderful drugs and I cannot think of anything better to spend money on!

All of us on these medicines have provided a great service to our supervising doctors that are now armed with a wealth of experiences and knowledge to help the next wave (flood?) of people taking them on the PBS.

Thanks all at FixHepC and best wishes to those on treatment.
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Anticipation and Thanks 3 years 9 months ago #10418

  • Ariel
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Hi Rowan from Ariel
I didn't enjoy riba much when I was given it a few years ago so hang in
Great results thanks for the positive outlook post I am exhausted today at end week four and agree with GAJ we can overdo the exercise and crash ha!
I agree about feeling clear in the mind in general
You sound really optimistic and on top of the sx you are dealing with
Wishing you a smooth tx as possible and of course the best outcome too
Splashes of happy to you
Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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The following user(s) said Thank You: Rowan
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