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'In which LG seeks Redemption & makes new friends' 8 years 3 months ago #7727
| Good luck. Its an emotional journey you're about to take I went through similar when I started. Id be mind full of not getting hung it and try and take it as it comes. Sob/Dac from Oct 29 2015 Geno 1b Fiberscan 9.9 Pre treatment Fiberscan 7.4 week 10 VL 1.3 million pre treatment Week 2.5 VL 96 Week 5.5 VL 17 Week 10 VL UD SVR 3 UD SVR 16 UD Cured: All liver functions in normal ranges. |
'In which LG seeks Redemption & makes new friends' 8 years 3 months ago #7737
Well LG I can tell you that after 11 weeks of treatment the tinnitus has finally turned down the volume to pretty much as it was before I took the first tablet. So there is the possibility that it will sort its self out eventually. Ive decided to go to 24 weeks so will see if there is any new side effects on the long haul. Best Jill Geno1a 35years fibrosis 2 or 3 different results from different hospitals ?? 24weeks mesochem sof/led as unsure of fibrosis status. currently UND. No bad side effects Have svr12 ... waiting for svr 24 I now have SVR 36 weeks. The following user(s) said Thank You: LondonGirl | |
'In which LG seeks Redemption & makes new friends' 8 years 3 months ago #7751
| Poodle,reading your stats you say you believe G1A is in the hardest groups to treat everything I have read suggests g1 are the easiest to treat. It seems your now UD if you became UD at week 2/4 or /6 I wonder why its suggested you continue treatment maybe you became UD later. I'm G1B, as I was Detected up to week 6, I became UD at week 10 it was suggested prior to week 10s result I may need to continue for 8/12 week extra. The liver clinic I am in has had no Geno type 1 fail, G3 and G4 had failure rates in some instances mutating from G3 too G4. I'm wondering why they suggest you continue. Oh, I also have tinnitus, I don't now in my case its relate to Hep C I have it about 10 months,its no better no worse since treatment. Sob/Dac from Oct 29 2015 Geno 1b Fiberscan 9.9 Pre treatment Fiberscan 7.4 week 10 VL 1.3 million pre treatment Week 2.5 VL 96 Week 5.5 VL 17 Week 10 VL UD SVR 3 UD SVR 16 UD Cured: All liver functions in normal ranges. The following user(s) said Thank You: poodle |
'In which LG seeks Redemption & makes new friends' 8 years 3 months ago #7756
| Al, this chap was a G3 F4 who did 12 weeks of Haravoni he was 12 throughout and 6 weeks from EOT was back where he started accept he was a G4. Interestingly this guy also cleared the virus without treatment in his 20's it came back years later I guess he's not the norm. The good news is he's on some new combo of sob and three new DAA the names of which escape me this time he's being Undetected since week 2 he's at week 8 still UD. Ya, it blew my mind too. Sob/Dac from Oct 29 2015 Geno 1b Fiberscan 9.9 Pre treatment Fiberscan 7.4 week 10 VL 1.3 million pre treatment Week 2.5 VL 96 Week 5.5 VL 17 Week 10 VL UD SVR 3 UD SVR 16 UD Cured: All liver functions in normal ranges. The following user(s) said Thank You: Tommy |
'In which LG seeks Redemption & makes new friends' 8 years 3 months ago #7761
D'you think he may have exposed himself to re-infection (both earlier in his life and during his last failed tx) Sir? I think Harvoni's not great against G4, so a new infection could've escaped it? Weird one, for sure. Apologies to LG. If this offtopic discussion gets any longer, I'll move it. | |
'In which LG seeks Redemption & makes new friends' 8 years 3 months ago #7766
| No, he never reinfected himself from the time of infection about 30 years go he's lived a very wholesome life...... There are a group who when infected clear the virus without treatment he was one of them from his first diagnosis he's never done anything leading to a new infection. His first treatment was Interferon(Failed) next was Harvoni last year(Failed) his latest is his best yet as in he is UD from week two. I think he looks awfully sick he says other then bloating he's fine. Sob/Dac from Oct 29 2015 Geno 1b Fiberscan 9.9 Pre treatment Fiberscan 7.4 week 10 VL 1.3 million pre treatment Week 2.5 VL 96 Week 5.5 VL 17 Week 10 VL UD SVR 3 UD SVR 16 UD Cured: All liver functions in normal ranges. |
'In which LG seeks Redemption & makes new friends' 8 years 3 months ago #7775
Hi LG hope you're going well I am already hungry on waking this stuff is potent! So it's only Day 2 here a few days behind you babe I have had ringing screeching since peg/inf the GP even referred me to an Ear specialist but I haven't bothered I figured surfing and playing strings well my left ear is surely going to be whacked out one day anyhow!! There's always a lot of fluid behind my eardrum apparently, maybe getting well overall will also sort this little thing out Ve Vill See Mwahahaaaha! Sending love looking forward to your updates Ariel Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 The following user(s) said Thank You: LondonGirl | |
'In which LG seeks Redemption & makes new friends' 8 years 3 months ago #7795
I wonder if it could relate to this discussion? Maybe he was mostly G3 but also carried a background and undiagnosed G4 infection which took over when the G3 got killed off? fixhepc.com/forum/genotype-4-5-6-1/514-g...4-and-something.html Sorry LG! G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND | |
'In which LG seeks Redemption & makes new friends' 8 years 3 months ago #7805
Hi Sirchinenge I have decided to double up on my treatment because it was over a year ago I had a fibroscan test. I could not get a recent one. The two previous tests were conflicting. I could be a 2 / 3 or even 3/4 i have no clear evidence. The waiting line for fibroscan is many months. I would rather over treat then undertreat, no regrets. Also I read somewhere 1a relapse is possible. Thanks for asking . Geno1a 35years fibrosis 2 or 3 different results from different hospitals ?? 24weeks mesochem sof/led as unsure of fibrosis status. currently UND. No bad side effects Have svr12 ... waiting for svr 24 I now have SVR 36 weeks. The following user(s) said Thank You: LondonGirl | |
'In which LG seeks Redemption & makes new friends' 8 years 3 months ago #7807
| Ariel I have completely forgotten what I was going to say All good here, although right at this time I am cream-crackered ! Mornings are awesome - Big GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC The following user(s) said Thank You: Ariel |
'In which LG seeks Redemption & makes new friends' 8 years 3 months ago #7808
| Poodle - I have the same Fibroscan giant question mark . It's annoying isn't it. How are your latest bloods? GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC The following user(s) said Thank You: poodle |
'In which LG seeks Redemption & makes new friends' 8 years 3 months ago #7834
Hi LG, how is it going? Will you be getting a fibroscan soon do you think? Geno 1a, F1, tx naive, had it 35 yrs. Started Cipla HepcvirL on 12/01/16 Starting VL 490,000 At 16 days in <15 4 week results: UND 8 week results: UND 5 weeks EOT alt 25 SVR 15 - Not Detected 6 months EOT - Not Detected | |
'In which LG seeks Redemption & makes new friends' 8 years 3 months ago #7881
| Morning Debs I hope I will be offered another fibroscan - Will ask at appropriate time. Now I am starting to think about booking 2 week bloods , hope I can get those, curious! Good to hear you're doing well so pleased for you and read how supportive your NHS nurse is - fantastic ! Sides are totally manageable - just horribly tired in the evenings,& v brain-fogedv! but xx GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC |
'In which LG seeks Redemption & makes new friends' 8 years 3 months ago #7883
You Tx newbies are so cute. Look at ya all in a dither. PS what does the duck mean? And where's my ranting banana? I've been trying to think of something to get cross about just so I could use the ranting banana but it's not there. Huon Valley, Tasmania Hep C+ since 1980s Genotype 1b F3/4 VL 480,000 Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015 UND at 4 weeks Finished treatment 19 November 2015 12 February 2016 UND SVR12 | |
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