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Afraid to take the meds due to severe anxiety 8 years 2 months ago #10571
Hi Hope, There's plenty of those "against generics" doctors around! Know the feeling. Glad you're starting tx, it really works. Good luck from another Ozzy. xo J the young dragon slayer is: HepC 1a since birth Male aged 15 VL 2000000 Started Twinvir/ 10-11-15-then Sof/led. NO sides so far ! after one week VL : 37 after 4 wks VL : UND ! EOT 2/2/16 UND.! 4 wks. post tx results....pending.... 7/3/16 VL result : 4 week post tx: SVR ! 12 weeks SVR ! 24 wks SVR yeeaa!! The following user(s) said Thank You: Hope | |
Afraid to take the meds due to severe anxiety 8 years 2 months ago #11300
Hi guys/girls, I'm starting on Tuesday Talked to dr.James and it helped a lot. Thank you for the suggestion I have one question for anybody that also had panic attacks and anxiety issues: did you stop drinking coffee? I stopped it 2 yearsago because it made me go crazy (until then I was drinking it like crazy Last time I took diapazem was 2 months ago when I bought a new coffee machine and drank coffe with only 1 percent caffeine in it and it made me half way to hell So, my question would be this: this buzzy, speedy feeling that some of you talked about, does it compare to drinking lots of cofee? Just so I'm prepaired thanks for your answers! GEN3 for 20+ years November 2015: Bilirubin 6, AST 0,88, ALT 1,74, gamaGT 0,17, HCV RNA 43800 (previous 478000) Fibroscan form 4,3 do 6,9 (measuring twice a year) Started Sof/Dac on 23.2.2016 Week 4: S-Bilirubin: 12, S-Bilirubin dir: 4, AST: 0,30, ALT: 0,36, Gama GT: 0,17, Fibroscan: 4,4, still HCV RNA positive (no VL measured) Week 8: S-Bilirubin: 8, S-Bilirubin dir: 3, AST: 0,39, ALT: 0,39, GamaGT: 0,14, UND 16.5. EOT, everything like it's supposed to be 6 month after EOT still UND The following user(s) said Thank You: Wayne | |
Afraid to take the meds due to severe anxiety 8 years 2 months ago #11301
Hi Hope. I spoke to you before I'm the one that worries about worrying like you and myself and many others on here we have the same issues with anxiety as you do it seems to be a symptom of the virus the racy feeling I think is maybe just our anxiety acting up a bit the good thing though the anxiety is getting better with treatment you will be fine and you have this site to support you eg I had a bad night about 10 days ago search this website eg. side effects etc the answers were here as other people were explaining symptoms that I was feeling plus Dr Freeman rang me and put my mind at ease . All the answers are here well most plus if your feeling weird come on here you will be supported. Good Luck with tx Genotype 1b 42 years. 2007 48 Weeks Interferon + Ribavirin Relapsed. 2015 6 Weeks same as above + Sempivir Too many sides stopped. 7/11/15 started Sof / Dac + Riba 24 Weeks. Kingswood Pharmacy. VL Before tx 3 million. 1st bloods 8 weeks undetected . | |
Afraid to take the meds due to severe anxiety 8 years 2 months ago #11304
As for coffee I love it Moccona of course and the odd Latte coffee is supposed to be good for your liver enzymes. Genotype 1b 42 years. 2007 48 Weeks Interferon + Ribavirin Relapsed. 2015 6 Weeks same as above + Sempivir Too many sides stopped. 7/11/15 started Sof / Dac + Riba 24 Weeks. Kingswood Pharmacy. VL Before tx 3 million. 1st bloods 8 weeks undetected . | |
Afraid to take the meds due to severe anxiety 8 years 2 months ago #11305
Hope....Like your name...trust it. Your name will become a reality. Glad you have settled on a date. Goals and deadlines gets one's ass in gear. That's what I did. I had possession of my meds 2 and 3 weeks prior to finally eating them. I must say it was underwhelming.....nothing, nada, zilch. Bear in mind though YMMV. Regarding coffee....I drank a 6 cups per day before tx and now maybe 4 cups probably because of the meds, I think. I believe it is part physical and part psychological. Because of your anxiety and if want to still drink coffee, start slowly...no coffee, 1/4 cup, 1/2 cup, etc and see what happens. Regarding benzos....have some handy for emergencies if needed. Maybe the hot coffee melted your diazepam quickly and somehow you had an adverse reaction. Benzos are supposed to calm you down. From my experience so far, these new Hep C meds are very powerful. For me, they mask the effectiveness somewhat of other meds that I am taking. Lots of people here have already given you some good sound advise. You are the captain of your own ship. Make informed decisions and you will be fine. Good luck....e.
contracted Gen 1a in the 70's, dx in 2007...ast 27 to 35...alt 43 to 96...vl 1.2 mil to 8.6 mil. biopsy F-2 (2012)..pre tx results 1/23/16 ast 32, alt 46, vl 3.1 mil tx started 2/11/16.... lab results 2/24/16 ast 18, alt 18, vl <15 IU/ml 28 days later.............lab results 3/9/16 ast 21, alt 21, vl UND 56 days later.............lab results 4/6/16 ast 20, alt 22, vl UND 139 days later...........lab results 6/29/16 ast 28, alt 30, vl UND...EOT SVR24 | |
Afraid to take the meds due to severe anxiety 8 years 2 months ago #11306
Well my question was about the relation of anxiety/panic attacks with coffee consumption (if anyone stopped drinking coffee for example becuase of that) And if the first days on TX, when some of you reported racing heart/speedy feeling, feels like drinking too much coffee? Otherwise I'm aware of potencial good sides of drinking coffee for liver - but in my case it's not gonna be possible anymore I guess GEN3 for 20+ years November 2015: Bilirubin 6, AST 0,88, ALT 1,74, gamaGT 0,17, HCV RNA 43800 (previous 478000) Fibroscan form 4,3 do 6,9 (measuring twice a year) Started Sof/Dac on 23.2.2016 Week 4: S-Bilirubin: 12, S-Bilirubin dir: 4, AST: 0,30, ALT: 0,36, Gama GT: 0,17, Fibroscan: 4,4, still HCV RNA positive (no VL measured) Week 8: S-Bilirubin: 8, S-Bilirubin dir: 3, AST: 0,39, ALT: 0,39, GamaGT: 0,14, UND 16.5. EOT, everything like it's supposed to be 6 month after EOT still UND | |
Afraid to take the meds due to severe anxiety 8 years 2 months ago #11308
Hi Hope if coffee doesn't agree with you leave it until you are better, most common side effect seems to be insomnia so something to get you off to sleep might be of benefit my Doc has prescribed me Tempazam maybe something you can talk over with your Doc. Genotype 1b 42 years. 2007 48 Weeks Interferon + Ribavirin Relapsed. 2015 6 Weeks same as above + Sempivir Too many sides stopped. 7/11/15 started Sof / Dac + Riba 24 Weeks. Kingswood Pharmacy. VL Before tx 3 million. 1st bloods 8 weeks undetected . | |
Afraid to take the meds due to severe anxiety 8 years 2 months ago #11310
HCV 35 yrs G1a F3 Tx naive started Lesovir-C 15/12/2015 pre tx: VL 5,250,000 ALT 374 AST 208 FIBROSCORE 10.4 4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL 8 weeks tx ALT 29/ AST 34. VL UND 4 weeks after tx UND. SVR4. ALT 24/AST 18 | |
Afraid to take the meds due to severe anxiety 8 years 2 months ago #11311
About the buzziness feeling like too much coffee. I didn't feel that. Too much coffee makes me feel like s.... The buzzy feeling from the meds was more pleasant than unpleasant for me. It stopped about 6 weeks in when i caught a cold. HCV 35 yrs G1a F3 Tx naive started Lesovir-C 15/12/2015 pre tx: VL 5,250,000 ALT 374 AST 208 FIBROSCORE 10.4 4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL 8 weeks tx ALT 29/ AST 34. VL UND 4 weeks after tx UND. SVR4. ALT 24/AST 18 The following user(s) said Thank You: Hope | |
Afraid to take the meds due to severe anxiety 8 years 2 months ago #11318
Hi Hope, I enjoy my coffee but I know that too many can make me feel 'jittery' which isn't so good. For me the high from the meds wasn't like that, it was more of a 'glad to be alive' spring day type thing. That sort of crisp, fresh, sunny feeling you get on those days. Everyone seems a bit different but I haven't seen anyone complaining about the effect making them anxious and many people who did suffer from that previously seem to find relief through treatment. G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND | |
Afraid to take the meds due to severe anxiety 8 years 2 months ago #11542
Hey guys and girls, just wanted you to know that I started TODAY so 2 tablets down, 166 to go! feelings: - totally stoned at first from diapazem wich I took 2 hours prior as Dr.Freeman suggested - strange otherwise - half an hour very strange, half an hour ok This is for the first 5 hours on TX, hope I will not feel I need to update this every 5 hours hehe well...one step at the time! GEN3 for 20+ years November 2015: Bilirubin 6, AST 0,88, ALT 1,74, gamaGT 0,17, HCV RNA 43800 (previous 478000) Fibroscan form 4,3 do 6,9 (measuring twice a year) Started Sof/Dac on 23.2.2016 Week 4: S-Bilirubin: 12, S-Bilirubin dir: 4, AST: 0,30, ALT: 0,36, Gama GT: 0,17, Fibroscan: 4,4, still HCV RNA positive (no VL measured) Week 8: S-Bilirubin: 8, S-Bilirubin dir: 3, AST: 0,39, ALT: 0,39, GamaGT: 0,14, UND 16.5. EOT, everything like it's supposed to be 6 month after EOT still UND | |
Afraid to take the meds due to severe anxiety 8 years 2 months ago #11543
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Me too, really enjoyed the 'Harvoni High' for the first 4 weeks until I caught something which turned into a chest infection / sinusitis. Not been 'right' since - hoping under that sinusisits, there's a new me waiting to break out ! GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC |
Afraid to take the meds due to severe anxiety 8 years 2 months ago #11544
| Well done Hope Give it a couple of days and everything should settle down for you. My very best wishes for a successful treatment. GT1a Dec14 F2/8.7 VL 900000-2.5M Jan16 Hepcivir-L MonkMed/Redemption Baseline: VL 913575 Alt 76 Platelets low Wk2 VL1157 Alt 23 DET Wk 8 VL 32 Alt19 'In the slow lane' June16 Fibro 5.7 F0/1 LIF 1.5 Wk 11 VL<12 Alt 13 Det/Unq Extending tx 12 wks Mylan Sofo/Dac MonkMed Wk 14 VL <12 Det/Unq Wk 16 VL UNDETECTED Wk 22 + 4 Wks Sunprevir FixHepC Wk 24 UNDETECTED Alt 13 Wk 12 post tx SVR12 Wk 26 SVR24 Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC |
Afraid to take the meds due to severe anxiety 8 years 2 months ago #11563
Good to hear you've started Hope! G3a since '78 - Dx '12 - F4 (2xHCC) 24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND The following user(s) said Thank You: Hope | |
Afraid to take the meds due to severe anxiety 8 years 2 months ago #11725
Update: first day of tx went ok with Diazapem. Second one, without Diazapem, wasn't walk in the park. Extreme anxiety some 5 hours after I took Sof/Dac. Almost a panic attack. Somehow me and my friend who's staying with me handled it without taking benzos. Third day: no way to cope without benzos. Even with them it's hard. All 3 days were ok sleepingwise and no headache, drank plenty of water. Is it getting any better after some time? How was first days for you? And another question, is sesame an cyp3a4 inhibitor also? Searched for it and kinda got lost, can't really spend much time behind the computer. Not in a good shape at all GEN3 for 20+ years November 2015: Bilirubin 6, AST 0,88, ALT 1,74, gamaGT 0,17, HCV RNA 43800 (previous 478000) Fibroscan form 4,3 do 6,9 (measuring twice a year) Started Sof/Dac on 23.2.2016 Week 4: S-Bilirubin: 12, S-Bilirubin dir: 4, AST: 0,30, ALT: 0,36, Gama GT: 0,17, Fibroscan: 4,4, still HCV RNA positive (no VL measured) Week 8: S-Bilirubin: 8, S-Bilirubin dir: 3, AST: 0,39, ALT: 0,39, GamaGT: 0,14, UND 16.5. EOT, everything like it's supposed to be 6 month after EOT still UND | |
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