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Afraid to take the meds due to severe anxiety 6 years 7 months ago #11728

That's a BIG step!!
You have got this!
You have taken the first step. Your journey will be over before you know it.
My advice is to follow Dr. James advice. There's no better.
Mike
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G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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Last edit: by mgalbrai.

Afraid to take the meds due to severe anxiety 6 years 7 months ago #11740

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Hi Hope
I think if you can possibly stick to your plan, the days will improve for you. I found that drinking water and weak green tea was really helpful to me and hopefully you can find the time to rest whenever you can or when needed. I find that reading, especially a book with a compelling story Is calming and absorbing. Have confidence that your meds are working and clearing the virus #flower
Sorry but I don't know about sesame being an inhibitor.
I believe that your days days will improve and your confidence will grow. I hope your day will be a better day :+1:
gt 1a VL 6m
F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
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Last edit: by pat1.

Afraid to take the meds due to severe anxiety 6 years 7 months ago #11756

So sorry that you're suffering Hope - I'm sure things will improve , you are right at the beginning and will come to realise these meds are making you better :)

I guess you know about breathe in through your nose and slowly out through your mouth? I helps take the edge off it if you can focus on the slow breathing. Lavender oil is very relaxing too, sprinkle about the place or burn in an oil burner. I know these aren't the perfect answer, but they may help you to relax a little.

I'm not sure re sesame either, maybe someone else will know.

We're all here to support you however we can #love #flower
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

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Afraid to take the meds due to severe anxiety 6 years 7 months ago #11757

It seems like sesame is possibly a cyp3a4 inhibitor...you get quite a few results claiming that on google regarding sesamin which is the extract.
Breathing is the most important thing for anxiety. Deep slow stomach breathing and relaxation techniques are the best way to reduce it.
F49HepC25ysGT1a
"mild"
Harvoni 12 wks
Brisbane, Australia
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Afraid to take the meds due to severe anxiety 6 years 7 months ago #11760

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I'm really not sure I can go through with it...
GEN3 for 20+ years
November 2015: Bilirubin 6, AST 0,88, ALT 1,74, gamaGT 0,17, HCV RNA 43800 (previous 478000)
Fibroscan form 4,3 do 6,9 (measuring twice a year)
Started Sof/Dac on 23.2.2016
Week 4: S-Bilirubin: 12, S-Bilirubin dir: 4, AST: 0,30, ALT: 0,36, Gama GT: 0,17, Fibroscan: 4,4, still HCV RNA positive (no VL measured)
Week 8: S-Bilirubin: 8, S-Bilirubin dir: 3, AST: 0,39, ALT: 0,39, GamaGT: 0,14, UND :)
16.5. EOT, everything like it's supposed to be :)
6 month after EOT still UND :)

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Afraid to take the meds due to severe anxiety 6 years 7 months ago #11762

Don't over think it. Just focus on relaxing and being in the moment. The future will take care of itself..it always does, and usually much more positively than we expect.
F49HepC25ysGT1a
"mild"
Harvoni 12 wks
Brisbane, Australia
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Afraid to take the meds due to severe anxiety 6 years 7 months ago #11768

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Hi Hope, glad to hear you have started Tx. Really sorry to hear your anxiety is weighing heavily.
From my experience, I have suffered constant general anxiety for decades, add to that severe Panic attacks and PTSD. I only drink coffee in the morning as it makes me too agitated and can't sleep if I drink later. I have only used valium as a last resort - insomnia, panic attacks, muscle spasms/sciatica; so not daily.
I use breathing, aromatherapy and other alternative therapies.

When I started Tx, about an hour after taking my Magic Pills I would feel 'great', energetic and less pain than normal, so very motivated and doing heaps. Not an anxious or agitated 'energy' as others have said, it's more of a pleasant 'high' not a drug 'rush high'.

The most remarkable thing for me is that my usual daily low grade anxiety and agitation that would normally build as the day went on until evenings when I would be very 'stressed' - actually disappeared! I thought ceasing alcohol would be a struggle as I tended to use this to 'calm' myself at night but no desire at all, with no high anxiety there's no compulsion to self-medicate.

I really hope you give this a go and for your sake it would be awesome for you to experience a reduction/cessation of your high level anxiety.

Wishing you all the best Hope, hang in there :) #love
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H
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Afraid to take the meds due to severe anxiety 6 years 7 months ago #11770

Hi Hope!

I understand about panic attacks. I am a very anxious person.

But you need to continue with treatment! This is a serious illness that you can eliminate with this cure in your hands!

Can you stop the sesame during treatment? Just give it up if it could be a problem.

Take the Diazapam if it helps you. Try and focus on the physical side effects. If you physically feel well, that is the most important thing. BE STRONG HOPE! I know you can do it! This is about getting healthy! You need to get rid of this disease.

Feel free to PM me anytime
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs VL UND, AST 27, ALT 20
EOT labs VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24 , VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
SVR 230, VL UND, 10/3/20

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Last edit: by Greedfighter.

Afraid to take the meds due to severe anxiety 6 years 7 months ago #11771

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Hi Hope,

Good on you for taking the first step and starting tx. With the coffee I used to drink it but stopped a few years ago because I would get that anxious restless agitated feeling. That was usually from having one too many but I find it easier just not to bother with it at all. The feeling I felt from tx in the first week or so was different though, it was more of an elevated feeling. I think it was a natural high from feeling so excited about finally being on tx and possibly an effect of adjusting to being on the medication.

I found that the first 2-3 days were the only days I felt a bit foggy in the head, sort of cloudy stoned feeling. But it wasn't a bad feeling and I'd read that for most people this had subsided after a few days so I tried not to worry about it and just wait it out. The next few days I felt much clearer and had the high, elevated, energetic feeling. After the first week I felt back to normal and since then I haven't really noticed anything significant at all. The only thing worth mentioning is I feel more energetic in general, don't have that constant sluggish, tired feeling I used to.

I don't really think about the treatment much now, just take the tabs each night, go to work, run around doing all the normal things I have on. Just try to keep busy. It's pretty much been that way through my whole treatment. I felt a little drop in mood after receiving a detected reading at 4 weeks, but by 6 weeks I received an undetected result so my mood lifted again after that. I think my mind has played more of a factor in how I've felt than the actual medicine and that would be the same for me whether I was on tx or not, depending on the things going on in my life. Now, with 8 pills to go, I just feel so free and keen to get involved with things I'd normally hold back from. I just want to get the most I can out of this life and I finally feel like I can do that.

I hope you start to pick up after the first few days, I'm confident that you will. Try to think of the positives and remind yourself that this is worth it, you have so much to benefit from following through with this tx! It is a very short tx and you will be out the other end in no time! Maybe once you have passed the initial part you could try to focus on distracting yourself and keeping busy with other things. Hang in there.

Jaz #flower
3a F0 TX Naive
Started Tx 12/12/2015 Kingswood Sof/Dac

Pre Tx - ALT 71 AST 40 V/L 9 million
Day 11 - ALT 12 AST 15
4 week - LFTs normal - detected (same sample sent for v/l showed undetected) :/
6 week - UND
12 week EOT - UND
SVR4
SVR12
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Last edit: by Jaz.

Afraid to take the meds due to severe anxiety 6 years 7 months ago #11852

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Seems so weird that some of us have absolutely nothing to report regarding discernible side effects and others of us seem to be going through hell. I mean I literally get a hair stomach achey from some antibiotics, yet nothing from sofosbuvir and daclatasvir. If I didn't know I had been taking them, I wouldn't have known I was taking them (like that guy in North Carolina told me, "I never met nobody before that I didn't already know").

I wonder what it is that causes such diverse reactions in us? It seems these are all over the map with our admittedly small (so far) size sample, but still, all over the map. hmmmmmm....oh well, UND is a good result whether you get there on the easy road or the back way on the bad road down the bad side of the mountain.
GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
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Last edit: by 2b.

Afraid to take the meds due to severe anxiety 6 years 7 months ago #11863

Yes, It is hard to understand. I sailed through as well. I really was worried that I was just mixing some lactose from China. I just knew I should be feeling something unpleasant for it to actually be a powerful medicine,
M
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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Last edit: by mgalbrai.

Afraid to take the meds due to severe anxiety 6 years 7 months ago #11911

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Exactly!! I have always grown accustomed to something making you suffer or hurt in order to get better, from getting a shot, to getting your broken bone set, or whatever...theres usually supposed to be pain and suffering involved. If those tests hadn't said what they said, I wouldn't have thought it was all real.

This was like nothing, I never even had a stomach ache. I'm sorry for the people who aren't having it that easy, the diversity of the reactions, even among those who had similar conditions to start just seems wild.
GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"
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Afraid to take the meds due to severe anxiety 6 years 7 months ago #11996

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Hello all, updating my status is in order!

It's day 6 and I got rid of the anxiety episodes (at least for now). Didn't need Diapazem for last two days and that makes me very happy 'cause the last thing I need is another addiction to kick off.

I was ok for one whole day and now anxiety is replaced by a neverending frustrating headache. Yeeeeey!

So I guess I'll be the one, unfortunate enough with all the beautifull side affects. Well, only 78 days to go. Heh.

Thanks for all your help here.

BTW watched Dallas Buyers Club yesterday - funny to see this movie while on tx :)
GEN3 for 20+ years
November 2015: Bilirubin 6, AST 0,88, ALT 1,74, gamaGT 0,17, HCV RNA 43800 (previous 478000)
Fibroscan form 4,3 do 6,9 (measuring twice a year)
Started Sof/Dac on 23.2.2016
Week 4: S-Bilirubin: 12, S-Bilirubin dir: 4, AST: 0,30, ALT: 0,36, Gama GT: 0,17, Fibroscan: 4,4, still HCV RNA positive (no VL measured)
Week 8: S-Bilirubin: 8, S-Bilirubin dir: 3, AST: 0,39, ALT: 0,39, GamaGT: 0,14, UND :)
16.5. EOT, everything like it's supposed to be :)
6 month after EOT still UND :)
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Afraid to take the meds due to severe anxiety 6 years 7 months ago #12001

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Hi Hope, great to hear things have settled down. Not needing the diapazem at the moment is a good sign. :+1:
For the headache, many of us on Dac find that drinking lots of water helps give at least some relief. Looking forward to hearing how you progress through treatment. :)
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:

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Afraid to take the meds due to severe anxiety 6 years 7 months ago #12008

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Hey Gaj, I'm drinking so much water that I can imagine some frogs already inhabited my body :)
Naproxen did the trick for now although I really hate to ingest so much pills :/
GEN3 for 20+ years
November 2015: Bilirubin 6, AST 0,88, ALT 1,74, gamaGT 0,17, HCV RNA 43800 (previous 478000)
Fibroscan form 4,3 do 6,9 (measuring twice a year)
Started Sof/Dac on 23.2.2016
Week 4: S-Bilirubin: 12, S-Bilirubin dir: 4, AST: 0,30, ALT: 0,36, Gama GT: 0,17, Fibroscan: 4,4, still HCV RNA positive (no VL measured)
Week 8: S-Bilirubin: 8, S-Bilirubin dir: 3, AST: 0,39, ALT: 0,39, GamaGT: 0,14, UND :)
16.5. EOT, everything like it's supposed to be :)
6 month after EOT still UND :)
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