Hi guys, My last consultant told me there was no treatmet until June earliest for me, but he also said they were 'no longer treating GT1s with Interferon' so no offer of the triple either (not that I wanted it!) . They are setting up a whole new system, which sounds like it will be good once in motion, but what happens in the meantime, you know? no mention of fibro limits or anything like that, I was just told that there was no treatment for me until then at all, full stop?
I think the situation is variable from hospital to hospital. He also stated 'the nurses will be doing everything and you won't be seeing a consultant'. It's an excellent hospital and I can see them doing good things in the future, but that's no good for individuals who are waiting for this to begin, you know?
So, I advise sound out your own hospital protocol, GP etc and seek out the good Drs who believe appropriate duty of care is needed when you've made an adult, informed choice and there is supply chain integrity, even if they can't condone it - Also offer evidence & info for your informed choice as Jolie, Debs and I have done, plus Dr F's GP Cheat Sheet I also feel you may want to seek out the consultants who don't have 'conflicts of interests' ' ......
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC