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G1a relapse 7 years 9 months ago #20037
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Hi Coral, I am very sorry for such news, however think positive and have hope ! You made an interesting remark about feeling that the virus is back, it does confirm what dr. Freeman says in this video at 4min18sec: Cheers, RHF In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”. HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic. By sharing this Youtube video you might save someone’s life! My TX: HEPCVIR-L[generic Harvoni]-India SVR52 achieved |
G1a relapse 7 years 9 months ago #20044
To Coral split Sabre Gaj Paul And anyone else in this spot just now. I send you empathy xxxx Gen 1a Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 The following user(s) said Thank You: LondonGirl, coral, mgalbrai, sabrecat, Gaj, CC2B, Matt-Kenney-google, Meg, fitz | |
G1a relapse 7 years 9 months ago #20050
Is it normal to feel stressed coming up to 12 weeks post EOT? Every little twinge, cramp, night time waking is getting me thinking maybe it hasn't worked. No point getting tested now as it wouldn't impact any treatment decisions. I know a Yoga sequence for emotional stability, I'll just practice it often. Genotype 1a Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby | |
G1a relapse 7 years 9 months ago #20053
Normal. My anxiety stops a bit after svr12 | |
G1a relapse 7 years 9 months ago #20059
Probably, I had my 4 week EOT labs today. Still work full time and started to get tired as usual in early afternoon....... pre and post HCV meds intake status and got a little apprehensive. How we deal with stress is an individual decision. There are many articles and opinions on the subject. What will happen will happen. One is in charge of one's health. IMO, someone else or a nonexistent higher power is not the answer. You and you alone are in charge on what happens. If things turn south, sleep on it overnight, gather your thoughts and be rational with any future decisions that are made. Coral....as others have said the odds of conquering this is way in your favor. Good luck...e. contracted Gen 1a in the 70's, dx in 2007...ast 27 to 35...alt 43 to 96...vl 1.2 mil to 8.6 mil. biopsy F-2 (2012)..pre tx results 1/23/16 ast 32, alt 46, vl 3.1 mil tx started 2/11/16.... lab results 2/24/16 ast 18, alt 18, vl <15 IU/ml 28 days later.............lab results 3/9/16 ast 21, alt 21, vl UND 56 days later.............lab results 4/6/16 ast 20, alt 22, vl UND 139 days later...........lab results 6/29/16 ast 28, alt 30, vl UND...EOT SVR24 | |
G1a relapse 7 years 9 months ago #20061
Don't worry, I'm freaking out as well. I know exactly how you feel. Sorry you have to go through this Coral. Thank goodness we all have knowledge of and access to this place and the new generics! genotype 1a viral load 160,000 age 29, F0, treatment naive, il28bcc unable to function due to chronic fatigue, joint/muscle pain, low immune system, depression, anxiety, skin issues, brain fog (etc) : ( 12 weeks daclatasvir/sofosbuvir started 11 march 2016 through pbs week 4 - alt 12 week 12 - viral load undetected svr12 - NOT DETECTED! | |
G1a relapse 7 years 9 months ago #20062
Very sorry to hear of this Coral, i haven't been on much, just been busy working to get the money to feed the machine, but checking back in, saw this, and I wish you all the best when you take on this beast again. Hoping that even the little break you got from it helped some...go get em, lots of people here all pulling for you! GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!" | |
G1a relapse 7 years 9 months ago #20068
Hi Peach and Beaches, I think anxiety is another element of the whole treatment plan! Hang in there - the odds really are well in your favour. G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!) Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 | |
G1a relapse 7 years 9 months ago #20069
Hi 2b - really good to hear from you. Bummer huh?? I won't pretend I'm not pissed off but I count myself lucky that I have some good options in the pipeline. I hope everything is going well for you over there. Interesting times! G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!) Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 The following user(s) said Thank You: fitz | |
G1a relapse 7 years 9 months ago #20070
Thanks re_roll. I totally agree about taking charge of our own health outcomes. It's amazing what people have achieved by doing that. Good luck with your latest blood test. G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!) Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 | |
G1a relapse 7 years 9 months ago #20071
Hi RHF, Thanks for your thoughts and for reposting the video. I'm always happy to watch anything starring Dr Freeman! You're right that he mentioned my experience exactly i.e if it comes back you will know because you will feel like you did before treatment to some degree. G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!) Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 | |
G1a relapse 7 years 9 months ago #20072
Thanks Coral, and apologies for hijacking your post, I didn't mean to be insensitive Genotype 1a Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby | |
G1a relapse 7 years 9 months ago #20100
Hi Coral, so sorry about your recent lab results. Hope you are feeling okay. The newer treatment options should be available soon. I am also Gt1a, and will complete 24 weeks of sol/led as unsure of fibrosis status. I am worried, but cannot predict anything, just have to wait. Thanks for sharing your results...Wishing you best of luck with the next tx. HCV since 35-40yrs., GT 1a , Dx 2004; VL 4-5 mil, F2-3 Tx sof/led started 3/4/16 4wks VL <15 9 weeks VL UND, ; Alt-15,Ast-13 16 weeks VL UND Alt-20, Ast-22; EOT 24 wks UND SVR 4 UND SVR 12 UND, Alt.15, Ast. 17 SVR 24 UND The following user(s) said Thank You: Matt-Kenney-google, fitz | |
G1a relapse 7 years 9 months ago #20106
Hi Coral, Sorry to hear about this Seems like you have the right mindset to take down these buggers with your next tx And thankfully there are more options available soon Also thankfully you/we have this place and the Amazing Dr Freeman GT2b diagnosed 10/2015 since: unknown 11/20/15 VL= 214,070 12/4/15 ALT=18 AST= 24 1/16/16 started sof/dac 2/13/16 @4wks VL=UND ALT=13 AST=22 3/12/16 @8wks VL=UND ALT=10 AST=18 4/9/16 EOT VL=UND ALT=11 AST=19 9/23/16 SVR24 ALT=11 AST=22 | |
G1a relapse 7 years 9 months ago #20150
Oh my goodness Beaches - no apologies required. We're all in this big messy adventure together. G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!) Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back! New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217. SVR12 and SVR 24 The following user(s) said Thank You: Matt-Kenney-google | |