Hi All hope everyone is good.
I am feeling Down atm as I was going really well and then early March felt something wasnt right so talked with my Nurse at SCGH and they arranged for a MRI and they filled out ALL forms Twice for Pats and I did same here at Hospital. But PATS rejected it on the both occasions even though they sent forms to SCGH to be filled out. They arranged for a Scan done here locally and all clear but I felt there was spmething wrong again . So I went down by myself and paid $700 for MRI and $900 flights plus $ 500 accom food on top. It came back positive as Cancer had returned but SCGH said Nothing serious as it is from the Original one and got it Early and booked me in for 3 weeks time, Got it done and have struggled a lot since then but finally getting better BUT.
Now about 4 weeks ago I was feeling stuffed but got up to get drink water and crashed through the Wall as Body was going one way and Legs the other and Son grabbed me but we both went down again and I lost all Use of legs. He got help and they carried me to van and took me to Hospital, I only remember bits of it up to now and Only other thing I remember is the Tirage Nurse and another Staring into my face and I have all this crap iv stuff etc and asking stupid questions. Anyway I Lost it and I do Remember this part as I thought the Tirage Nurse was same one when they told me that No Free trips to Perth for Xmas Shopping and my Tumor grew from 24 mm to 48mm by the time they operated in Perth, Well I did the wrong thing again and absolutely let her have it and told them to shove the hospital etc etc and ripped out the IV and blood went everywhere but i took my shirt off and wrapped it up in that then all blank after that and woke up in bed at home.
I have been ok since most of the time then last wed night I was so so tired but every time I started to nod off it was like electric shocks going through my head shoulder areas, it was funny at first but after 3 hours I was pissed off but eventually nodded off. Next Afternoon I started getting Violent Nerve reactions all over body shaking violently and the strange thing it wasnt really Painful but I couldnt control it and it continued for about 10 hours with me screaming at times but not from pain just frustration. I must admit it has me a bit worried and been tying to search it on net but I thought it best to ask it here as someone may be able to relate to this wiered thing,. Today legs are very weak but feeling ok averall. The worst thing is my Nurse that has helped me through is on Maternity leave and now I have left messages on 6 times and No one calls back.
Yeah I could go and ask here but I went in 3 weeks ago and I had Infection in Mouth Face area with One eye Closed and side of face all Puffed up and they couldnt fit me in even though I went there first thing morning.
Best to all Barry
ps I know I did wrong but I need advice on Nervous system Problem not my Angry Pigheaded Crap Attitude. Too late to change.
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry Ashton
Barry Ashton