you said it! I too have had to go from Dr. to Dr. "trying" to get the medical help and "support" I need and it's exhausting. I have had to educate my current GP; she is a lovely, caring lady, BUT, doesn't know much about Hep C and all the health issues it causes or exacerbates. If I hadn't educated myself I would still be going from "pillar to post".
It's a constant battle to get side issues from Hep C, diagnosed and treated.
An example is; my tongue has been bleeding for 7 months, there are a few tiny lumps where it bleeds from, (bright red fresh blood, about a teaspoon or two at a time), and it can bleed 6 times a day or once a day, but it's constant, I've been to my Hep specialist, my GP, Eare Nose and Throat specialist, Oral specialist and I'm now being sent back to E.N.T.
The only thing that has been mentioned so far is Lichenoid, (Liches Planus), by the Oral specialist, but she said it didn't explain the bleeding and left it at that?
All I know about it is, many things cause it, including Hep C and Interferon, and in the mouth it causes white patches on the tongue and inside cheeks.
If anyone has any info on this or why my tongue is bleeding, please fill me in.
This is just one example of the many health issues I have that I cannot get an answer to.
Good luck to all, cheers Oldie
Hep C Geno 1a - diagnosed 1990, Cirrhosis, failed previous tx Peg/infn,Riba, Simeprevir, 2015. Contracted way back in the 70's!...Currently waiting Harvoni via clinic.