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Why I choose to help 7 years 1 month ago #1758

Yeah LG, my new best friend. :)
The following user(s) said Thank You: LondonGirl, fitz

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Why I choose to help 6 years 5 months ago #19054

Hi, I saw your note offering help to fix hep c. I think I may have caught it in 1975, dont really know,have only been diagnosed a year ago with type 3.
To sign up for Dr Freeman's redemption trial requires payment up front. I would love to be rid of it but I'm not sure whether to sign up and the costs.
Thanking you
Geoff
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Why I choose to help 6 years 5 months ago #19055

Hi,
Email This email address is being protected from spambots. You need JavaScript enabled to view it.
Ask your questions there a get the latest info, from costs to treatment options to timeline.
Get well soon!
m
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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Why I choose to help 6 years 5 months ago #19056

Hello Geoff and welcome

If you head up to the top of the page you will see the getting treated tab which will let you know the cost etc when you click on this tab there is also a header that details genotype specific treatment. Depending on the state of your liver +/- cirrhosis will determine the length of time you will need to take medication. I started this process last year in November of which I am coming up to SVR 24 - best thing I ever did and haven't looked back since.

Best wishes
T
SVR 24
The following user(s) said Thank You: LondonGirl, MtGoat, fitz, geoff

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Why I choose to help 6 years 5 months ago #19058

Hi Geoff, Are you in the UK? I can offer first hand experience and advise from here if you are. LG
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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Why I choose to help 6 years 5 months ago #19061

Hi thanks for your reply. Yes I'm in the UK (durham)
Geoff
The following user(s) said Thank You: LondonGirl, fitz

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Why I choose to help 6 years 4 months ago #19079

If you need help with the process etc Please feel free to ask, I have PMd you . LG
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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Why I choose to help 6 years 4 months ago #19085

Hi Geof, the reason why I'm here is because the medication cost far too much in UK, £38k for a treatment which is only given to patients with cirrhosis on NHS, I'm young, fair enough I've done shit choices in my life but I don't think it's right that big pharmas charge the ludicrous eye watering price for life saving/ changing meds. I've just received my medication from the website if you feel like you need me to tell you about my journey so far I'm happy to do so. I haven't started taking my meds yet as tomorrow I'm seeing my specialist
The following user(s) said Thank You: LondonGirl, Gaj, Hazel, fitz, geoff

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Why I choose to help 6 years 4 months ago #19088

Hey Geoff! Welcome
Glad you found this place. Ive been on treatment with Sof/Led (generic Harvoni) for almost 7wks of 12wk prescription. It was truly easy through the Fixhepc Redemtion trials. Cost up front was $1600.00 USD as opposed to $94,000.00 I could never get here in U.S.A.
Generics work the same as branded meds and are saving lives as we speak. Hope you can get started ASAP. Any questions, just ask. Even Dr. Freeman can be reached here, if youre more comfortable with expert advice. :)

Matt
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
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Why I choose to help 6 years 4 months ago #19090

The other problem with the NHS in the UK,. is they won't offer Sofo/Dac for example to GFT 1s. Also, many patients are not getting the correct or recommended length of treatment :ohmy:
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
The following user(s) said Thank You: fitz

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Why I choose to help 6 years 4 months ago #19092

Hey FHCN - What is even worse , or even criminal, is the NHS or the Gvt or the Department of health etc don't seem to want to negotiate a lower price to treat all. There needs to be the will do do this, and I just don't see it. Too many mangers and elites with financial interests in private companies. The UK corrupt? Yes.

I shouldn't say UK actually, Scotland are way ahead with treating patients and the care they offer is much more patient centered. They show absolute dedication to trying to eliminate HepatitsC from Scotland. Good for them.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
The following user(s) said Thank You: Hazel, fitz

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Why I choose to help 6 years 4 months ago #19094

Maybe we need anonymous to teach big pharmas a lesson :P I really can not believe they wouldn't make a profit of they priced it reasonably, at the end of the day it's all about share prices and greed ...
The following user(s) said Thank You: LondonGirl, fitz

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Why I choose to help 6 years 4 months ago #19096

Funny that, we were just talking about anonymous in my house regarding other unsavoury personalities. FHCN !
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
The following user(s) said Thank You: fitz

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Why I choose to help 6 years 4 months ago #19098

Dear London Girl, thanks for your offer to help.It gives me hope. I feel very emotional but am unable to really open up. If I've had hep c for decades, how would that affect me, i have lived with a lot of stress for years and my memory is very bad. I've put it down to other things but now wonder if Hep C has something to do with it.
Geoff
The following user(s) said Thank You: LondonGirl, fitz

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Why I choose to help 6 years 4 months ago #19099

Dear Geoff,

I understand, I was just like that before I had treatment, which wasn't that long ago.

Little steps.

You know where I am.

LG
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
The following user(s) said Thank You: fitz

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