Oh, while we are on this subject.
In the 3000 odd patients there have been a handful who have had neurological things during/after treatment.
Facial pain, arm and leg pain. We also see tinnitus (ringing ears) and changes in taste (usually returning and deemed better, but sometimes deemed odd) happen reasonably commonly – low single digit %.
The good news is that my observation is that these issues do seem to resolve over about 6 months.
I had one chap with “all over body tingling” at the beginning of treatment. (There is no medical condition all over body tingling so he falls into the NFI class and you wonder if it’s all in his head). Anyway, the really fascinating thing was how it got better. First in his chest, then down his arms, elbows, wrist, knuckles, fingers until finally the last bit of tingling in his fingertips and toes went away. The significance of that is that it seemed like the nerves were getting better from the cell body (in the spinal cord) down the axons to the terminal sensors.
So Hep C is known to infect nerve cells and we do see nerve-related changes during treatment.
Hang in there. I expect it will settle down given a bit of therapeutic time…
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