Sadly, the current UK government are running down our once great NHS, attacking the hard-working staff and causing many hospitals to go into ‘special measures’ – ie failing. The Ambulance service is at the point of collapse, appointments and operations for serious illness are being cancelled and yes, they are restricting many medicines.

My local hospital is the latest to go into ‘special measures’ – Staff moral is very low, many becoming ill with stress, like many teachers in the state education ststem, illness’ caused by stress.

There is a crisis is social care provision, elderly people blocking hospital beds as no care available in their homes. A & E patients lie in corridors for hours on end untreated, ambulances queue outside as no beds etc etc This Gvt want it to fail, so they have a case for introducing private insurance schemes.

It’s shocking and depressing for many of Her Maj’s subjects. Regression, not progression.

Many of us have known this for some time, the general public are just starting to realise the reality, it’s a badly run system at breaking point. OK if you’re wealthy / young enough to pay something like BUPA.
I hear they’re setting up a charity for the baby-boomers, to help them as they get older, as this age group won’t get insured.

This will affect HepC age bracket in particular.
Sad times.

Personally, I was refused a VL test this week, even though I saved the NHS ££££s in treatment and have not had a test since EOT. The GP surgeries are watching the pennies too. You get a lecture if you ask.

I know someone with cirrhosis who was only given 12 weeks Harvoni, still detected at EOT they told him he would clear and not to worry. The lack of money is one thing, the lies are quite another, this guy just relapsed.

Sad song.

You are right Vororo, to put the name “Independent” in inverted commas. I am alays rather suspicious of any private enterprise calling themselves ‘Independent’. That paper has a few good reporters, but at the latest GE came out last minute for ones chums in the Gvt. I’m not against private companies making money, but at the expense of the healthcare of the people and reaping financial rewards at the expense of sick people, is quite another.

Their report above is for the few, not the many, but sadly doesn’t surprise me.

Ha ha, so I commented on this topic before (the thread was closed) The British Pharmaceutical association pushes the agenda of it’s members (Gilead, etc.) So I guess the fear mongering is to be expected. They want patients to get sick and wait, so they get their big salaries.

Bottom line is big pharma is a business out to maximize profits for big pharma, like any other business. The patient is left to either deal with the system, or take a chance and source their own medication.

There are bootleg versions of Twinvir, etc. being produced, so in one right these concerns are valid. But there are of course many venues to get the genuine generics (through REDEMPTION or Pharma’s market)

Patients need to be smart and deal with legitimate sources to cure themselves. I can give anyone interested a contact for genuine Twinvir (Harvoni generic) that cured me. Less than $1000 USD delivered to your door in USA and many other countries

My profit 0$ Your cure: Priceless

I’m here for the Karma.

hear hear I second this emotion. Well said Pat1 In terms of a so called ‘easy’ tx compared to the old stuff, LG you have had the most hotch potched non support it is sad and bad and makes me mad. Considering that you have extended, had two combos and still are getting messed around I am so glad you honestly blog the ridiculous goings on in the UK so others can be armed for the ride. Although your story isn’t all sugar coated with daisies blooming and unicorns and rainbows illy:' /> it is REAL, and so important people are aware of what they are facing in your part of the globe. I also wish you UND, SVR and your health. We started out together, and I will be here when you cross the finish line my Northern hemisphere buddy.
Sending you happy splashes from Ariel

*edit: “armed for the ride” ***with monkmed/GP2u
I’m responding here to issues with NHS experiences LG had has to overcome

Thank-you Pat & Ariel,

To be fair, my GP has been wonderful this far. It is all about cost and lack of money, as my post above. The NHS are refusing anything at all deemed ”unnecessary’ and GP services are also struggling. When I lost hospital monitoring mid tx, he stood by me, but as soon as some awesome ‘powers that be’ stepped in to help me get monitored at local hospital 3/4 of the way through a 26 week tx, he decided to save money and let the hospital take the cost I guess, trouble is, they only offer VL test 12 weeks post tx

I feel so bad for another UK patient I know of, NHS offered him only 12 weeks and he has cirrhosis, I advised him that he may need a longer tx and to seek medical advise here, but like so many here of a certain age, who have been brought up trusting the NHS , he decided to ignore me & trust his very prominent hospital. At 12 weeks tx, he was still detected & they told him all would be fine (NHS policy based on what they can offer based on finance) and he believed them. He has now relapsed, heart-breaking.
It seems to me, Many English people seem to have trouble thinking outside the box.

btw I took 3 combos, but I’ll continue on my own blog when I have any news my lovelies.
Meanwhile, I feel the
Really, I don’t know how I would have coped emotionally without you guys, MonkMed & Dr F, so here’s some big right back at acha all .
LG