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  • in reply to: Tonights Newsnight UK Feature Meds, Access, Generics #12252
    1folho
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    @1folho

    Hi. I am living in Thailand but can access BBC iPlayer using Zenmate. Free trial version available.

    in reply to: Finish treatment #11999
    1folho
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    @1folho

    Hi. Got my EOT results today.
    ‘Undetected’ as at 04/02/2016
    Still not quite sunk in yet.
    Thank you Dr Freeman

    in reply to: London Girl’s NHS Experiences #6643
    1folho
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    @1folho

    Hi LG.
    Your GP experience is very like my own. When after 3 months, I eventually got a referral to HepC clinic in mid-October, they did blood and viral load tests. Treatment offered included Interferon which I did not want.
    That was it. I saw only a nurse, not a specialist. Told to realistically, expect to wait 3 years to access new DAA’s and given an appointment in March 2016. They would not monitor treatment if I bought my own generic medication.
    Given the choice between waiting and harbouring this virus for any number of years, and curing yourself for £750.00. I did what more and more people in the UK will do.
    I got an appointment with Dr Freeman, obtained my prescription and spoke with Adam at Kingswood Pharmacy who assured me that my meds would be waiting for me when I got to Sydney on 2nd November. They were. A huge big bag of Sof and DAC. I started treatment on 8th Nov and today, after a 2 week wait, I got result of my 4 week liver function and viral load test. ‘Undetected’.
    I wil, I pray, be cured at least 6 weeks before my proposed NHS check-up date.
    It is very do-able. Dr Freeman and Adam are skilled and helpful people.
    It is a very straightforward process which can be achieved, if you have the price of a return ticket to Sydney, within about a week if appointments and flights are available.
    Choose a right time for yourself. Taking control took away the stress of dealing with GP’s and waiting, and getting stressed by waiting and charting decline. Give yourself the best possible start to 2016.
    Good luck to all.

    in reply to: 2B’s actual viral load results #6637
    1folho
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    @1folho

    Hi.
    Learned this morning that I have joined the ranks of the ‘undetected’.
    I had to wait for, the longest 14 days I have ever known, to get my good news. But it means I only have 6 weeks to EOT.
    I see that I started 2 days after you 2b.
    Good luck to everyone still waiting for their initial result.

    in reply to: 2B’s actual viral load results #5881
    1folho
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    @1folho

    Congratulations.

    in reply to: 2B HERE #5275
    1folho
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    @1folho

    Hi Klhilde.
    I am using a local Thai clinic here in Chiang Mai. Fortunately for me the doctor speaks very good English and is more knowledgeable about HepC than any UK GP I have met.
    Medical tourism is a significant part of economy in Thailand so not so unorthodox.
    I brought my medication through customs without declaring but had a copy of my prescription from Dr Freeman just in case.

    in reply to: 2B HERE #5247
    1folho
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    @1folho

    Hello all. First post by me.
    Genotype 2.
    Diagnosed 2013.
    Dating from 1974 most probably
    Sof + DAC from 8/11/15

    I travelled from UK to pick up meds in Sydney on 2/11/15. I am now in Thailand and today provided blood for testing at 4 weeks. Unfortunately, due to a spate of public holidays, I will need to wait another 2 weeks for results.
    It has been reassuring to hear peoples different experiences of the treatment. I was becoming concerned at not feeling, “better than I have for years.” I am still up and down but feel I am getting stronger. Sleep has also started to improve. Good luck to you all.

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