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  • in reply to: Hey all. #27111
    40-odd
    • Topics: 1
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    • Total: 5
    • Novice
    @40-odd

    Riiiight, after many phone calls I finally got a call back from the gastro nurse, the nurse who was dealing with me is away and will call when she is back but she did know about my case and said my second test result came back negative lol. So yeah I’m now super confused. :ohmy:


    G1a. Treated unsuccessfully with 8 weeks of harvoni.

    in reply to: Hey all. #27108
    40-odd
    • Topics: 1
    • Replies: 4
    • Total: 5
    • Novice
    @40-odd

    Many thanks. Will get on that tomorrow.


    G1a. Treated unsuccessfully with 8 weeks of harvoni.

    in reply to: Hey all. #27106
    40-odd
    • Topics: 1
    • Replies: 4
    • Total: 5
    • Novice
    @40-odd

    Thanks for the replies everyone. So I should ask for liver function test results and fibrosis scan info and score. Is there anything else I should ask for?


    G1a. Treated unsuccessfully with 8 weeks of harvoni.

    in reply to: Hey all. #27102
    40-odd
    • Topics: 1
    • Replies: 4
    • Total: 5
    • Novice
    @40-odd

    I’ve found the NHS very hit and miss. Had a lot of bad information from the nurse, they are really not up to date on anything and are very unhelpful and generally unenthusiastic about any suggestions or queries I had. I only got the treatment as the original person pulled out for some reason. The nurse had previously laughed when I asked about the new drugs on the market. Not very inspiring lol.
    Whats peoples experience with re-treatment, what is the suggested length of the course and which one would be recommended for best success? I have genotype 1a, liver is in reasonable condition – some mild scaring was the expression the specialist used. Thanks.


    G1a. Treated unsuccessfully with 8 weeks of harvoni.

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