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Viewing 12 posts - 1 through 12 (of 12 total)
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  • abathnot
    • Topics: 2
    • Replies: 12
    • Total: 14
    • Acolyte
    • ★★
    @abathnot

    Voting done. Aren’t we lucky you don’t choose to do gardening in your spare time! You’re one in a million Doc James.


    G2b, F4 cirrhosis (fibroscan 29.5 kPa), no prior treatment. Started sof/dac (from Kingswood) 17 Dec 2015 for 12 weeks. Continued with Sovaldi (via PBS) and dac (from Kingswood) 10 Mar 2016 for further 12 weeks.
    16 Dec 2015 = ALT 84 AST 99 VL 326,914
    19 Jan 2016 = ALT 19 AST 30 VL 22
    16 Feb 2016 = ALT 19 AST 27 UND
    31 May 2016 = ALT 20 AST 29 UND (EOT 24 wks)

    in reply to: DAAs and Liver Cancer Risk #15884
    abathnot
    • Topics: 2
    • Replies: 12
    • Total: 14
    • Acolyte
    • ★★
    @abathnot

    Hi Dr Freeman.
    What simple guideline do you recommended for people who have cirrhosis and have never had an HCC?
    Thanks, Michelle


    G2b, F4 cirrhosis (fibroscan 29.5 kPa), no prior treatment. Started sof/dac (from Kingswood) 17 Dec 2015 for 12 weeks. Continued with Sovaldi (via PBS) and dac (from Kingswood) 10 Mar 2016 for further 12 weeks.
    16 Dec 2015 = ALT 84 AST 99 VL 326,914
    19 Jan 2016 = ALT 19 AST 30 VL 22
    16 Feb 2016 = ALT 19 AST 27 UND
    31 May 2016 = ALT 20 AST 29 UND (EOT 24 wks)

    in reply to: Treatment Duration #14616
    abathnot
    • Topics: 2
    • Replies: 12
    • Total: 14
    • Acolyte
    • ★★
    @abathnot

    Thanks Em and Lynne. I am doing 24 weeks sof/dac and have completed 15 weeks. Am also getting a few more hours sleep. All the best with your results.


    G2b, F4 cirrhosis (fibroscan 29.5 kPa), no prior treatment. Started sof/dac (from Kingswood) 17 Dec 2015 for 12 weeks. Continued with Sovaldi (via PBS) and dac (from Kingswood) 10 Mar 2016 for further 12 weeks.
    16 Dec 2015 = ALT 84 AST 99 VL 326,914
    19 Jan 2016 = ALT 19 AST 30 VL 22
    16 Feb 2016 = ALT 19 AST 27 UND
    31 May 2016 = ALT 20 AST 29 UND (EOT 24 wks)

    in reply to: Treatment Duration #12943
    abathnot
    • Topics: 2
    • Replies: 12
    • Total: 14
    • Acolyte
    • ★★
    @abathnot

    Thanks M for your kind and calming words. Insomnia is causing me the most grief and I don’t think I’m alone with this nasty side effect. I wish you all the best.


    G2b, F4 cirrhosis (fibroscan 29.5 kPa), no prior treatment. Started sof/dac (from Kingswood) 17 Dec 2015 for 12 weeks. Continued with Sovaldi (via PBS) and dac (from Kingswood) 10 Mar 2016 for further 12 weeks.
    16 Dec 2015 = ALT 84 AST 99 VL 326,914
    19 Jan 2016 = ALT 19 AST 30 VL 22
    16 Feb 2016 = ALT 19 AST 27 UND
    31 May 2016 = ALT 20 AST 29 UND (EOT 24 wks)

    in reply to: Treatment Duration #12941
    abathnot
    • Topics: 2
    • Replies: 12
    • Total: 14
    • Acolyte
    • ★★
    @abathnot

    I’ve sent you an email Dr F. Sorry for all the bother but my anxiety level is through the roof at the moment.


    G2b, F4 cirrhosis (fibroscan 29.5 kPa), no prior treatment. Started sof/dac (from Kingswood) 17 Dec 2015 for 12 weeks. Continued with Sovaldi (via PBS) and dac (from Kingswood) 10 Mar 2016 for further 12 weeks.
    16 Dec 2015 = ALT 84 AST 99 VL 326,914
    19 Jan 2016 = ALT 19 AST 30 VL 22
    16 Feb 2016 = ALT 19 AST 27 UND
    31 May 2016 = ALT 20 AST 29 UND (EOT 24 wks)

    in reply to: Treatment Duration #12937
    abathnot
    • Topics: 2
    • Replies: 12
    • Total: 14
    • Acolyte
    • ★★
    @abathnot

    Sorry Dr F but I don’t know your email address


    G2b, F4 cirrhosis (fibroscan 29.5 kPa), no prior treatment. Started sof/dac (from Kingswood) 17 Dec 2015 for 12 weeks. Continued with Sovaldi (via PBS) and dac (from Kingswood) 10 Mar 2016 for further 12 weeks.
    16 Dec 2015 = ALT 84 AST 99 VL 326,914
    19 Jan 2016 = ALT 19 AST 30 VL 22
    16 Feb 2016 = ALT 19 AST 27 UND
    31 May 2016 = ALT 20 AST 29 UND (EOT 24 wks)

    in reply to: Treatment Duration #12925
    abathnot
    • Topics: 2
    • Replies: 12
    • Total: 14
    • Acolyte
    • ★★
    @abathnot

    Thanks again Dr Freeman for all this info. By the way, are you able to write PBS prescriptions or does it need to be done by my specialist? Also, I’ve been trying to make an appointment online with you but can’t do so. Are you not available via GP2U at the moment?


    G2b, F4 cirrhosis (fibroscan 29.5 kPa), no prior treatment. Started sof/dac (from Kingswood) 17 Dec 2015 for 12 weeks. Continued with Sovaldi (via PBS) and dac (from Kingswood) 10 Mar 2016 for further 12 weeks.
    16 Dec 2015 = ALT 84 AST 99 VL 326,914
    19 Jan 2016 = ALT 19 AST 30 VL 22
    16 Feb 2016 = ALT 19 AST 27 UND
    31 May 2016 = ALT 20 AST 29 UND (EOT 24 wks)

    in reply to: Treatment Duration #12910
    abathnot
    • Topics: 2
    • Replies: 12
    • Total: 14
    • Acolyte
    • ★★
    @abathnot

    Thanks Dr Freeman. It appears my specialist has made a huge decision based on a tiny study. That’s very unnerving.
    Thankfully, because of all your work and care and fixhepc, I have the opportunity to decide my treatment path.
    I’ll buy more meds and continue to 24 wks.
    As I am cirrhotic, I hope my specialist will agree to continue monitoring me at the liver clinic even though I’ve gone against his advice.
    Thanks again.


    G2b, F4 cirrhosis (fibroscan 29.5 kPa), no prior treatment. Started sof/dac (from Kingswood) 17 Dec 2015 for 12 weeks. Continued with Sovaldi (via PBS) and dac (from Kingswood) 10 Mar 2016 for further 12 weeks.
    16 Dec 2015 = ALT 84 AST 99 VL 326,914
    19 Jan 2016 = ALT 19 AST 30 VL 22
    16 Feb 2016 = ALT 19 AST 27 UND
    31 May 2016 = ALT 20 AST 29 UND (EOT 24 wks)

    in reply to: Treatment Duration #12894
    abathnot
    • Topics: 2
    • Replies: 12
    • Total: 14
    • Acolyte
    • ★★
    @abathnot

    Thank you 2b and Sirchinenge. Hopefully I can speak to Dr Freeman (my original doc) soon to clarify this. As I was expecting to get the next 12 wks on Aust PBS (Sovaldi) and buy Dac from Kingswood, I hope this is not the reason for changing treatment duration. Makes you wonder – triage?


    G2b, F4 cirrhosis (fibroscan 29.5 kPa), no prior treatment. Started sof/dac (from Kingswood) 17 Dec 2015 for 12 weeks. Continued with Sovaldi (via PBS) and dac (from Kingswood) 10 Mar 2016 for further 12 weeks.
    16 Dec 2015 = ALT 84 AST 99 VL 326,914
    19 Jan 2016 = ALT 19 AST 30 VL 22
    16 Feb 2016 = ALT 19 AST 27 UND
    31 May 2016 = ALT 20 AST 29 UND (EOT 24 wks)

    in reply to: Treatment duration confusion #12850
    abathnot
    • Topics: 2
    • Replies: 12
    • Total: 14
    • Acolyte
    • ★★
    @abathnot

    I usually have dot points to discuss but didn’t this time cause was just expecting to collect script for next 12 wks and pick up copy of 8wk bloods. Hope to talk to Dr Freeman soon. Thanks


    G2b, F4 cirrhosis (fibroscan 29.5 kPa), no prior treatment. Started sof/dac (from Kingswood) 17 Dec 2015 for 12 weeks. Continued with Sovaldi (via PBS) and dac (from Kingswood) 10 Mar 2016 for further 12 weeks.
    16 Dec 2015 = ALT 84 AST 99 VL 326,914
    19 Jan 2016 = ALT 19 AST 30 VL 22
    16 Feb 2016 = ALT 19 AST 27 UND
    31 May 2016 = ALT 20 AST 29 UND (EOT 24 wks)

    in reply to: Treatment duration confusion #12842
    abathnot
    • Topics: 2
    • Replies: 12
    • Total: 14
    • Acolyte
    • ★★
    @abathnot

    I totally agree with you. I need to be convinced. He caught me off guard yesterday, I didn’t ask the appropriate questions and he’s always in a hurry. I have 11 days sof/dac left and yesterday I was expecting to get a PBS prescription for the next 12 wks of Sovaldi and buy 12 wks of Dac from Kingswood Chemist. I have the prescription for Dac. In Australia, Genotype 2 can only get Sovaldi and Ribavirin on PBS (not sof/dac). Am going to try and make an appointment with Dr Freeman asap. I’m sure he’ll know what to do. Again thank you so much for your help.


    G2b, F4 cirrhosis (fibroscan 29.5 kPa), no prior treatment. Started sof/dac (from Kingswood) 17 Dec 2015 for 12 weeks. Continued with Sovaldi (via PBS) and dac (from Kingswood) 10 Mar 2016 for further 12 weeks.
    16 Dec 2015 = ALT 84 AST 99 VL 326,914
    19 Jan 2016 = ALT 19 AST 30 VL 22
    16 Feb 2016 = ALT 19 AST 27 UND
    31 May 2016 = ALT 20 AST 29 UND (EOT 24 wks)

    in reply to: Treatment duration confusion #12835
    abathnot
    • Topics: 2
    • Replies: 12
    • Total: 14
    • Acolyte
    • ★★
    @abathnot

    Thank you Gaj. I am delighted and grateful to be UND at 8 wks, however, am very very worried about stopping at 12 weeks as for the last 6 months, it has been the norm to do 24 wks for people with cirrhosis. What do you think?


    G2b, F4 cirrhosis (fibroscan 29.5 kPa), no prior treatment. Started sof/dac (from Kingswood) 17 Dec 2015 for 12 weeks. Continued with Sovaldi (via PBS) and dac (from Kingswood) 10 Mar 2016 for further 12 weeks.
    16 Dec 2015 = ALT 84 AST 99 VL 326,914
    19 Jan 2016 = ALT 19 AST 30 VL 22
    16 Feb 2016 = ALT 19 AST 27 UND
    31 May 2016 = ALT 20 AST 29 UND (EOT 24 wks)

Viewing 12 posts - 1 through 12 (of 12 total)