Alsdad Beech - FixHepC

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4 October 2015 at 1:11 pm in reply to: SOF/Dac could it work it eight weeks? #1780
Alsdad
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- Guardian Angel
@alsdad
That makes sense. Dac’s only just been approved in the US, and Harvoni is fairly recent in Europe.So I expect we’ll be hearing a lot more about Sof/Dac G1 treatment in the coming months.
4 October 2015 at 1:00 pm in reply to: Would you like to be part of a social movement? #1778
Alsdad
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- Guardian Angel
@alsdad
Greg wrote about a ‘worst case scenario’ getting his Indian Sof into the US here:

http://hepatitisctreatment.homestead.com/greg-jefferys-blog.html

It’s the 8th August entry.
4 October 2015 at 11:58 am in reply to: Resistance and Treatment Failure – Mechanisms #1772
Alsdad
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- Guardian Angel
@alsdad
Is it your opinion that treatments for HCV will eventually go the same way as Antibiotic treatments for infections Doc? Will the HCV antivirals keep having to be modified and strengthened?
4 October 2015 at 2:49 am in reply to: Hello from UK, need help please #1760
Alsdad
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- Guardian Angel
@alsdad
He’s now got members of the local Pakistani community turning up at his NHS clinic and pulling bottles of generic Sof out of their pockets that they bought over in Pakistan, asking him to monitor their treatment. He and his colleagues went to meet their local NHS Trust managers for legal clarification, who in turn went down to London to meet national NHS Trust managers to seek the same.

If UK Pakistani communities have anything like the rates of HCV infection as the population as a whole, there must be 2-3000 sufferers. UK Pakistani communities tend to be very ‘close knit’, and it will be common knowledge that cheap, effective medicine is available in Pakistan. The whole HCV generics issue could turn into a monster for those trying to keep a lid on it.
3 October 2015 at 11:35 pm in reply to: Hello from UK, need help please #1750
Alsdad
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- Guardian Angel
@alsdad
Just for clarification, it’s the same consultant at both Manchester and Newton-le Willows.
3 October 2015 at 11:32 pm in reply to: Side effects for sofosbuvir/Daclatasvir combo. #1749
Alsdad
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- Guardian Angel
@alsdad
”Ann wrote:

Hi I am almost 4 weeks into the Daclat/Sofos regime as a Geno 3, and my side effects appear to be getting significantly worse.
The main one is severe fatigue and muscle weakness. I have also become very sensitive to smells and odours .
Overall I feel like I am a bit poisoned. I have not really taken much refined drugs most of my life, so I dont know if this is the issue.
When I get the capsules out to take the smell really alarms me as it smells like poison. I am having my week 4 bloods done at the end of this week so will see how it is all going, I am a bit worried as I must return to work tomorrow and am feeling very poorly.
Are there any other people on this regime that want to share their side effects?

Over the last few years I’ve been losing my sense of taste (food, that is, not clothes etc – I lost those a lot longer ago). I’d just put it down to getting older. But, just recently, it’s started coming back. Weird! I’m about 5 weeks into Sof/Dac btw.
3 October 2015 at 11:23 pm in reply to: Hello from UK, need help please #1747
Alsdad
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- Guardian Angel
@alsdad
I was the first to approach the consultant at Pall Mall Medical. It took me a while to get the script because (1) he was unprepared for my request, but sympathetic. He wanted to check out his legal position first. (2) I went only partially prepared: I didn’t have a recent set of blood test results, so had to get them done later that week at the clinic.

It’s a long haul rom Cambridge to Manchester, but if you go prepared, you’ll leave with a script, as others have.

Greg Jefferys told me he knew of another Dr in the UK who is writing, but didn’t say where. Maybe contact Greg?
3 October 2015 at 11:05 pm in reply to: Would you like to be part of a social movement? #1745
Alsdad
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- Guardian Angel
@alsdad
Ok. I’ve set a forum up more as a backup to this place than anything else. Should something happen to the fixhepc forum (and make no mistake: Big Pharma will be trying to make something happen to it) we will have somewhere to re-group. The people managing this resource will be welcome to the same management access to my new forum. In fact, being the tech neanderthal that I am, I’d appreciate the help/guidance.

At the moment it’s here:

http://killthedragon.freeforums.net/

But if it starts getting traffic, I’m going to move it behind a premium secure server, where it will be found under this domain name:

http://www.killthedragon.co.uk
3 October 2015 at 3:23 pm in reply to: Gamma GT #1731
Alsdad
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- Guardian Angel
@alsdad
Hmmm. I wonder what the solution to having too many patients is?
3 October 2015 at 12:20 pm in reply to: Gamma GT #1723
Alsdad
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- Guardian Angel
@alsdad
Just read it thanks Chester.

I put up a letter on this thread that I had obtained that was from my NHS consultant to my GP. I’d approached my GP about a script for 24 weeks Sof/Riba (which was my plan before the Mesochem Dac became available), and she asked the consultant for this and to monitor my viral load. The consultant was dismissive of generics, and said that viral load was the least of my problems with me wanting to take Riba. The same consultant had previously advised me (in a letter that I’ve also put up here) that, should a Sof based treatment eventually become available to me, I would have to take it with Interferon. This treatment option also requires (yes, you guessed it) Riba! This clown was just making it up as he went along.
3 October 2015 at 11:52 am in reply to: Would you like to be part of a social movement? #1722
Alsdad
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- Guardian Angel
@alsdad
I’m working on a UK based forum. Should I go public with it, or just keep it in reserve for now?
3 October 2015 at 11:49 am in reply to: Understanding Hep C and the new DAAs #1721
Alsdad
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- Guardian Angel
@alsdad
That is an absolutely brilliant explanation Doc. My seven year old would understand it, it’s in such plain and clear language.
3 October 2015 at 11:34 am in reply to: Has anybody here imported from Greg J. to USA? #1720
Alsdad
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- Guardian Angel
@alsdad
Afaik generic Dac’s not available in India. But, as the Doc said, both Dac and Sof are going to be available in Bangladesh very soon from here

http://www.beaconpharma.com.bd
2 October 2015 at 5:30 pm in reply to: Gamma GT #1691
Alsdad
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- Guardian Angel
@alsdad
Got my 4 week GP bloods results today (copy attached):

ALP = 81
ALT = 10
GGT = 75

ALP and ALT seem to have settled into their (for me) ‘normal’ range.
GGT has dropped massively again, 357 to 194 to 154 to 75, almost in the ‘normal’ range.

These fake generics are bloody amazing!
1 October 2015 at 8:44 pm in reply to: Another Generic Pharma Co In Bangladesh #1666
Alsdad
- Topics: 18
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- Total: 335
- Guardian Angel
@alsdad
I also found the guy’s linkedin page:

https://uk.linkedin.com/pub/md-shahariar-tamal-selim/75/706/a55
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