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I would direct your doctor to the local hospital Infectious diseases clinic & in the meantime as long as the meds are the right type for your geno type (check this site) start taking them. Your local doctor sounds to me like one of those people that went to uni once in there early twenties got a degree & sat back for a decade or 3. Regards Angus
Yep, I have experienced the liver pains during treatment but have not had them for a while it all just seems to get better as I go. I put this down the enormous changes my liver is going through. What I can say is as my liver gets further away from daily beatings from hep c it is slowly healing. I have been giving it a real holiday & if you can try ie. Cut the grog & other “toxins” & lots of water vegies & fruit. It will pay you with love!
Regards AngusYes I would speak to the doctor whoevet had told you the just because you have a result of HCV RNA UNDETECTABLE during treatment means its all over is A FOOL & DANGEROUS. There are many people who have acheived UND & later tested positive. That is why you are only consider to have cleared when you have showed an UND at 24 weeks AFTER treatment had finished.
This type of uninformed “advice” is just what I have feared since this whole thing got started. To me it just beggers belief that someone would embark on this treatment without at least reading the very simple, easy to read information provided on this site let alone start giving “ADVICE” to others. It is very simple read & inform yourself please !
AngusPaul,
To be clear I am talking about my experience. I do not for a moment believe I know what it must have been like to go through that hell on wheels they called a “treatment” only to find out you had not cleared. I watched long term business’s & marriages Hit the rocks, 2 people with strokes & 1 heart attack. So I sure that must colour peoples decision making this time round, to not take any chances. Saying that Dr Freeman rang my this morning about something else & I used it as an opportunity to raise this ?. His comment is that the use of riba is really a bit of a hangover from the old days. To support this he pointed to an yet released report the largest to date of purely f3, f4’s all geno3 that showed not additional effect & if anything the people on riba did slightly worse, but that could be just the error margin.He did say he would be post this report on the site. So I am beginning to wonder.Regards Angus
Hi this is Sharky00 for some reason my old login isn’t working. To Riba or not to riba well after ALL MY READING & believe me I read everything I could before starting my treatment. In the end I went with my specialist & did not do it. At the time i said why not ( considering I am F4 ) he said well we will see how your treatment goes but we want to keep the side affects down. At that point in time the best studies said it gave you a slight edge.
Since then the water has cleared a bit, the main thing to remember is this is all very new, there is very little good data & certainly at the time I had to make my treatment decision even less, things are moving fast.
The upshot for me is it was the right decision. The latest results which are from 412 3a f4 patients showed riba gave no additional help but added serious unnecessary sides affects. Discussing the these most recent results with my specialist he said that time will tell but yes it is beginning to look like for 3a patients with high F scores it is the lenght of treatment ie. At least 12, 16 better 24 best not adding riba which just makes sticking with it harder for no gain. Once again I think this is just part of the early days of learning. I worked for me in 7 days of sof/dac my virus is undetectable & my ALT is the lowest score I have ever had in 24yrs of testing at 11. I intend to do 24 weeks as I have no side affects except the 1stweek very mild & that is what the testing is showing is working for someone like me with F4.
Regards & good luck everyone Angus -
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