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  • in reply to: Nadia’s journey #2299
    Ann Bee
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    @ann-bee

    Hi All, Sorry Nadia if I may be hijacking your thread re Sof/Dac outcomes. I am 58 infected about 38-40 yrs ago and Geno 3a. I started on Sof/Dac on 8th Sept. Had my 4 weeks bloods done and it came back as Viral load below 15 but still detected. I will have another blood done at week 6. I also have the complication of a bone marrow disorder detected 15 yrs ago called Primary Thrombocytosis or abnormally high platelets presently untreated. Was on a nasty drug for 10yrs with that but had to stop as maybe it made my liver react but got very liverish sick. The only other treatment was Peg Interferon. NO THANKS!! Great to see that my platelets dropped by 200 pts which is phenominal, and all other bloods in the normal range. YEAH!
    So waiting now on my 6 week bloods now and not sure how we will progress if still detected then.
    Another thing is my hepatologist from the liver clinic who was shocked and dismayed when I originally talked to her about the generics, (I went with James then), called me yesterday and is very interested and happy with my progress and wanted to know costs etc for her other clients (I knew she was a good soul) and I pointed her to this website. So great to be on here.

    in reply to: How will the signing of the TPP affect us? #1908
    Ann Bee
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    @ann-bee

    This is the link from The Conversation on some of the drug patents in a nut shell nobody knows yet on what was agreed.
    https://theconversation.com/why-biologics-were-such-a-big-deal-in-the-trans-pacific-partnership-48595

    in reply to: How will the signing of the TPP affect us? #1907
    Ann Bee
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    @ann-bee

    Hi Miko, I think all registered Health Professionals moved to National Registration and Standards at least 3-4 yrs ago. So not state but federal registration and ‘guidlines’

    in reply to: How will the signing of the TPP affect us? #1881
    Ann Bee
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    @ann-bee

    I think that is a question worth looking into because my understanding is that agreement is less for trade and more for patents generally.

    in reply to: Side effects for sofosbuvir/Daclatasvir combo. #1880
    Ann Bee
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    @ann-bee

    Just an update, over the last 2 days I have been feeling FANTASTIC!! The best energy in a long time (worked landscaping my large yard all yesterday, havnt been able to do that for a long time) . I changed taking my meds from last thing at night to breakfast time. Was waking very, very groggy prior to that. Again I have no idea if this is just coincidence in terms of timing etc, just putting it out there. I cant believe how good I feel. YES!! Good luck every body. I will be getting the end of my 4 weeks bloods done tomorrow and so will find out soon what they say.

    in reply to: Side effects for sofosbuvir/Daclatasvir combo. #1681
    Ann Bee
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    @ann-bee

    Hi Vicki, great to hear how you are doing. Yes I had that bad taste as well, I take mine after dinner so I dont have to have nausea if it shows, so far so good. I also am not taking any thing else (except for some iron I take in the morning) and have found vegan type food the best for me (I am not normally a vegan) it just feels cleaner and no digestive symptoms.
    Did you read the Daclat drug insert that James put up on the site? It states that if you take it close to a high fat/High carb meal (I think) you can reduce the absorption rate quite significantly. That is why I take it just before going to bed with a piece of vegetable or fruit etc to allay the bad taste.
    Really look forward to your progress so keep us posted ok!

    in reply to: Side effects for sofosbuvir/Daclatasvir combo. #1680
    Ann Bee
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    @ann-bee

    Hi Bloot. My bloods have been completely normal with only slight raises in ALT/AST over the 38 years I have had this virus. In the last 2 years they have been creeping up but not to the levels that you have ever had, but most importantly my overall health has been declining

    I have been a healthy yoga type all of my adult life if you overlook the 1-2 years of destructive behaviour in my late teens when I contracted this virus. I really didnt take any alcohol during this time, or very little, but in the last few years I have drunken more regularly so that may be why there has been a change.

    The only thing I really noticed over the years and so did those closest to me was that every few weeks etc I would get very bad fatigue for no apparent reason (deep bone like fatigue) that would last for 1 or 2 days, then go. More recently it has been my foggy brain getting so much worse and digestive problems which both immediately improved when I started the sof/dac 4 weeks ago. I really didnt know if that was what was causing those symptoms but both clearded within 1 week of starting, and I was feeling fabulous.

    I am like you Bloot in that it has been part of my personality my whole adult life ( I am 58)so I dont know what I will be like when it is gone!
    My son noticed that a sharp tone in my voice has disappeared completely since on the drugs!! What do you know!

    I will look forward to hearing how you and everyone does on this regime

    in reply to: Side effects for sofosbuvir/Daclatasvir combo. #1672
    Ann Bee
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    @ann-bee

    Hi Nadia,
    I only started taking the iron 2 days ago, but yesterday and today no smell problems. When I first started the drugs 4 weeks ago I had only a few days of low grade flu symptoms, then was feeling the best I have in years, it is just the previous 4 days were terrible, but that has seemed to pass now. I only wrote this on this thread as I wanted to check if anyone else is experiencing these things or to help anyone who may be. Thanks for the reply Londongirl and wilko, that is interesting, I suspect it may be some variations on the liver re detoxing the drugs or somehow other being affected by them transiently.
    I look forward to reading others experiences

    in reply to: Side effects for sofosbuvir/Daclatasvir combo. #1652
    Ann Bee
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    @ann-bee

    Now the very strange thing Iis today they do not smell in fact nothing is smelling bad to me. Also my energy has improved greatly though not better yet. From before I started the drugs up until yesterday my sense of smell had become so acute that anything chemical etc was abhorrent to me. I just opened my bottles of drugs and cannot smell anything! I was so weak yesterday as an accumulation over 4 days or more and all I did was rest eat clean food paint some iodine on my abdomen and take 2 doses of iron as my last blood test some time ago showed low iron so I thought this may be contributing to my severe fatigue. I cannot tell if these symptoms were from the drugs but I truly have never felt so fatigued with deep joint pain and hypersensitive to smells. I look forward to hearing from anyone else who is experiencing side effects .

    in reply to: Side effects for sofosbuvir/Daclatasvir combo. #1636
    Ann Bee
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    @ann-bee

    Hi I bought them through Mesochem China, and had the pharmacist encapsulate with lactose

    in reply to: Side effects for sofosbuvir/Daclatasvir combo. #1629
    Ann Bee
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    @ann-bee

    I am too. Yesterday i rested the whole day had severe joint pains and severe fatigue. Just ate some vegan raw foods and drank about 2-3 litres of water. I also wiped Iodine all over my abdomen! Woke this morning feeling so much better. Not clear yet but not as bad as last 3-4 days.

    in reply to: Side effects for sofosbuvir/Daclatasvir combo. #1587
    Ann Bee
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    @ann-bee

    Hi I am almost 4 weeks into the Daclat/Sofos regime as a Geno 3, and my side effects appear to be getting significantly worse.
    The main one is severe fatigue and muscle weakness. I have also become very sensitive to smells and odours .
    Overall I feel like I am a bit poisoned. I have not really taken much refined drugs most of my life, so I dont know if this is the issue.
    When I get the capsules out to take the smell really alarms me as it smells like poison. I am having my week 4 bloods done at the end of this week so will see how it is all going, I am a bit worried as I must return to work tomorrow and am feeling very poorly.
    Are there any other people on this regime that want to share their side effects?

    in reply to: Expert Professor by email – Viral Load Monitoring #1352
    Ann Bee
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    @ann-bee

    Oh so sorry just saw the follow up messages!! Talk soon Dr Freeman!!

    in reply to: Expert Professor by email – Viral Load Monitoring #1351
    Ann Bee
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    @ann-bee

    Hi Emilio,
    I just booked in with Dr Freeman on GP2U on line and the website says that all GP consults are not Medicare covered. There are no specialists listed for Hepatology/Gatsroeneterology etc,. The website appears to indicate that specialists are covered by Medicare. So I cant see the bulk billing you mentioned. Is this correct. Or are the test s ordered for Hepc bulk billed? Sorry just not clear with what you mentioned
    Kindest Regards

    in reply to: Expert Professor by email – Viral Load Monitoring #1314
    Ann Bee
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    • Treatment Warrior
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    @ann-bee

    Hi everyone,
    I have been on Chinese Dacltasvir and Sofosbuvir for the last 10 days. I am Geno 3A, and was infected since late 70s. So far no side effects at
    all. My own Dr wrote the prescription and ordered my first Viral load testing. I always get copies myself, and the results say that my dr cant order those tests. Do you have any suggestions for me please? I live in the country in NSW.
    Thank you in advance

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