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  • in reply to: Still sick after cure! #26772
    Bern
    • Topics: 2
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    • Total: 5
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    @bern

    Thank you Dr Freeman.
    I appreciate you taking the time to answer my questions.
    I will ask my GP about Haemochromatosis…I thought you could only have one iron overload disorder but then, how would I know?? It’s worth checking out (Thankyou!!) And, if my liver is too damaged to repair, it still is better to be virus free & not be facing future liver failure! I understand that for sure. I can live with these things…I was just hoping someone out there was having similar experiences to me. I am hugely disappointed that I can’t find anyone.
    I have had this pain for many years & have tried many things including:- Tens, Physiotherapy, Exercises, Heat packs, Anti-Inflamtories (both Non Steriodial & Steriodial), Ultrasound guided Cortisone injections in both hips (that was NOT fun!), & I attended theOpal Chronic Pain Clinic in 2016. Many types of pain medication & this has ultimately led me to my current narcotic pain management regimen. I understand that over time, my tolerance to these drugs means they have reduced capacity to be as effective as they were. My pain is still there & my GP is now sending me to a Rheumatologist.
    I am still sick. Fatigued, unwell, tired all the time.
    But, I do have good days so that’s something…
    Many thanks for your time.

    in reply to: Still sick after cure! #26763
    Bern
    • Topics: 2
    • Replies: 3
    • Total: 5
    • Novice
    @bern

    Hi Mnem
    Thanks for the reply.
    I bought 24 weeks of Sofosbruvir & Daclatasvir in powder from from China. (Thanks to Greg Jeffries from Hobart…A true Legend!!!) High viral load, two failed interferon & ribavarin treatments (one lasting 48 weeks…Nightmare!) combined with Genotype 4 & I finished treatment in March 2016.
    I am still clear!!
    The trouble is that because these DAA’s are so new, there is little or no info out there about how we cured survivors are medically post successful treatment. Particularly, there’s nothing about Genotype 4 people….
    So I am at a loss & foundering..
    I do not drink, smoke, take illegal drugs or indulge in any dangerous behaviours. I am severely limited in any exercise therapies because of chronic pain (currently being investigated). I eat well & healthy. So, what’s wrong with me??????
    My liver is not Cirrhotic & hopefully my Metavir F3 rating will not progress further.
    Surely I am not alone here???
    Thankyou for replying…I am grateful for any advice..
    Bern

    in reply to: Still sick after cure! #26755
    Bern
    • Topics: 2
    • Replies: 3
    • Total: 5
    • Novice
    @bern

    Thank you Dr Freeman for your response.
    My recent fibroscan showed F3 fibrosis (& M3?? Can’t remember the other letter now…;) & my LFT bloods still show elevated AST, ALT & Gamma GT enzymes. It seems that though virus free, my liver damage is still impacting my health. I also have PCT that getting rid of HepC didn’t affect. I have a Bard Power Port in my chest for venous access as my high iron levels require frequent venesection & I have poor veins.
    I was diagnosed with HepC in 2009 after suffering years of poor health :-
    Chronic fatigue, chronic pain, weakness in limbs, confusion, etc, etc.
    It seems that my foolish experimentation with Iv drugs (twice) gave me the virus in 1980 & I didn’t know….
    I understand that my liver is damaged but where do I go to prove that I am still sick?
    I am currently taking 2 Targin 20/10 daily & between 2-6 Codeine 30 mg tablets a day to manage my pain. I have been on this regimen for over two years. My wonderful GP thinks my pain is coming from my lower back.
    Other ailments that I have include depression, chronic fatigue & general malaise.
    Basically, I am just as ill now as I was prior to successful DAA treatment in 2014/15.
    Any thoughts Dr Freeman?
    I would be grateful,..
    Thankyou, Bern

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