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  • in reply to: Treatment for genotype 1 UK #25383
    Boocock
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    @boocock

    Thankyou for all replies

    Gives me hope to hear positive stories!!

    And everyone is so welcoming and friendly!

    My little brother is a special one, against all the odds he is the most respectful and pleasant teenager. He deserves this a million times over. And it is my duty to do whatever I can to better his future!

    in reply to: Treatment for genotype 1 UK #25378
    Boocock
    • Topics: 1
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    • Total: 4
    • Novice
    @boocock

    Hi Dr Freeman,

    Thanks for the link.

    We have already been advised by my brother’s NHS consultant here in the UK that this treatment will become available for him at some point in the future. However how long and how easily we do not know.

    It all just seems to good to be true.

    It would be good to talk further and gather more information, get a better understanding of DAA’s and how they work and discuss wether speeding the process up (quicker than the NHS here in the UK) is the right option for us.

    Regards

    Sara

    in reply to: Treatment for genotype 1 UK #25377
    Boocock
    • Topics: 1
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    • Total: 4
    • Novice
    @boocock

    Hi Rightsaidfred,

    He’s not my son, he’s my Brother. My nan has custody of him and I am a close advocate in his care. He contracted hep c genotype 1 at birth from our mother. It’s a shit hand to be dealt. Untill December just gone we had no idea about any treatment other than the interferon type which we have chosen to avoid unless absolutely last resort. In the last 6 month his consultant has noticing some scarring appearing in his liver, at his December appointment she said she would try to get the harvoni treatment, but didn’t know a) if it would be granted for him b) how long it would take to actually get it c) she might have to appeal for it because it costs such alot of money.
    It’s astounding to read that we could aqquire it for what I consider as not really alot of money. I’m going to speak further with Dr Freeman. Thankyou for your encouragement it’s good to hear from other people, sometimes we have felt totally at a loss with my brother and so frightened for his future …… But it’s starting to feeling like the future will be bright!

Viewing 3 posts - 1 through 3 (of 3 total)