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  • in reply to: Another lost 2B soul on US forum told to WAIT! #6873
    Avatar photoCC2B
    • Guardian Angel
    • ★★★★★
    @cc2b

    i did send a couple of emails to some of the pharmacy’s you have listed and I did hear back from an Adam Kennedy from Kingwood Compounding Pharm. Are you familiar with this person? He told me all I needed was a prescription and gave me prices and also told me it would be $40 for shipping to the US. I did send email to parvez and Incepta I am pretty sure, getting into that brain fog right about now. Anyway I will check out the others you have provided and try and figure it all out and will probably have more questions…. Thanks very much…CC


    GT2b diagnosed 10/2015
    since: unknown
    11/20/15 VL= 214,070
    12/4/15 ALT=18 AST= 24
    1/16/16 started sof/dac
    2/13/16 @4wks VL=UND ALT=13 AST=22
    3/12/16 @8wks VL=UND ALT=10 AST=18
    4/9/16 EOT VL=UND ALT=11 AST=19
    9/23/16 SVR24 ALT=11 AST=22

    in reply to: Another lost 2B soul on US forum told to WAIT! #6841
    Avatar photoCC2B
    • Guardian Angel
    • ★★★★★
    @cc2b

    thanks for your response 2b. i have looked at some of the threads by mgalbral and klihide and it seems being able to have the meds shipped to the US has come to a halt, but i will follow thru and talk with them and see what my options are at this time. if need be i will take the route you did and just go to australia, been there once many years ago, great place. the main problem with that is getting time off from work in order to travel. may hit you up again for more specifics if i decide to take the same route you did.


    GT2b diagnosed 10/2015
    since: unknown
    11/20/15 VL= 214,070
    12/4/15 ALT=18 AST= 24
    1/16/16 started sof/dac
    2/13/16 @4wks VL=UND ALT=13 AST=22
    3/12/16 @8wks VL=UND ALT=10 AST=18
    4/9/16 EOT VL=UND ALT=11 AST=19
    9/23/16 SVR24 ALT=11 AST=22

    in reply to: Another lost 2B soul on US forum told to WAIT! #6810
    Avatar photoCC2B
    • Guardian Angel
    • ★★★★★
    @cc2b

    Thanks Chester, will f/u later need to take my butt to bed now


    GT2b diagnosed 10/2015
    since: unknown
    11/20/15 VL= 214,070
    12/4/15 ALT=18 AST= 24
    1/16/16 started sof/dac
    2/13/16 @4wks VL=UND ALT=13 AST=22
    3/12/16 @8wks VL=UND ALT=10 AST=18
    4/9/16 EOT VL=UND ALT=11 AST=19
    9/23/16 SVR24 ALT=11 AST=22

    in reply to: 2B HERE #6803
    Avatar photoCC2B
    • Guardian Angel
    • ★★★★★
    @cc2b

    Thanks Zhuk, I will check it out :)


    GT2b diagnosed 10/2015
    since: unknown
    11/20/15 VL= 214,070
    12/4/15 ALT=18 AST= 24
    1/16/16 started sof/dac
    2/13/16 @4wks VL=UND ALT=13 AST=22
    3/12/16 @8wks VL=UND ALT=10 AST=18
    4/9/16 EOT VL=UND ALT=11 AST=19
    9/23/16 SVR24 ALT=11 AST=22

    in reply to: 2B HERE #6794
    Avatar photoCC2B
    • Guardian Angel
    • ★★★★★
    @cc2b

    Hi all, good luck to all of you! I am new to this forum and newly diagnosed about 2.5 months ago, so still in the learning faze and catching on fast. I am in the US and am still waiting on results from some initial tests: liver u/s and cryoglobulin levels Otherwise have normal labs AST =24 ALT=18 and VL= 214,070. Guess all that mostly healthy diet I have been on for years helping. Would really like to hear from anyone else from the US on how to get these generic meds here since that is what I plan on doing once I get the official denial from my insurance. I have no idea how long I have had this crap in me since I have been an RN for over 34 years and have delt with way too much blood over the years. Thanks and here’s to everyone having a happy UD new year!


    GT2b diagnosed 10/2015
    since: unknown
    11/20/15 VL= 214,070
    12/4/15 ALT=18 AST= 24
    1/16/16 started sof/dac
    2/13/16 @4wks VL=UND ALT=13 AST=22
    3/12/16 @8wks VL=UND ALT=10 AST=18
    4/9/16 EOT VL=UND ALT=11 AST=19
    9/23/16 SVR24 ALT=11 AST=22

    in reply to: Another lost 2B soul on US forum told to WAIT! #6792
    Avatar photoCC2B
    • Guardian Angel
    • ★★★★★
    @cc2b

    Hi 2b, I think you are talking about me. Although I know I didn’t say I would wait and pray. I am newly diagnosed about 2.5months ago and have only recently seen my gastro dr. Were you 2bDAD? I was wondering why I didn’t see you on the forum anymore cuz I wanted to talk with you since we are both 2b. Have’ been back there since I found this site. So it is good to meet you and any words of wisdom you can give me would be greatly appreciated.
    My story thus Far is that my labs are very normal, latest AST=24 ALT=18. My VL=214,070 so low.i had a liver u/s and cryoglobulin level done this week and waiting for those results. Basically I told the gastr doc I would prefer not to take riboviran and wanted to try the sof/dac combo and he was fine with trying to get my insurance to cover that. But in the real world you know and I know my insurance is never going to approve that esp with such normal labs and low VL. Gastr doc says it will take about 4weeks after he submits all my results before hearing back from insurance. So in the mean time I am here trying to get as much info on this option, all advise and info greatly appreciated. Thanks for listening…CC


    GT2b diagnosed 10/2015
    since: unknown
    11/20/15 VL= 214,070
    12/4/15 ALT=18 AST= 24
    1/16/16 started sof/dac
    2/13/16 @4wks VL=UND ALT=13 AST=22
    3/12/16 @8wks VL=UND ALT=10 AST=18
    4/9/16 EOT VL=UND ALT=11 AST=19
    9/23/16 SVR24 ALT=11 AST=22

Viewing 6 posts - 166 through 171 (of 171 total)