Forum Replies Created
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AuthorPosts
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Hi Cherie,
Yes, spooky!!
I wonder if the virus caused your premature birth?
My son also had to have the occupational therapy , bad coordination.He’s ok now.
They are lovely at 10 years of age.
Enjoy himBy the way, J feels good again now, ( after a few hours) I do think it had something to do with the extreme heat here in Sydney & he wasn’t drinking enough water.
Learned from that now.Thanks, I was worried too, but yes the drugs are the right ones.
Everything good.
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!Thanks Zhuk,
I texted Dr James & he got back to me pretty quickly explaining things, all ok.
They are the same drugs just in different form.
Still find it hard to believe how quick Dr James replies, he is an amazing Doctor!! Never known a doctor who responds like that.
He’s a real caring one.
Aren’t we all lucky
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!Hi everyone,
I just received J’s next batch of meds as we only got 12 days of Twinvir to start with.
In the package is the Sof & Led bottles. NOT the Twinvir tabs!
Should he have them now after having the Twinvir?
I thought he was just having the Twinvir, now we got the other, a bit confused.
I think they’re all the same though?Is that right? anyone know?
Also do you take them together?
Thanks.
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!Hi Chejai,
It all sounds similar doesn’t it!! I as well lost some pregnancies before I had J. He had some language proplems , didn’t talk till 4 years old & had to see a speech therapist for many years.
No my son wasn’t tested for he hep virus till he was about 3.
If yours was tested, he must be ok.
How old is he now?
My J was 3 weeks premi, they waited till then before getting him out. I had Cholestasis of pregnancy because of the hep and it was horrible.
I was so worried he’d be still born, and the rashes was unbearable, but nothing helped,I was too scared to have any meds in fear it may harm him, just had to wait till he was advanced enough for them to get him out. They monitored him constantly till the 37th week.Did you get the Cholestasis? The HCV can cause this in the 3rd semester.
I read your story post & was so horrified at the treatment you got from your old specialist.
Glad you found Dr freeman, he’s a good kind Dr.Hope your tx goes well, and also your brother.
Love Cindi x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!Hi Chejai,
Just read your story & am disgusted at the treatment you got from that specialist, what a creep, how dare he treat you like that.
You’ll find Dr James the complete opposite, he’s very compassionate & kind
.
I don’t know why people like your past specialist choose to work in this field if they have those opinions.They should be wanting to help people instead of putting them down.Anyway, glad you’re on the right road now, you’ll find the generics very easy to get through.
Soon you’ll be free of the virusLove Cindi x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!Hi Coral,
Hope you’re going ok today.
all the best,
Cindi
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!Oh hi Paul,
Thank you!! I was just going to call you, glad you saw my post
It must be even hotter out where you are.
How are you?
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!Hi Enkel,
Did you mean me or J?
I had lots of bad symptons, but I got cured 2 years ago eventually.( but I’d had the virus for probably 30 years)J had some sides from the hep I reckon, tiredness, headaches , aches etc.
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!Thank you Alsdad, that really interesting.
Appreciate it
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!I think I spoke too soon, I just had to go pick up J from his work experience place as he was feeling sick & has bad headache.
It may be associated to the heat as it’s 34 here today?Anyway, he lasted there half the day.
He’s home now resting.I wonder if you can have headache pills on the generics?
Ibuprofen or panadol or something.Anyone know?
Thanks
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!Oh YES Poodle EXACTLY what I thought.
How dare that party pooper say that about the generics, when they never even admitted that the old drugs had after affects.
I know the ifn + Ribas did terrible things to me.
I found out last year after having a brain MRI scan, that my bad fuzzy memory is probably because they could see evidence of 6 small strokes I’ve had, & these were probably from the Ifn, after all I had to endure that poison 4 times. Without any specialist saying, “oh wait, by the way we aren’t sure if they have any long term affects”
And then our specialist had the nerve to try to push those dreadful old drugs on my son!!How dare they NOW be concerned that they aren’t sure what the generics do. I’m sure they are MUCH kinder on our bodies compared to that other stuff. The side affects of the Ifn was horrifying.
These generics are gentle, Ifn isn’t & neither is the virus.
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!No Govt is ever going to wear that, against every other condition needing PBS coverage.
That’s what I’m afraid of too zhuk, there’s such a bad stigma attached to having this virus.
That’s one of the reasons I thought to go NOW for the generics for my son.
Who knows how long we’d be waiting if we wait for the Gov to hand over that sort of money?!
Probably years & years….
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!Hi Enkel,
Thanks & the answer is NO he says he feels nothing!! except a bit more alert
He seems a bit less “moody” to me, smiling more.
His VL ( viral load) was 2 million, so not much different from yours, really.
Mine got up to 19 million at one time, it can fluctuate a lot I think.
When do you start tx?
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!Oh good luck Coral, I can understand how you’re feeling.
I so hope the results for your son are negative.My J had to go to work experience for school this week.
He is working with an agency that rescues animals.
He keeps texting me what’s happening, he’s had to rescue a Cockatoo & a ring tail possum so far this morning & he sounds full of energy.These drugs are amazing!
He has his first bloods done tomorrow, so exciting!
So Coral, try not to stress, even if your boy proves positive, these new generics are nothing like the old drugs.
He will be ok
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!hello Archer,
Thank you for the kind thoughts.& for sticking up for me.
Yes, strange things happening over there on that forum, she’s acting a little crazy.
J’s good again today & tomorrow he has to go do “work experience”, so thank goodness these wonder drugs have no bad side affects on him
Hope you’re ok, hope you’re getting closer to doing what you know you should……..
….big decision, but big results !
love Cindi x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!! -
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