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9 August 2016 at 10:14 am in reply to: Just emailed dr Freeman about fixing my father-in-law’s HepC #22002
Hi Cadu,
Welcome. Well done for finding the best place for the father-in-law to receive treatment and well done Meg for being the connector.
My journey also started with Dr Freeman through GP2U and you couldn’t be in more professional or safer hands. Good luck.
Coral
9 August 2016 at 10:05 am in reply to: Just wanted to say hi to all of you who have inspired me!!! #22001Welcome Nadia, it’s really good to meet you. I have great respect for anyone that took on the interferon treatment and came out the other end with their sense of humour more or less in place. Well done!
I remember when my medication first arrived. It’s very exciting and you’ll get very attached to those jagged little pills (with apologies to Alanis). At some stage down the track you’ll find yourself to be a HepC free mum for your lovely son.
Be kind to yourself.
Coral
Hi Whaemell and Welcome,
You’ve definitely come to the right place for the most up to date information and loads of genuine support.
Everyone has a different story and experience but the aim is the same. We look forward to hearing yours.Coral
Hi Ariel. Thanks for your kind words a couple of days ago.
Despite my huge disappointment (understatement!) in not reaching SVR this time I’m really happy to rejoice with you and others that do.
Largely because I know just how much it means to everyone (and I did have a taste of it) but it also reinforces my belief that I’ll get there in the end. CoralHi Bob,
Congratulations on finally finishing your treatment. Six months is quite a marathon.
I have had a low platelet count for a number of years which was described by a doctor in 2014 as mild chronic thrombocytopenia.
My blood results indicate that a normal range is between is 150 – 400 and mine were around 140 for a few years and went down to 119 in my first UND blood test 12 weeks into HCV treatment. Interestingly my recent SVR11 test which indicated that I was HCV positive again showed my platelets as 169 so I got Hep C back again but gained a normal platelet count. (I’d rather the reverse!).The liver and bone marrow have a role in platelet control and production. I am no medical expert but my previous research suggests that thrombocytopenia can be caused by a number of things including viral infections. An enlarged spleen also plays a role but in a different way. We also recently confirmed that I have a gene associated with Haemochromatosis which may account my high Iron results (it’s an iron overload disorder). There can be a relationship between Thrombocytopenia and Haemochromatosis.
My doctors have not been alarmed by my low platelet count although we have all been distracted by my HCV but it is something to keep an eye on. This has been my experience but I’m sure medical professional will be able to provide a more thorough overview.
Congratulations RSF and Bob – you both made it! Good luck for the SVR stage.
Hi Jimmy and welcome. You’ve had a bit of a battle but those results look pretty good so far. Good luck with that blood test – we totally understand the anxiety while waiting for results. Let us know how you go.
Coral
Hi Lynne. It’s really good to hear from you and find out what you have been up to. It’s great that you are feeling so well and it sounds as if this has been a catalyst for making some changes. I think that over the years we start to work out our priorities in life and they aren’t necessarily what we thought they were.
Enjoy your Hep C freeness and those lovely granddaughters. Look forward to hearing your news from time to time.
Coral
Thanks Hazel. Interesting article with Gilead trying to defend the indefensible. I’m not sure how they can use the risk factor of the initial investment and lack of government funding as justification for their current and ongoing outrageous pricing model. I understand Gilead’s need to fund research and be a profitable business but not with such an obscene profit margin at the expense of so many lives.
Congratulations on those good looking test results Will. Thanks for helping to spread the word to our Canadian colleagues.
Congratulations Gary! That’s such good news and it’s always good to be reminded by real people, in addition to the statistics, that the successes far outweigh the relapses.
Hi Hope. I know why you are anxious at the moment but the odds really are in your favour. G3 is a bit harder to clear but as Hazel said there is a decent percentage of people that do and they do not necessarily report on this forum.
I am a 1a that recently relapsed but I know that I have options for retreatment and will beat it in the end. I know when I post about this it can cause a bit of anxiety so I try to minimise it but I agree with Hazel that it all needs to be reported.
Hang in there Hope. Wishing you all the best for your next results.
That’s such great news to start the day with Honker. What a journey you’ve been on. You promised yourself a glass of sherry with your friends – enjoy!
Hi LG. I know you’re having a bit of a break so relax and enjoy please. I relocated across the country just before EOT which was great for taking my mind off the anxiety.
I think that if you want to have an earlier blood test then go for it. Having managed this disease for so long we have probably earned the right to some anxiety and extra blood tests to alleviate it. You couldn’t have done more to help your body fight this and I’m so hoping for the best result for you.
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