Dorian Schneidman

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25 September 2016 at 12:37 pm in reply to: So who are the reliable Indian suppliers? #23271
DorianLS
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@dorianls
There are several honest online pharmacies in India from whom you can buy without the need to travel to India. I would go that route. I bought from India and have an extra bottle, but I’m in the US. The company I used was “New Global Enterprises” and I believe the fellow
I worked with was named Vivek. Dorian
17 August 2016 at 5:04 am in reply to: Extra-hepatic Manifestations #22248
DorianLS
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@dorianls
I discovered that I had chronic kidney disease a year or two ago. No known cause, except (probably) hepatitis C. It is probable that it was this complication which convinced my insurance company to give me Harvoni. Since treatment there has been no worsening of my gfr, but no improvement either.
17 August 2016 at 4:05 am in reply to: Understanding SVR – Why don’t we call it cure? #22244
DorianLS
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@dorianls
Well, I agree for the most part. But he claims that even in the case of those who have undetectable virus, some shed viral particles occasionally and in one experiment, these have caused infection in others (chimpanzees).
17 August 2016 at 3:49 am in reply to: Understanding SVR – Why don’t we call it cure? #22241
DorianLS
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@dorianls
I just saw this pessimistic take on SVR and “cure”. I think he is being overly pessimistic, but still, he has been in the field for 30 years and is worth listening to: https://hepatitiscnewdrugs.blogspot.com/2016/04/expert-svr-does-not-equate-to-cure-in.html
10 May 2016 at 7:41 am in reply to: So who are the reliable Indian suppliers? #16896
DorianLS
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@dorianls
I ultimately went with Vivek at “New Global Enterprises” as someone on this site gave me good feedback on them. He carries several Harvoni generics; I bought MyHep LVIR, which was the least expensive. Total cost, including postage and bank charges came to about $400/bottle. This is about t he lowest price I have seen quoted. I haven’t had the tablets lab tested, but they certainly look legitimate to me. I have a bottle left over, so if anyone in the US is interested, let me know. Dorian
7 April 2016 at 2:36 am in reply to: Any Post-Treatment Reflections? #15003
DorianLS
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@dorianls
The main thing I noticed is that I no longer had to lie down during the day to be able to function. That was a fantastic thing. I am a little concerned though because I have had fatigue occasionally since the end of treatment and I worry about treatment failure. But all and
all, I’ve felt better than I have in the last 40 years…..and that’s iimpressive!
2 January 2016 at 1:41 pm in reply to: So who are the reliable Indian suppliers? #7812
DorianLS
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@dorianls
“add them to the list”. Yes, precisely! But, as far as I can see, there is no list with everyone listed on one page with comments. That is what I was suggesting. This would make it easier to find, in one place, people and places who can mail these medications.

As for my own situation, oddly enough, shortly after finding this site and deciding to take my health into my own hands, I was able to obtain Harvoni through my doctor (I live in the US). I had been turned down previously so when I saw this doctor I wasn’t expecting much. But then, only a few days later, a pharmacy called me and wanted to deliver my first bottle. My kidney function had been going downhill,
most likely due to the hep C (kidney disease is one of the extra-hepatic illnesses which hep c can cause) and that seems to have done the trick with my insurance company. I’m sorry it has cost them a small fortune, but since they were willing to deliver it to my door, I couldn’t refuse. After 1 month my viral load was undetectable. No side effect that I am aware of. A remarkable and highly recommendable medication, however you can get it! So now I probably don’t need it myself, though I have thought of taking an extra month of the stuff for good measure, as I have had this illness for 40 years. (Miraculously, no cirrhosis and very little fibrosis).
2 January 2016 at 1:00 pm in reply to: So who are the reliable Indian suppliers? #7803
DorianLS
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@dorianls
Sonex, I’ve read through all (or nearly all) the stickies but those seem to be oriented primarily towards manufacturers. To obtain their products you have to find a pharmacy who will drop-ship the products and I only found one such source (parag) who is rather expensive. Correct me if I am wrong or have overlooked something.
13 December 2015 at 11:33 am in reply to: Ledifos now available #6136
DorianLS
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@dorianls
I just received a reply from a pharmacy in India that they can now ship to me Ledifos. The price is $395 USD. The company does business as Medsure (http://www.medsure.in/about-us.html) as well as New Global Enterprises. The fellow in charge is: Vivek Ramteke (91-909684376. I don’t understand how he can ship now as I have not heard yet that the generics can be sold in India. Has anyone heard of Vivek Ramteka?
13 December 2015 at 11:18 am in reply to: Ledifos now available #6135
DorianLS
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@dorianls
I have found misspellings and incorrect grammar are common in India.
It is certainly a typo.
4 November 2015 at 11:21 am in reply to: generic harvoni in india #3315
DorianLS
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@dorianls
“The trials formally open on Nov 1. Its being all ready stated if you can legally import to your country you can
participate in the trials.”

I would certainly like to take part in the trials but I live in the US and it is my understanding that medications can not be legally shipped from Australia to other countries. So the problem remains as to how to obtain the medications outside of Australia.
3 November 2015 at 9:35 am in reply to: Hepcinat LP #3246
DorianLS
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@dorianls
There are all kinds of pharmacies in India which promise to sell Hepcinat LP as soon as it becomes available. I’ve left inquiries with 5 of them so far. It will take some further research to decide which ones look most reputable, etc., but it does look like they will be happy to sell to anyone.
3 November 2015 at 8:21 am in reply to: Hepcinat LP #3244
DorianLS
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@dorianls
Apparently a generic version of Harvoni is available, or will soon be available, in Nepal. The cost per bottle of 28 tablets will be $238.00 US:

Natco Pharma today said it has launched generic Hepcinat LP, which is in the treatment of chronic hepatitis C infection in adults, in Nepal.

NATCO priced its generic medicine, Hepcinat LP, at Rs 25,000 ($238.00 US) for a bottle of 28 tablets in Nepal, the company said in a filing to the BSE.

Hepcinat LP is generic version of Ledipasvir and Sofosbuvir combination and is used in the treatment of chronic hepatitis C (CHC) genotype 1 infection in adults.

Natco had signed a non-exclusive licensing agreement with Gilead Sciences earlier in 2015, to manufacture and sell generic versions of its chronic hepatitis C medicines, including generic version of HARVONI, in India and other 100 developing countries.

Ooops. Sorry. I just discovered that this is the same medication which will shortly be sold in India. However, from what I have read so far, it appears to be available right now in Nepal.
3 November 2015 at 8:02 am in reply to: Hepcinat LP #3243
DorianLS
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@dorianls
Take a look at this: http://blogs.wsj.com/pharmalot/2015/03/19/gilead-is-criticized-for-restrictions-on-generic-hepatitis-c-drug-deal/
Apparently Gilead intends to stringently monitor the distribution of its anti-HCV medications manufactured in countries such as India:

“Gilead requires patients to present national identification and residency papers, which it argues could disqualify migrants and refugees. And the relief group says the generic drug makers must track patients and ensure the copies are dispensed in limited quantities. One stipulation is that patients must return empty bottles to continue treatment (more here). The relief group worries these moves create an “ugly precedent.” etc. This has not been done apparently with Sovaldi, but I wonder if they will attempt it with Harvoni?
31 October 2015 at 5:23 am in reply to: Hopeful in the US #3106
DorianLS
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@dorianls
Lol. I see. Hmmm. So you were a little more inventive that I had gathered from your earlier post. Maybe I’ll check with Greg and see how it is going with those who have approached Mesochem as simple participants in the study he has proposed. I’m not sure I’m up to converting my apartment into a university nor putting miscellaneous letters after my name. But it sounds like she was more concerned with covering her company’s ass then the particulars of your qualifications.
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