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Hello everybody,
I was thinking these days to the forum members and the generic drugs for treating HCV and thought it would be good to write a line here in this thread.
Life without HCV is amazing and allows you to think and act on goals that would have been almost impossible while still being sick. I am doing well and preparing currently for my 3rd marathon race which will take place in about 6 months.
I found that exercising was very helpful on both aspects: physically and mentally, therefore, unless otherwise recommended by a doctor, seek to do a (safe ) sport activity that you enjoy.
If allowed, I would say that: cured of HCV + sport = happiness . So….. treat your HCV and be happy!
EC2
Couple of thoughts on this topic:
1. spreading the news ww is one parameter which is time consuming, having trust that generics do works is the 2nd parameter.
2. Barriers: Big pharma, perhaps NHS from each country, doctors not being informed about generics from India, patients not knowing there exist the cure.
3. Further barriers: distrust of patients/doctors that generics do work; place of manufacturing – low income countries (India, Bangladesh, Egypt,etc) do raise the level of distrust; sourcing possibilities: fear of getting fake medication due to scams.
4. and further barriers: literacy of patients (medical knowledge as well as english knowledge), IT resources (computer, internet, skills to search on internet)Looking at the barriers from above, I believe this explains somehow why spreading the news will take some time. Sad that in all this time more people will die of HCV…..
Cheers
Hi CJ,
thank you for your reply, thinking on how to support others is a very good tip. Especially about letting them know that there exist affordable treatment with the generics from India. I think it will require a certain “diplomacy” when discussing with people about this, as many people have biases about India. I experienced this already when I informed people around me that I was going to get generics from India (“you’re crazy”, “it’s dangerous”, “not safe”, “waste of money”, etc). sometimes I was really exhausted not because of the HCV, rather of too many fears to handle and which were not mine, rather of others, healthy people.
I believe so far a challenge was to find a cure, the next challenge is to demonstrate people that it works. EASL congress and fixhepc are very good sources of information in this regards.
Cheers,
SerbDear All,
thank you very much for your messages and encouragements that you wrote. You (we) are indeed a great FIXHEPC community, I am very happy that I heard about this website and it does contain a lot of useful information & experiences. Many thanks to you all for this. I used part of the information that posted on this website in order to convince people around me that my decision to use generics for HCV is a solid one. It also helped me in taking the decision.
I did read the article about Stockholm syndrome couple of days ago, perhaps this applies to me or perhaps I am more “affraid” about how I will be/feel in the future knowing that I will no longer need to control too much myself and have more “freedom”. What I find very surprisingly about the human nature, (a similar idea I was founding also in a writting of Viktor Frankl, an Austrian neurologist and psychiatrist who lived couple of years as prisoner in a concentration camp) is that during hard times, the humanity does not disappear rather it adapts and gets enforced. Sometimes I like to think that the only/single best outcome from having HCV is that it gives you a very strong motivation to live (survive)-> it motivates you to do everything you can to protect your health knowing there is (was) no cure available. Perhaps this “eagerness to survive” was the thing I was missing at the end of the previous treatment and not the HCV.
Cheers
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