can’t expect a compromised liver to deal with actual smoking

So I better not eat any more Aloe Vera…hmmm….some people recommend it specifically for Hep C.
At least I can keep drinking my Dandelion tea during treatment.
Big question is though what about “medical” marijuana with the tx? Is that contraindicated?
Seems like it would help with a lot of the reported sides.

Great protest! Very visceral!

I’m sure more appointments will appear for next week at some point soon. He’s probably booked out this week.
Why not ring and talk to Rusty at GP2U. He let me know when more appointments were listed.

I’ve decided to go the Hepascore route, and when I asked how the test would work, I was told that Dr Freeman could order the bloods at our appointment and then write the script once he had seen the results. I hope that will all work out as planned as I won’t be able to get a Fibroscan for months (minimum) and I’m just not willing to wait.
Having said that I’m quite healthy so its not a big deal for me not to be monitored. I’m sure my GP will do bloods for me at least.
Main thing is to get prescription advice from someone who has the most experience in the field, and in this case it isn’t the specialists anyway.

Reading Greg Jefferys blog he is really scathing about Brisbane specialists:
See entry for Nov 20
http://hepatitisctreatment.homestead.com/generic-indian-harvoni.html
“I believe that Brisbane’s ” Liver Specialist Hierarchy” is dominated by a bunch of ego maniacs who feel threatened by the fact that patients who they have failed to heal are going and healing themselves outside of the “system”. Getting results where the “specialists” could not.
These people are control freaks, bloated on their own self importance and they can not cope with the idea that people are taking control of their health, of their own lives and getting results!”
Oh dear ._.
Still a big country town at heart.

How did you get a private Fibroscan? Did you have to see a private specialist first? Or can you just request one somehow? Seeing the specialist costs money on top of any charge for the scan. And then you have to deal with whatever their agenda is. There’s no doubt the big step from GP to specialist is mined with booby traps and snafus.
My GP referred me to a specialist who he said did Fibroscans, but its looking likely I’ll have to wait a year to see him public. It’s probably a pipe dream getting scanned any time before early next year even if I pay for it, which is frustrating.
Everything is an uphill battle when you try and take charge of your own health. Even getting copies of your own test results is resisted. I suspect they are worried about future liability when you consider what a disaster Hep C treatment has been in the past.

I’m really happy to hear you are undetectable.
Congrats!

In a world very short on happy endings this page gives me so much hope and joy. It’s also very frustrating now to have to wait now for this fibroscan so I can be cured too. 25 years worth of waiting and struggling is hanging very heavily on me. Before I found out about the cure I was suppressing it, now I cannot!

After all these years I also shouldn’t be shocked by the brutality of peoples judgmental and dehumanising attitudes towards drug users, but somehow I still am. At the core of it is the herd pressure to conformity. If you flaunted the rules you deserve to die. What kind of sick mentality is that? On the positive side the Hep has kept these kind of people out of my life, so thats something to be thankful for.