Forum Replies Created
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Going to photoshop my head on Pamela Anderson’s celebration photo
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
splitdog wrote:Be careful with excess ANYTHING.
Excellent advice splitdog!
I also wonder if large quantities of juiced or even blended fruits and veg gives our body a direct injection of concentrated sugars and vit C that it doesn’t have to work too hard to extract? Apart from possibly causing spikes and dips in blood sugar, I believe high levels of both are thought to assist the HCV replication process too?
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi beaches,
Congratulations on starting treatment.
The caution is about how most people feel energised during initial treatment and can over stretch themselves without realising during that period. So hasten slowly during the initial stages and don’t try to swim 5km at a fast pace 6 or 7 days a week just because it suddenly feels like you can.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Sirchinenge wrote:Hi Gaj, I was looking at your stats you’re a F4 do you have a decompressed liver whats it being like
for you pre treatment.Hi Sir, fortunately I have remained compensated and hope to stay that way or better with treatment. As with many who have HCV I wasn’t aware I had a problem for close to 35 years until my annual checkup in 2012 revealed ALT of over 900 and AST close behind which resulted in my diagnosis. Cut the drink and changed diet and lifestyle but remained around 2-400 except for a short period after failed Peg/Riba. About 15 months ago my symptoms started to worsen and monitoring revealed I was developing a lot of regenerative nodules a couple of which turned into HCCs and needed removing. In layman terms my immune system and the virus were having a ding dong fight with no one winning and I was copping the blows from it. By October last year when I learnt of generics availability I was exhausted with multiple symptoms and unable to function either socially or at work. Thankfully Dr James, Greg and a few others were doing their magic by then and I have an enlightened specialist who was prepared to act in the best interests of his patients.
While we drifted a little off topic
the point I’d like to stress is that while HCV can seem benign for many years, it can suddenly go down hill very quickly as I experienced. So people should consider treating as soon as they can and delays and false starts such as the above that destroy confidence should not be part of the process once the patient has commenced down the Tx path.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Having worked in the food industry with businesses that comply with FDA protocols I’m aware that often shelflife labelling is based on a decision process that does involve the legal requirement to nominate some sort of date in addition to accelerated plus retained sample testing which both allow that the item may not be stored ideally during whatever shelflife is given.
In that industry shelflife extensions occur but more so for ingredients and intermediates than finished saleable products (the latter is often just a marketing decision). The better operators who are FDA compliant have processes to evaluate these items on a case by case basis and then approve a decision to extend, usually with documentation and/or relabelling that indicates both new shelflife and that an extension was given.Is there a similar process within the pharmaceutical industry? Alternatively, how do we know that the drug involved is still known to be safe/effective rather than something that slipped through due to a human error?
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
I would imagine the manufacturer probably made inventory pre-approval and is clearing that out first but would have supplied with some shelflife left. No doubt they will supply replacement stock if asked but probably means the pharmacist has to fill in a bunch of paperwork to complete the return….much easier to just hand it out and hope no one complains.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Actually it’s often not a lot better over here but I reckon you’re not moaning loud enough, or in writing enough!
It’s a systemic problem, so make it easier for them to fix the problem than to keep responding to your complaints that keep escalating up the chain of command. Most people will take the easy path = the squeaky wheel getting oil, etc…..so don’t target the people involved, instead direct your complaint to how they can focus on fixing the process that allowed the error to occur (unless of course the person involved was a “right jobsworth!”
).And make a point to check the date code when they hand you the meds. When they notice you doing that you’ve trained them to check before giving them to you in future.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
WTF!!!
– I just looked up the shelflife of viekirax and found it is three years.
– The nurse’s response is unacceptable but occurred because there should have been checks in place to stop it ever getting that far.As I’ve commented before these sort of things become ingrained throughout the system unless they are brought to the appropriate people’s attention.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Everything Arial said!! And don’t worry, MM & FHC will sort it.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi A.L.
Given that all three groups of people* that you nominate could at some stage in the process have done far more to assist the ~180 million worldwide that are infected with this virus but have chosen not to, I guess I’m going to be an equal opportunity hater.
* and it is people who make these decisions, not some nebulous “market forces” that they like to blame.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
While not discounting the possibility, most people’s experience on these meds is that they gain weight and feel calmer. I agree with Ken about checking the hypoglycaemia angle, particularly as your doctor already says you are approaching diabetes.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Welcome cbg,
For most of us the treatment will be easier to live with than the disease and it is only 3 to 6 months rather than a lifetime. Personally I feel confident that I will clear the virus and be able to live a full life again, as I’m sure you will too.
Thankfully FixHepC and all the wonderful people behind it have made that possible and affordable for many more of us around the world than previously while providing this open forum to share our experiences and the latest news on continuing developments in HCV treatments.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Well done Sir! That deserves a
after the unexpected delay of extending your treatment.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Great news Chongandco, congratulations!
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Congratulations Lynne!
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G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
