Forum Replies Created
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kenbasman wrote:
…….unless I decide to pig out on carbs, then the whole game changes…
Hmmm, and a commonly discussed side from Tx with these DAAs seems to be an increased appetite, often with cravings for seemingly high carb items. I wonder if our two friends in the aforementioned trials were already predisposed and additional carb intake was a trigger that tipped them over the edge?
Please note that I am not advocating everyone restrict their diet on Tx as I suspect a lot of the increased appetite may be our bodies telling us we need additional nutrition for healing. Rather I’m saying that those who are diabetic, pre-diabetic or have risk factors should consider that and tailor their diet to suit and the rest of us apply some moderation…….damn!!!!
hmy: ……
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
I blame the game of Monopoly which most children of the 20th century were brought up on and thus trained to believe as the way things should be done.
The irony is that Monopoly was originally invented as a morality play to show the problems inherent in a system where monopoly operated. The whole point is that initially with many players competing against each other the game is enjoyable and entertaining but as the game progresses, players are eliminated and can no longer participate and eventually the game grinds to a halt and the fun stops because one person owns everything and no one else is left for them to play against. Somewhere along the way we lost the plot and the last player left was seen as the lauded ‘winner’. In many ways we seem to have carried that lesson into life unlearned.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi Michaela,
Welcome.
As the others state, you will need to know which genotype you are so you can get the most effective treatment. The brand name you buy is less important than buying from a trusted source. Please see the below link for information on the sources that have been checked and are believed to be trustworthy for reliable supply of genuine medications. There a likely to be others and individuals may vouch for those but these are the ones that the site has verified.http://fixhepc.com/forum/daa-access/457-warning-to-online-buyers.html
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
I also don’t have an issue with providing fair and reasonable reward for investment, either intellectual property or financial under patent laws. However, Gilead’s excessive greed in this instance was part of my decision process to source my meds via the FixHepC Buyers Club which used non patent APIs from China.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
A.L. wrote:But they changed their tunes and have responded in a number of other countries with a licensing compromise.
Hi A.L.,
Thanks for your comments in your last post (#9202), I agree that we need to discuss both sides and understand where you are coming from on that.
Regarding your comment above, my understanding of the situation with the licensed Indian companies is that Gilead only went down this path when it became apparent to them that they would not be granted patent in India. At that point they approached the Indian pharma companies with licensing agreements in exchange for technical knowledge. This knowledge was not strictly required by the Indian companies but did allow fast tracking for sales into many potential markets of these companies. i.e. They could piggyback their products on Gilead testing and approvals and so only require minimal extra proof on their part.
Gilead were not doing this out of the goodness of their heart or to develop a generics market, it was done purely to salvage some return via licensing fees and in the hope of retaining some control of distribution.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
I read this sentence from Dr James’ link and my jaw just drops in astonishment.
“Medicare Part D, created under President George W. Bush in 2003, underwrites prescription drugs for those participating in the federal program, but prohibits the government from negotiating with pharmaceutical companies for lower prices.”
So the Pharma’s get to name the price that they charge for drugs used in the U.S. Medicare program and the government gets no say in it?
hmy:
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Mrmumbai?
Good to see that it hasn’t been deleted.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi Pauli,
Thanks for letting us know of the Norwegian forum Hepatitt.com. I just had a look and while I don’t read Norwegian I did see a comment from someone (partly in english) about going to India and they also made mention of FixHepC which didn’t seem to be censored. You may want to try joining their forum as often guests are much more restricted in what they can say than members and the more who talk about something like this the better. They may also be able to give you guidance as to how supportive specialists are in your country or even which ones are or are not.
I can’t advise on what you tell your specialist as that is your decision based on what you believe is best for your health and your conscience. I told mine and he was supportive but I also had the back up plan with alternatives (GP2U) if he did not agree.
One thing you may find useful in your discussions to provide support for your decision is that the Redemption trials have just been listed by the U.S. government’s National Institute of Health in their clinical trials database – https://www.clinicaltrials.gov/ct2/show/NCT02657694?term=redemption&rank=1Best wishes for your successful treatment and please keep us informed of your progress.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi LG, sorry to hear that you had to put up with that sort of prejudice at reception.
But glad the actual draw went so well and fingers crossed for great results for you.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Thanks Price, I guess we’re pretty lucky on here.
Good point, just thinking of how I sometimes struggled with that sort of thing pre Tx.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi Price,
I notice your post on there doesn’t mention or link to here, just Buyers Club and Australia. Is that because they don’t allow links or naming of other sites? If you could somehow edit so people know to include Hepatitis in their search that would be nice as just googling “buyers club Australia” takes you to the court cases against IPs for allowing downloading of the movie of the same name.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi Wullie,
Save the image as a photograph or similar image file, then click on Attachments below the posting box select the photo and then Insert.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi all,
While I agree that a good diet should supply sufficient vitamins for most people, we need to keep in mind that most of us have had chronic HCV for long periods and our diets and digestive processes may have been impacted by that. Having had bloods taken recently to test my B12 & D levels I went looking for information on what was optimum for B12 (Dr James had already provided the link that suggests Vit D levels greater than 30 ng/mL (75 nmol/L) during treatment). Anyway, I found this link, which seems a fairly reputable source for what are good levels of B12. So it seems 200-900 pg/mL is considered normal range. But interesting to read: “Older adults with vitamin B12 levels between 200 and 500 pg/mL may also have symptoms” of deficiency. I’ll leave it up to each of you to decide whether you qualify as old.
https://www.nlm.nih.gov/medlineplus/ency/article/003705.htm
Once I get test results back I will be supplementing if my results are below 30 ng/mL for vit D and 500 pg/mL for B12. At least until end of treatment. YMMV.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi Lizzi,
As dt says, full blood test to make sure you are not getting anaemic from the riba. My past treatment history indicated I wouldn’t but specialist still checked after 2 weeks to make sure. Then every 4-6 weeks through treatment depending on how they fit with other tests. Riba sides vary a lot depending on the person. The other details dt listed will help us see why riba was prescribed.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Congratulations Alan, next stop SVR12!
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
