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Damn! My high horse just threw me out of the saddle. hmy:
Thanks LondonGirl, a very timely reminder that while respecting the privacy of others in times of grief is important, we also need to ensure that the message about HCV potentially impacting anybody isn’t stifled by the stigma attached to its association with IDU.
…..and blood brothers? Like the cowboy and indian in that western film in the early 60s? Yep, everyone in my gang. Hadn’t remembered that in over 50 years. Though I had far higher risk factors than that later.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Welcome Frankie, looking forward to hearing of your journey.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
I feel that some attribution and commentary of the price list would be appropriate on this site. Particularly when posted in the Pharma’s Market area.
That is:
– Where did it come from?
– Who compiled it?
– How likely are these to be real street prices?*
* I have just noticed that these are stated to be “community procurement costs in Delhi and Northeast India” so I don’t believe these are prices that are available to the general public travelling to India or even to most Indians who wish to purchase for their own personal use, they are the ‘whole of village’ type of special marketing deal that I discussed previously in another thread. My other questions as to sourcing of this list still apply.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
mgalbrai wrote:I still can’t decipher it. I believe it was crafted to be that way.
MikeI did start to post on this earlier but my attention was needed elsewhere. If I remember correctly I was progressing along the lines of “Is this a final version or a draft copy put together by some poor student doing vacation work to pay college fees?” So, much along the same lines as you Mike. I don’t have any understanding of what would constitute a legal document from a U.S. perspective but there do seem to be holes big enough to drive a truck through.
And LPs comment about Glasgow Coma scale is appropriate. Applied to our example of the CP scale that would imply that every person on the planet who has a liver and is still alive is at least a 5 on the CP scale as the lowest you can score is 1 for each of the five criteria as they just don’t give out zeroes! That implies a two year prognosis of 85%.
I suspect the only way you will know for sure when it gets applied in the real world.
A highly sceptical optimist.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi Sir, I think the Dac you’re on is okay but Led is a potential issue due to it needing a more acidic stomach environment to be absorbed properly?
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Sirchinenge wrote:No, I don’t think Bowie had Hep C if he did I can see why he’d say nothing the man was not someone who
wanted to share that part of his life with the public.Yes, there was Ziggy Stardust the icon, David Bowie the pop/rock star and also David Jones the family man. The last was kept very private.
…..perhaps we should respect that aspect of David and his family unless they choose to make a public statement at some point?
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Thanks DT & klhilde,
While I agree with much of what both of you are saying, we need to remember when talking about both intuitive/sensor and social compliance issues we are mostly talking about people’s preferred styles. Very few people are firmly in one camp or the other, they utilise skills or strengths from both sides of the equation which they will favour to a greater or lesser extent depending on circumstances and timing, in most cases without realising they are doing it. However, some are quite skilled at conciously moving fluidly between what at first appear as diametrically opposed positions (actually just preferences) to allow them to gain the advantages that can accrue from each side. What is important when talking about change is that we are all mindful of others preferences and allow for them when dealing with those who appear to differ from ourselves. Viva la difference!
In practice this probably means we first need to engage and empower the 20% as defined by klhilde. This is the easy part of the task but it also creates a reservoir of ‘authority’ that will then start to attract those in the other 80% who already show some intuitive skills but still require data and convention to back their decision processes. That is how change works, for some it is a leap of faith while others need to be coaxed or coached. And yes, some will never take the decision themselves, they will only treat when instructed/ordered by their doctor/spouse/government.
I also await more on the Bulgarian adventure but remember, these 20%ers don’t play nice if they get warehoused.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Mike said: So anyone with liver disease that has not progressed would be a child A and thus considered compensated Liver Disease
Unfortunately not Mike,
Child-Pugh is a rating of the level of Cirrhosis. So basically a subdividing of those with a F4 fibrosis level. As you are probably aware F4 covers about 14 – 75kPa based on the fibrosis level as measured by Fibroscan/sure, etc. However CP assumes F4/Cirrhosis and then divides it up based on how well the liver is functioning at everyday tasks by measuring blood levels and looking at physical changes rather than just liver stiffness. So someone with CP-A is Compensated or in other words, their liver functions well enough that they can live a reasonably normal lifestyle with some care. CP-B is progressively worse until you get to CP-C. These are both referred to as Uncompensated. Basically it is a point score system that determines likely prognosis.
https://en.m.wikipedia.org/wiki/Child-Pugh_score
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Chester wrote:May your biggest sfx be the wonder at the lack of sfx.
If it is I’ll go
Otherwise, I’ll have somethings to about
Yay!
(Which is # roflmao ……without the space of course!)
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi Splitdog,
Great to hear that:
A.) You have commenced treatment, best wishes for your journey and SVR to you!
B.) Your doctor is supportive and is keen to learn from your experience. Hopefully it will give him the confidence to recommend generics to others, be they patients or colleagues.
And Sabrecat, congratulations on your UND!
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi Chester and LG,
The ducks are so you can get them all in a row: http://www.urbandictionary.com/define.php?term=Get+my+ducks+in+a+row
And the animated emoticons need to be typed in:
# rant without the space gives you
# woohoo! without the space gives you ….but don’t forget the ! or it won’t work.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Yay!!! Chejai’s boarded the train, next stopping at SVR!
Chejai wrote:Just a query – are we supposed to take the Sof/Dac on an empty or full stomach?
I don’t think it really matters with the Sof/Dac. If it’s any help, I take mine on an empty stomach before my morning walk which gives me three quarters of an hour to absorp the meds into my blood stream before I sit down to breakfast. Kill those little viruses before they have a chance to wake up in the morning! Haven’t noticed any sides from doing it this way but if you do then just take them with a light meal.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi Henry,
Congratulations on taking control of your health and now reaching ‘undetected’.
Henry wrote:I feel like sharing my story on social media will only tighten the grip of regulation. I feel like if I give specifics the path will be shut for others. I don’t know what to do.
If you are comfortable with sharing on social media that can only serve to lessen the grip of regulation. The more people that know, the greater the pressure on those who would attempt to restrict access. But it is not necessary for you to share the specifics of the “dance steps” you learnt from Mike, or that your dance partner was the lovely Rachel . Much has changed over the last couple of months and there are more options available now including those like the Redemption trials. Just tell the story of your journey in outline and point to this forum and/or Greg Jefferies blog as to where people can find the details.
And if you or others are not comfortable with that level of disclosure on the net then just spreading the word among those you trust or suspect may need help is fine. I have been able to pass on the news to two people I would never have suspected (plus one I did) in the last month or two due to sharing my status and journey with friends and associates.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi Debs,
Congratulations on getting and commencing Tx and best wishes for your journey.
It’s great to hear that people in the UK are now starting to get some open, if unofficial, support and monitoring. Hopefully those who aren’t posting on the forums (and I’m sure there are many) are taking the advice about how to source reliable meds and are then seeking monitoring from the NHS themselves. The more that do it the better it will be for those who follow.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Alsdad wrote:D’you think he may have exposed himself to re-infection (both earlier in his life and during his last failed tx) Sir? I think Harvoni’s not great against G4, so a new infection could’ve escaped it? Weird one, for sure.
Apologies to LG. If this offtopic discussion gets any longer, I’ll move it.
I wonder if it could relate to this discussion? Maybe he was mostly G3 but also carried a background and undiagnosed G4 infection which took over when the G3 got killed off?
http://fixhepc.com/forum/genotype-4-5-6-1/514-geno-4-and-something.html
Sorry LG!
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
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