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Got it. I had 2wk LFTs done today, mostly for my confidence/interest but my GPs now getting interested too. 4wk with VL will be via clinic.
G
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Congratulations crazy8!
What a great result after such a short period of treatment, are you part of the RVR trials?
G
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi Lynne,
While I can’t speak for the forum or the buyers club, given our no censorship rules and the allowing of links to other sites I am fairly sure there would be no issues with you Facebooking your experience should you wish.
I would advise careful consideration if you decide to step onto the path of disclosure as once you start it will be difficult to turn back. May I suggest that you sleep on any decision, maybe even for a few days and talk with those closest to you about it. And I believe you should personally inform family and friends you mention as not knowing rather than their finding out via the ‘net. They will also be effected by your decision.
Your donation is generous and doubly so given that it will be matched by your employer. From each of us as we are able…….
G
Edit: Chester found the perfect quote in both cases
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi Mike,
Only the bit about them on Killthedragon site. Still shows as unverified so hopefully Alsdad can comment.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
,Irma88,
Yes, well I suppose I tend to follow Brian’s advice to “Always Look On The Bright Side”
: : : : so I’m sure that “feeling better than for many years” isn’t as good as it gets.
The sides, if that is what they are, seem hard to distinguish from the virus. I have tried to be cautious during the high energy days after others warnings but the fog does seem to be thinning with periods of far greater clarity. And hope.G
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
I’ve been writing to friends and colleagues individually telling them in my own words how much this site has helped/moved* me. I have been including a link to the home page http://fixhepc.com and asking them to have a read about what is happening and why and asking that if they are aware of anyone with HCV to pass on the details to them. Since yesterday I’m also including a direct link to the Doc’s initial announcement about charitable donations as that has information about where to donate and the process used to determine how those monies are spent. http://fixhepc.com/forum/charitable-contributions-via-andrew-shaw-foundation/378-charitable-donations.html
While this is a more time consuming process than flicking out a bulk email to everyone, I know from my own experience that I am much more receptive to these sort of communications if they are personal and obviously written to me rather than a chain mail type of thing. It is also a good excuse to strengthen friendships by the old fashioned method of writing letters(ok emails, it is 2015). I realise that to some this may just sound like an old fossil railing against the pace of modern life :~) – but communication is important to me and I’ve done far to little over recent years.
G
* while Emilio and Greg’s example of telling people they have/had HCV has inspired me to broaden the circle of people that I have told and the reception has been positive, I am still not ready to step out as boldly as they have.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
….and the ripples start to form into wavelets
may the winds blow stronger!
G
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi IRMA88,
Welcome and congratulations on taking charge of your health. Regarding fibroscans, Dr James had a recent post regarding a bloodtest option for those whose can’t get access to a shiny machine that goes ‘thwok’ between your ribs. http://fixhepc.com/forum/experts-corner/362-fibroscans-vs-hepascores.html
Good to see another gt2 join us and I have just noticed the mods have given us our own sandpit to play in.
I’m two weeks into a similar 24wk treatment and feeling better than for many years. How are you after three weeks?
G
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi zhuk,
This is about more than the friend’s medical treatment.
He nominated Cindi’s husband as someone he wished to participate in the phone call as his representative. The nurse refused to accept his wishes. Now, she may have privacy or undue influence concerns but she does not appear to have expressed anything to that effect and in fact seems to have continued the conversation while excluding his nominated representative.
I would suggest that she appears to have exceeded her authority. Cindi’s friend needs someone who is fully conversant with his rights to ensure that they are not over ridden roughshod by the nurse’s wish to make her life easier or thinking that she knows best.
An independent advocate can ensure that happens.
G
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Dear Sir,
Congratulations on your three week results.
Yours Faithfully
G
(couldn’t resist)
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi 2b,
We do indeed use the term, the problem is that it’s meaning (like so much Aussie slang) can depend on tone and context.
Examples:
“What a ratbag!” – Referring to someone who is using their petty authority to stop you from doing something.
“You old ratbag!” – Term of endearment for someone who has just sidestepped, usually with great style, an attempt to apply petty authority.
Yes…….in your case you have used it in the correct manner in your sentence.
G
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
CJ wrote:snip…..
This nurse wouldn’t speak to my husband, refused to, even though our friend asked her to as he’s brain fogged out.
She could hear him in the back ground (speaker phone) & said he’s not to talk, only our mate. ………Hi Cindi,
The highlighted piece is a huge concern! May I suggest that you recommend to your friend (and support them) to speak with either a community or Viet Vets advocate. The advocate’s role is to listen to and discuss and define with their client what the clients wishes are, and to then represent those wishes to the relevant person or authority. They will have either the legal skills or the contacts with those skills to ensure that your friend’s voice and wishes are heard. I believe this is important for your friend regardless of what decisions are made regarding his treatment.
G
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Fantastic news em! Inspiring the rest of us as usual.
G
Oops! Double post.
Ah…..never mind, you deserve it after having to do the test twice.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Fantastic news em! Inspiring the rest of us as usual.
G
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Welcome Desley,
Congratulations on taking charge of your health and starting treatment.
As others have said, working 10 hour physically active days is going to be tiring even without hep c to contend with. As you are now on treatment and do have a high daily energy expenditure I wonder if it may be appropriate for you to review your current diet?I say this because many of us have adopted very low fat, low animal protein diets to protect our livers as best we can by reducing their workload. What I jokingly refer to as “my mung bean and kale diet”, which has definitely helped me cope but can in all honesty get a bit boring and unappetising at times.
But now that you have been on treatment for three weeks I would think based on others experience that your liver function is probably either close to or within the normal range and more capable of processing fats and proteins. Your body will also be looking for higher levels of these to assist in the healing process but may be competing for them with your high energy requirements.
I’m not suggesting you go silly on high fat or protein foods and certainly not trans fats but rather that there may now be opportunities to spice up your diet with some additional good fats and lean proteins that will make your diet more appetising and while benefiting your recovery at the same time.
G
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
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