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  • 16 September 2016 at 2:13 am in reply to: Double genotype story #23003
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
    • ★★★★
    @geno1b4

    Well it has been awhile since my last post. In the meantime I felt better and better, and 17 weeks after EOT I did PCR.
    Results are still negative, and hopefully now I can say that both dragons are slayed :woohoo:
    LFT results has never been lower: ALT 15, AST 12, GGT 6, ALP 39

    I was really worried because of my double genotype and very little info on cases like mine, but for now generics magic works great.
    Want to thank everyone here for support, great doc Freeman for valuable info, mr.Parag Jain of Bullpharmachem who provided ledifos and was great friend and tour guide for me in Delhi, and of course inspiring Greg Jefferys, with whom I started this amazing escape from dragons den last May.

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    31 May 2016 at 12:17 am in reply to: So who are the reliable Indian suppliers? #18066
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
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    @geno1b4
    simone wrote:

    great enkel thank you for the endorsment. sorry, just to understand better, where are you based? bye

    Hello Simone,
    One more :+1: for Mr.Parag Jain from me.
    I’ve met him personally in Delhi, January this year where he provided 2×12 weeks Ledifos (gen. Harvoni) tx for me and my friend.
    He is great guy, very helpful and friendly. Everything was as we agreed over the mail and WhatsApp. He showed me Delhi, and I’m invited to visit him in Mumbai whenever I want.
    We are still in contact as I’m updating him regularly about my progress, and helping other hep c folks in Serbia to get in contact with him.

    Just today he sent me a pic of new Ledifos package of 84 pills (12w tx) in one bottle for what he got exclusive deal with manufacturer.
    With that it will be much easier to ship or carry around.

    IMG-20160530-WA0000.jpg

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    24 May 2016 at 12:18 am in reply to: Double genotype story #17668
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
    • ★★★★
    @geno1b4

    Been today to my public doc to present undetected EOT results, and due to Harvoni tx not yet approved by the officials, he didnt have the grounds to ask for PCR SVR4 test, so I will have to wait for 12 weeks to do one, but will do a “poor man’s SVR” or LFT’s next week which would be SVR6. Hopefully ALT will be normal, and if not, well the battle will continue.

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    22 May 2016 at 11:44 pm in reply to: discomfort in liver after tx #17630
    Avatar photoGeno1b4
    • Topics: 2
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    • Total: 44
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    @geno1b4

    I also had pains just below the liver before tx, and it was stomach related. Diagnosis was helicobacter pylori, which I eradicated with antibiotics therapy. After DAA tx I’m again getting my stomach upset with lost of gasses and sometimes pain, so if it not stop soon, I will again run some stomach tests.
    As I understood liver don’t hurt, the only pain in liver can come from gallbladder issues.

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    21 May 2016 at 1:13 am in reply to: Dealing with the EOT to SVR period #17565
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
    • ★★★★
    @geno1b4

    Thanks Dr.Freeman, great info.
    After UND at EOT 5 weeks ago, I’ve done poor mans SVR1, and the LFT’s were all great, but will do another one at SVR5 or 6.
    I will probably have to wait for PCR at 12 weeks because my public hospital Doc is doing monitoring on his own initiative. Sadly Ledipasvir is not yet approved in Serbia so officially I cant be monitored in public hospital, but Doc is a good fellow and also very interested in outcome of generic tx.
    I have all the prerequisites for a SVR like F0, low VL, Fibroscan below 7, but my double genotype and possible further genotype mutations worries me.
    Anyway hoping for the best and feeling great just remembering where I was last May after unsuccessful pegi/riba tx when I stumbled on the Greg’s blog.

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    15 May 2016 at 1:55 am in reply to: Double genotype story #17222
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
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    @geno1b4
    kenbasman wrote:

    Wow. 2 genotypes. That’s some kinda crazy. Congratulations on your results though!

    Yep still wondering how I got them. Was it 2 cases of exposure, one exposure to both, or virus mutated which is also a possibility.
    Here is a research I found about multiple genotypes:

    http://www.bccdc.ca/resource-gallery/Documents/Guidelines%20and%20Forms/Guidelines%20and%20Manuals/Hepatitis/Hep%20C/CPS_HepatitsC_ViralLoad_Rec_20150609.pdf

    Last paragraph is very interesting:
    For all treatment experienced patients, whether they are considered a non-responder or they relapsed post-therapy, or, if re-infection is a consideration, the HCV genotyping should be repeated prior to retreatment.

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    15 May 2016 at 1:49 am in reply to: You can….. make a difference #17221
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
    • ★★★★
    @geno1b4

    I’ve been posting in all forums I can register on, about generics, FixhepC.com and Greg Jefferys, in Serbia and abroad.
    So far no forum bans :)

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    9 May 2016 at 12:36 am in reply to: Double genotype story #16840
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
    • ★★★★
    @geno1b4

    Thx to all for good wishes and karma.

    First checkpoint successfully passed.
    Undetected at EOT B)

    Forgot what that means in success rate, but hoping for the best. Now ahead to SVR4

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    2 May 2016 at 11:37 pm in reply to: discomfort in liver after tx #16514
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
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    @geno1b4

    Same here, plus still upset stomach and lots of gasses after meals. Dunno is it related to liver or it is just stomach upset from tx that need time to settle.

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    2 May 2016 at 11:33 pm in reply to: Double genotype story #16513
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
    • ★★★★
    @geno1b4

    Still waiting for PCR EOT results, expecting them later this week.
    Meanwhile since I’m not a patient fellow, and reading a thread here about possible relapse where good doc Freeman suggested LFT test as a quick check, did one few days ago, and numbers are reassuring: ALT 14, AST 17, GGT 12, ALP 77 so hopefully bug is extinct or dying.

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    25 April 2016 at 11:17 pm in reply to: Feels like possible relapse – plan not panic! #16172
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
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    @geno1b4

    I’m too in the same panic boat after EOT last tuesday. I have to wait for one more week to get EOT PCR results, didn’t do any since started Ledifos tx in January. I’m starting to feel some pain in right abdomen as well as itchy skin all over, just like before tx. Yesterday also got one of those awful headaches that last all day.
    I’m trying to convince myself it is just my body getting back to normal, but in any case just like Dr.Freeman said will draw blood tomorrow for LFT’s.

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    20 April 2016 at 12:55 am in reply to: Double genotype story #15830
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
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    @geno1b4

    Just popped up my last Ledifos pill today. Tomorrow will draw blood for first PCR during tx. During last 12 weeks nothing special about side effects to report. Mainly it was gassy stomach, very dry skin especially on elbows, and slight hair thinning and loss. Very few headaches, and energy levels little higher than usual.
    Been reading a lot about success rates, and hoping my double genotype will not interfere in some strange way with SVR. I’m also starting with milk thistle and as low carbs as I can for the first 4 weeks if that can help getting at SVR4 mark.

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    26 March 2016 at 12:09 am in reply to: Double genotype story #14466
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
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    @geno1b4

    Just started my last Ledifos bottle.
    So far nothing special to report. Some minor side effects, mostly skin rash issues, and some little hair thining. Mild headaches now and then was taken care only by drinking lots of water. My first PCR is due EOT.

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    20 February 2016 at 11:45 pm in reply to: Need some help #12353
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
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    @geno1b4

    Hi Rene,
    My choice was to do the full 12 weeks tx just to be sure. No need to save few hundred bucks and increase risk of relapse.
    As for interactions the ones Chester mentions are for Sofosbuvir/Daclatasvir regarding Daclatasvir interactions.
    We should not eat Grapefruit and st.Johns worth, but I also stopped using all supplements and vitamins including milk thistle just to be on the safe side.

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    20 February 2016 at 11:11 pm in reply to: Double genotype story #12350
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
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    @geno1b4

    My good doc is working in public hospital and will monitor my progress because he wants to help, and by his words I’m the first patient with Harvoni. In Serbia Ledipasvir is still not registered so officially he cannot order too much PCR’s because of its cost.
    Well probably do one on week 4-6 like you suggested and then after tx.

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

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