Forum Replies Created

Viewing 12 posts - 31 through 42 (of 42 total)
1 2 3
  • Author
    Posts
  • 30 December 2015 at 12:41 am in reply to: Eight week treatment #7504
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
    • ★★★★
    @geno1b4

    @Johnboy
    Great news and cheers to your new life
    I’ve stumbled upon this hepc therapy calculator based on trial results on various genotypes.
    Some trials are not big but still one can get a picture of how treatments worked.

    http://hcvsvrpredictor.liverdoc.com/#/HCV

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    30 December 2015 at 12:26 am in reply to: MYLAN MyHep LVIR #7501
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
    • ★★★★
    @geno1b4

    When getting quotes from distributors in India I’ve found this one to be cheapest of three Harvoni generics, dunno why is that, hopefully it is not quality issue:

    LEDIPASVIR.png

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    30 December 2015 at 12:00 am in reply to: Why am I afraid to take the medications? #7498
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
    • ★★★★
    @geno1b4

    You were right about refusing interferon. If I knew about side effects I would never went on it. Luckily after 12 weeks I was pronounced nonresponder and quit therapy. I’ve met people that was cured by 48 weeks hell of pegi/riba therapy, and year after tx end still have numerous strange side effects.
    I’ve heard of possibility that things can go wrong with new DAA, but that is a risk I’m willing to take.
    My viral count is steadily growing and strange headaches, brain fog, and itching are also emerging, so I’m not preparing to wait of a miracle happening in Serbia, like it happened in Australia with PBS approving cheap therapy.
    For me miracle started when I found Greg’s blog in May just after stopping interferon/riba tx.

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    29 December 2015 at 11:29 pm in reply to: Double genotype story #7496
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
    • ★★★★
    @geno1b4

    Well, I’ve decided to fly to Delhi and get the medications personally.
    Return ticket Belgrade-Delhi is around 600EUR, trip lasting about 10hrs with one quick stop in Abu Dhabi. Reserved nice little hotel in a part of city called Paharganj, and will stay for 5 days.
    Decision to travel was easy, this might be one in a lifetime opportunity to visit India, and I love their culture and food.
    So far I got couple of offerings for 12 weeks supply of Ledifos from Bullpharmachem (1200USD) and Gandhi medicos (1050USD), I’ve heard both are trusted sources.
    I was thinking to maybe do a fibroscan test as in Delhi cos I’ve heard it is not expensive so if anyone knows good clinic in Delhi pls reply.

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    17 December 2015 at 10:19 pm in reply to: Double genotype story #6567
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
    • ★★★★
    @geno1b4

    I doubt that I as a foreign citizen can open postal address in Romania, but it is worth checking.

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    16 December 2015 at 11:25 pm in reply to: Double genotype story #6471
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
    • ★★★★
    @geno1b4

    Well finally today I had spoke with post office customs and it is official that in Serbia one cannot import medications by mail.
    I got some last week finding a customs law saying that it is possible, but lady in customs explained that there is a medical authorities law that overrides customs law, saying that only authorized companies can import medications.
    This info can be posted on a thread about various countries custom laws so people from Serbia can plan accordingly.

    On the other hand carrying meds in amount for personal use is allowed and if asked some medical documentation has to be presented to customs officials.
    There are some folks in Serbia gathered around FB page, that are trying to somehow facilitate import of generics, and if that fails I’m packing for India.
    https://www.facebook.com/LekZaHCVuSrbiji/?fref=ts

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    22 November 2015 at 4:45 pm in reply to: Double genotype story #4435
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
    • ★★★★
    @geno1b4

    Importing API via mail and designate them as for research project might be an option, but I will have to investigate that with Serbian customs.
    All my findings I will post here.

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    20 November 2015 at 11:23 pm in reply to: US Importation …. Legal or Not #4291
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
    • ★★★★
    @geno1b4

    He should definitely check with his country customs is it allowed to import medications or API by mail.
    For example in Serbia that is not allowed, but personally you can carry meds with you in amount that will not raise suspicion that you are trying to resell them.

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    20 November 2015 at 11:19 pm in reply to: Double genotype story #4290
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
    • ★★★★
    @geno1b4

    @Vororo
    I bet there are research facilities popping around like mushrooms :lol:

    But I have a different problem then just ordering. In Serbia it is not allowed to import medications by mail from abroad.
    So there is a chance if customs check the package, they can confiscate meds, and I cant do anything about it.
    On the other hand it is perfectly legal to import meds personally.

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    19 November 2015 at 10:14 pm in reply to: Double genotype story #4246
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
    • ★★★★
    @geno1b4

    Thx for info, I will consider all options, but so far the only sure thing is that I will have to travel to a place where I can buy the meds.
    When generic Harvoni becomes widely available I’m pretty sure there will be smugglers reselling it around or in Serbia, but I would still prefer getting it from confirmed source.
    The really sad thing is that Serbian medical authorities rejected Gilead offer for a discount. Allegedly they offered 12 week course for 20.000 EUR, but our corrupted officials would still rather use old treatment because they got hefty provisions from Riba/Peg manufacturers.

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    14 November 2015 at 1:44 am in reply to: Double genotype story #3907
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
    • ★★★★
    @geno1b4

    Privet Berrince,
    I have been in contact with Greg since June, and he gave me hope that there is cure after my failed tx.
    Didn’t quite understand your post. Is there a way to get generic Harvoni in Russia? Because for me it is much easier and cheaper to fly to Moscow than to India/Bangladesh?

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

    11 November 2015 at 1:03 am in reply to: Double genotype story #3635
    Avatar photoGeno1b4
    • Topics: 2
    • Replies: 42
    • Total: 44
    • Recovery Champion
    • ★★★★
    @geno1b4

    I was diagnosed last year so my first PCR was just before peg/riba tx started.
    Bug count:
    December 440.000
    April 12 week tx 55.000
    May 17 week tx interrupted 5.500
    August 3 months after tx 76.000

    My doc is also pretty baffled about my genotypes and he thinks that tx should eradicate both of them. He is supportive on generics issue but cannot help me with importing meds since our stupid laws prevent importing medications through mail shipments.
    I now feel generally better than before tx when I had frequent headaches and brain fog issues, but I feel bug is coming back with a vengeance so I’m not gonna wait for our incompetent government to register Harvoni. Plan is to travel and buy meds locally. There are also rumor’s of black market generics in Serbia but I won’t trust that source.

    Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
    22 Jan. 2016 – Back from Delhi with 12 week Ledifos supply 🙂 Thx to Parag
    Started TX on 27.Jan.2016 – AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
    19. Feb 2016 – ALT 14, AST 14, GGT 19, ALP 107
    19. Apr 2016 EOT – Undetected 🙂
    26. Apr 2016 (1 week after EOT) – ALT 14, AST 17, GGT 12, ALP 77
    28. Aug 2016 (17 weeks after EOT) – UND, ALT 15, AST 12, GGT 5, ALP 39 🙂

  • Author
    Posts
Viewing 12 posts - 31 through 42 (of 42 total)
1 2 3