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  • 5 July 2016 at 7:46 am in reply to: Possible reinfection route #20499
    greyhound
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    • Acolyte
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    @greyhound

    ” with general information like this patients should be told and given fact sheets (produced by the health dept) personally by the nurses and told that it is very important and needs to be read and taken away as a constant reminder.”

    I couldn’t have said it better myself Archer. Patients should be advised by an information fact sheet. Such simple precautions to ensure we don’t get reinfected.

    30 June 2016 at 10:42 am in reply to: Possible reinfection route #20169
    greyhound
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    • Acolyte
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    @greyhound

    Thanks for the advice Dr Freeman. Those personal grooming utensils are in the bin! False economy to keep them even with a good bleaching. I don’t want the Dragon returning EVER!!

    11 May 2016 at 12:28 pm in reply to: Country NSW Treatment access #16962
    greyhound
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    • Acolyte
    • ★★
    @greyhound

    Thank you Dr Freeman.

    I have passed on your remarks to my daughter and she is going to arrange an appointment with GP2U.

    7 May 2016 at 6:28 pm in reply to: Beaches Treatment – Harvoni (Aus PBS) #16788
    greyhound
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    • Acolyte
    • ★★
    @greyhound

    We appear to be on a similar journey. I also contracted HCV in the late 70’s and I started taking Harvoni (PBS) on 16 March. The first week was weird for me. Headaches and a feeling that there was a war going on inside me, the dragon was screaming!! I also seemed to get a little manic with a burst of energy that lasted for 5 days. Since then everything has settled down. My brain fog is dissipating and my sleep is just soooo relaxing. I wake up feeling refreshed (although I still tend to get tired in the afternoon and need a half hour nap). My appetite has increased and I have put on a couple of kilos which is the only real negative :lol: . I have also noticed that my feet which were becoming increasingly numb over the past few years (probably peripheral neuritis from HCV) have started to get more feeling back in them. My 1st month post treatment path results arrived back on my birthday and were everything I could have wished for, LFT’s in the normal range and PCR negative. Best birthday present ever!! I’ve just about finished my 8th week. I wonder how good we will feel when we finish taking Harvoni!

    Cheers

    30 September 2015 at 4:33 pm in reply to: Sof plus Dac or Sof plus Led? #1593
    greyhound
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    • Acolyte
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    @greyhound

    Yes, that is exactly what I intend to do. I have already had a Fibroscan done earlier this year through my virologist in Sydney. I’m having updated LFT’s done tomorrow am. I’ll get the results first then make an appointment online with GP2U.

    30 September 2015 at 4:06 pm in reply to: Sof plus Dac or Sof plus Led? #1590
    greyhound
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    • Acolyte
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    @greyhound

    Well I went to see my GP, a new Irish doctor only in Oz for 6 months who is not very familiar with HCV and it’s management. My regular GP has retired. She was not willing to prescribe for me. She wants to get advice from my Virologist in Sydney who had already written to my GP stating that I am well educated on available and new treatments in the pipeline, that he did not need to see me again and that I could access treatment through my GP when they became available thru the PBS. So, once again it’s back on the treadmill. My GP did not want to write the prescription because she thought she would be liable if I used the script to procure ‘unsafe’ drugs from overseas. She will await advice from my virologist which could take a month and even then it is possible he is unaware that there is a safe and effective way of accessing these meds through the buyers group.

    30 September 2015 at 5:46 am in reply to: Sof plus Dac or Sof plus Led? #1569
    greyhound
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    • Acolyte
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    @greyhound

    Thanks for that info Sirchinenge. Just to clarify, I did not have Pegylated interferon or Ribavirin. It was in the early days of Interferon treatment and I had to inject interferon twice per week. I ceased it after 6 weeks as there was no improvement. I certainly would MUCH prefer not to have Ribavirin in the mix as I remember how absolutely horrible the effects of interferon was and I’ve read up on the side effects of Ribavirin. The general consensus from the SVR predictor you provided is that there is a strong predictor (97%) chance of SVR with 12 weeks of Sofosbuvir + Ledipasvir without Ribavirin and 100% with it. 97% is pretty good odds and being a bit of a gambling man I’m strongly tempted to lean in that direction. I will be guided by Dr Freeman’s advice though.

    30 September 2015 at 4:41 am in reply to: Sof plus Dac or Sof plus Led? #1564
    greyhound
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    • Acolyte
    • ★★
    @greyhound

    To clarify my 5 on the fibroscan scale I am talking about 5 kPa not F5!!

    “FibroScan® results range from 2.5 kPa to 75 kPa. Between 90–95% of healthy people without liver disease will have a liver scarring measurement <7.0 kPa (median is 5.3 kPa)".

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