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FDA lifted their hold on the 26th. DHL has told me 3 times since it would be here ‘ tomorrow morning ‘. One time even claiming it should’ve been here on that specific day I spoke to them, but the plane hit a bird. So it would be here tomorrow. Tomorrow never came, so far. Now they’re telling me they will need to hold it for another month as they themselves inspect my package.
More damage every day, I really hope to avoid a liver transplant. I’m so disappointed. Wish they would start this process over again and ship my meds FedEx.Thank you for the info. It makes me feel a lot better.
I mainly have been just clicking the larger link that appears in my email to get here.. I wasn’t sure how any other way.
So far I do t see the code!
Thanks!LOL, I had a lot more written there but there must be a letter limit or something. It all just disappeared when I sent it. Guess I’ll go type in my code now so I can send this , and then it’s time for sleep. Good night
I was referring to my doctor (hepatologist ) here in Portland area. Lol. Not sure if he’s an international expert or not, but I sure hope so!
I am decompensated with cirrhosis. My dumb luck as well!Hope I’m getting the right choice! Didn’t know there was one just took what the doc said. …well, that is if I ever get it.
Thanks for your help!
I appreciate itWhich drug did you use? Was it the generic for Epclusa. (VELASOF)?
And do we have to enter a code every time we message?Actually I’m not sure who it is I’m talking to each time. I thought 2B HERE but no I notice there are other names on the messages.
Sorry I’m such a technology dork.Thanks 2B HERE,
I just sent email. Hope I did it right. I think perhaps an iphone may not be the best for this site.
We are building a home and everything is packed so that’s what I’m stuck with for now.Thank you for welcoming me
Does any one know how much longer it can take to get meds if FDA places a hold on them?
ThTs what has happened. I’m near Portland Oregon and they are held up in Cincinnati Ohio .
Also, has anyone used Epclusa for their treatment?
And do you have to use that captcha code every time?Hi, I’m new. They just sent me a link to sign up so I did. Looking around the forum I came across this group. I should have visited first and saw you were using 2B.
( don’t know if I could have seen anything though without signing up first). I apologize for almost having same user name. It sounded like a good descriptive one when I thought of it, so…
Can anyone tell me how to start new threads? I’m not very tech and couldn’t figure out!
I’ll be starting 24 weeks of Epclusa if it ever arrives! -
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