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Viewing 8 posts - 1 through 8 (of 8 total)
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  • in reply to: SVR12!!! #26776
    Janet UK
    • Topics: 4
    • Replies: 8
    • Total: 12
    • Acolyte
    • ★★
    @janet-uk

    Congratulations to you too Infinity Dreams! It’s a great feeling isn’t it?

    Best wishes for the future x


    Infected 1981 by contaminated blood products
    Geno 3
    Interferon/Ribavirin 2009 relapsed after EOT
    Generic Sof/Dac started 28 Jan 2017
    Baseline VL 24.7 million
    UNDETECTED after 26 days.

    in reply to: Quick question #26042
    Janet UK
    • Topics: 4
    • Replies: 8
    • Total: 12
    • Acolyte
    • ★★
    @janet-uk

    Wow, thanks Gaj! I knew someone on here would come up with the answer. I’m so impressed with the entire generic Hep C meds community. There’s always someone, somewhere willing to give their time to answer my questions. I’ve had far more support than the NHS were willing to give me. Funny that, when it was them who infected me in the first place.

    :) :)


    Infected 1981 by contaminated blood products
    Geno 3
    Interferon/Ribavirin 2009 relapsed after EOT
    Generic Sof/Dac started 28 Jan 2017
    Baseline VL 24.7 million
    UNDETECTED after 26 days.

    in reply to: Contingency Plan #25875
    Janet UK
    • Topics: 4
    • Replies: 8
    • Total: 12
    • Acolyte
    • ★★
    @janet-uk

    Thanks Coral. I agree that we’re very lucky to have Dr F’s advice. Words can’t describe how much I appreciate the support and advice I’ve been given by him. We’re also very lucky to have the support of the wider online generic treatment community. I actually feel as though I’m in better hands than if I’d been treated and monitored by my NHS consultant and nurse specialists.

    I sincerely hope that by posting my experiences and questions publicly, others will gain too. Best wishes to all.

    Jan


    Infected 1981 by contaminated blood products
    Geno 3
    Interferon/Ribavirin 2009 relapsed after EOT
    Generic Sof/Dac started 28 Jan 2017
    Baseline VL 24.7 million
    UNDETECTED after 26 days.

    in reply to: Contingency Plan #25853
    Janet UK
    • Topics: 4
    • Replies: 8
    • Total: 12
    • Acolyte
    • ★★
    @janet-uk
    Greedfighter wrote:

    Hi Janet UK,

    Listen to the advice from James Freeman. He is the leading expert in the world on generic Hepatitis C treatment.

    Yep, I’m really grateful for James’ advice. My supply of a further 4 weeks treatment is on its way to me.

    Thanks all!


    Infected 1981 by contaminated blood products
    Geno 3
    Interferon/Ribavirin 2009 relapsed after EOT
    Generic Sof/Dac started 28 Jan 2017
    Baseline VL 24.7 million
    UNDETECTED after 26 days.

    in reply to: Contingency Plan #25834
    Janet UK
    • Topics: 4
    • Replies: 8
    • Total: 12
    • Acolyte
    • ★★
    @janet-uk

    Well I decided to take the plunge and order a further 4 weeks sof/Dac. It will be dispatched from India tomorrow.

    James, do you have any-up-to-date stats on success rates for previously treated G3s with F2-3?

    I like to think that other people will benefit from reading my posts when they’re gathering information​ to base their decisions on. I’m so very grateful for all the information I’ve gathered from reading forums like this. I’ve come across some really caring, helpful people.


    Infected 1981 by contaminated blood products
    Geno 3
    Interferon/Ribavirin 2009 relapsed after EOT
    Generic Sof/Dac started 28 Jan 2017
    Baseline VL 24.7 million
    UNDETECTED after 26 days.

    in reply to: Contingency Plan #25829
    Janet UK
    • Topics: 4
    • Replies: 8
    • Total: 12
    • Acolyte
    • ★★
    @janet-uk

    Thanks James. I’m fairly sure the arthritis is not gout because there’s no visible inflammation and it doesn’t seem to fit the description of gout.

    When you say it’s feasible to get Sof/vel to me in time, are you suggesting I should change over to Sof/vel for the final 4 weeks? I’m on Sof/dac currently.


    Infected 1981 by contaminated blood products
    Geno 3
    Interferon/Ribavirin 2009 relapsed after EOT
    Generic Sof/Dac started 28 Jan 2017
    Baseline VL 24.7 million
    UNDETECTED after 26 days.

    in reply to: Contingency Plan #25810
    Janet UK
    • Topics: 4
    • Replies: 8
    • Total: 12
    • Acolyte
    • ★★
    @janet-uk

    I was intending to extend to 16 weeks but arthritis is so bad that I can’t walk more than about 20 metres. I have inflammatory autoimmune arthritis (Sjogrens Syndrome) as well as advanced osteoarthritis in hips and knees. I strongly suspect that the hep C treatment has brought on a flare of the autoimmune arthritis because it’s increased dramatically since about week 3. I’m being assessed for hip replacement this week.

    For those reasons, I made a decision to take my chance with 12 weeks treatment and have another go with Epclusa if I relapse. That way, i would get the surgery over with before retreating.

    I sincerely hope I won’t relapse, the autoimmune arthritis will settle and the hip replacement will make new woman of me.

    I suspect the consultant was eating sour grapes when she said retreating might not be an option. She was quite surprised that I’d been treated and cleared without her input.


    Infected 1981 by contaminated blood products
    Geno 3
    Interferon/Ribavirin 2009 relapsed after EOT
    Generic Sof/Dac started 28 Jan 2017
    Baseline VL 24.7 million
    UNDETECTED after 26 days.

    in reply to: Sof/dac and autoimmune disease arthritis #25676
    Janet UK
    • Topics: 4
    • Replies: 8
    • Total: 12
    • Acolyte
    • ★★
    @janet-uk

    Thank you, James. I’ll ask my GP to check those levels.

    I had been considering extending Sof/Dac to a 16 week course instead of 12, just to give myself a better chance of success, but if the arthritic problems are being aggravated by the treatment I’m not sure whether that’s a good idea or not. Perhaps, given that the virus was undetectable in less than 4 weeks, I really don’t need to… It’s a devil and deep blue sea situation.


    Infected 1981 by contaminated blood products
    Geno 3
    Interferon/Ribavirin 2009 relapsed after EOT
    Generic Sof/Dac started 28 Jan 2017
    Baseline VL 24.7 million
    UNDETECTED after 26 days.

Viewing 8 posts - 1 through 8 (of 8 total)