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  • in reply to: Started treatment! #26472
    jenrn180
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    @jenrn180

    Thank you Coral!! I agree about the brain fog. I’m remembering things better and sleeping a great deal less. No insomnia. Thx for the encouraging words!


    JenRN

    in reply to: Started treatment! #26471
    jenrn180
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    @jenrn180

    Thank you Greedfighter. I like the name…it is quite relevant in this fight in the US for hcv treatment. I work exclusively with hep c patients and in transplant. I had NO idea care rationing was going on the way it is and just assumed that treatment was available to everyone. That’s scary, because healthcare providers who are intimate in the field of hep C don’t realize that despite there being a cure, the majority of insurance companies aren’t paying up. Does anyone find it odd that the Harvoni commercial says “join the 200,000 people who have been cured by Harvoni.” Only 200,000 people are cured when there are millions of Americans with this disease? I have access to the top hepatologists and transplant surgeons in the country and have been unable to access treatment in the US. I’m told I’m too “healthy” for treatment. AND more concerning still is that I, a healthcare provider, had NO idea generic DAAs were even available until I did more research and enrolled in the Redemption trial. We have lots of educating to do. Unsure yet how I’m going to get the word out and have asked my employer if I can share my own experience with my patients. Regardless of my own outcome, as it is too soon to tell, it’s important to get the word out that this option exists for those who are being held hostage by insurance and immoral price gouging by the drug companies. Thx for listening.


    JenRN

    in reply to: Started treatment! #26470
    jenrn180
    • Topics: 2
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    @jenrn180

    Hazel I can’t agree more. I was in such a dark and hopeless place before finding this program and talking to Greg Jefferys. My life is worth more to me than the $84,000 Harvoni price tag that my insurance company refuses to pay. Feeling controlled by this dynamic is easy to fall prey to. Once I realized I had control and didn’t have to wait anymore it was literally like the clouds opened, I felt totally hopeful again. And that hopeless feeling hasn’t been back since. I am so grateful.


    JenRN

    in reply to: Started treatment! #26469
    jenrn180
    • Topics: 2
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    • Total: 7
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    @jenrn180

    Thank you Gypsy! There is so much talk in this country on health coverage etc. but what difference does it make if DAAs are being denied unless you are F3 and in liver failure? I have coverage and it hasn’t made the slightest difference. Bottom line in the US, is that hcv patients literally are living with a sword on their necks as a result of pure greed. my Dr told me to “rethink using generics” because my use of them may disqualify me for a transplant if I were to need one in the future. My reply to her was that I won’t need a bloody transplant if I had treatment covered. Another thing…it takes 6 weeks to see my gastroenterologist every time I see her. I’ve sat for 3 months with no movement on my script etc and then it was denial denial denial. I had all my meds ready to go while trying to get it through insurance, which I was certain was going to be denied due to my fibrosis score. This trial, which only costs approx$1200, has provided me with inexpensive and readily available doctor appointments via GP2U AND medication. Gypsy, I am unsure where you live in the US, but how are you getting the word out about this program? Are you meeting any resistance? Thank you!


    JenRN

    in reply to: Started treatment! #26468
    jenrn180
    • Topics: 2
    • Replies: 5
    • Total: 7
    • Novice
    @jenrn180

    Thank you Hazel! I feel so lucky to have found this program and it feels good to be in a forum where people understand the struggles associated with hep C. I’m sick of this being called a silent disease. It isn’t. It’s deadly and ugly and criminal how care is rationed. I hope to report good blood work at 4 weeks into treatment!


    JenRN

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